I cannot believe we are back here!!! Absolutely heart breaking 💔 #cysticfibrosis Kaftrio has been life changing for my son!! Karl Turner MP

100,000 people around the world agree that people with #cysticfibrosis have the #RightToBreathe If you also agree then please sign and share the petition for global access to Vertex Pharmaceuticals's CF modulator therapies at a fair price PETITION: actionnetwork.org/forms/cf-drugs… #kaftrio

We are advocating for #CysticFibrosis patients EVERYWHERE, including the UK, where Vertex Pharmaceuticals’s prices are causing anxiety for many CF families. Our petition has surged and we will ensure that Vertex hears ALL your voices, loud & clear. Please sign: actionnetwork.org/forms/cf-drugs…

‘It's just unthinkable that they can take these children's lives away from them, when there is a drug that can stop it’ bbc.in/4746y79

In the Telegraph today will be a very informative article on the recent news for #cysticfibrosis in regard to the draft recommendation from NICE on #Kaftrio and modulator drugs for CF. And guess who's mentioned! Its also on their website (link in comments)! #CFCommunity

Janco lives in South Africa and is one of tens of thousands with #cysticfibrosis who don't have access to CFTR modulator therapies priced out of his reach by Vertex Pharmaceuticals Please share and any small donation for his medication will be gratefully received backabuddy.co.za/champion/proje…

It would be great if Cystic Fibrosis Trust could update the community today as there has been some confusion on the helpline. ThankYou David Ramsden

A two tier #cysticfibrosis community is not ethically acceptable Help the under 2's who may be facing a future without life-saving modulator therapies in the UK #cysticfibrosis #healthcare Dr.Ravij Kuanprasert Ciaran Mc Varnock™ Greg Barber Dr Zoe Bagley petition.parliament.uk/petitions/6506…

"This drug has to be affordable & sustainable. It's not a one-off drug. Once on it, patients need it for life in order to enjoy the benefits" SIGN THE PETITION actionnetwork.org/forms/cf-drugs… bbc.co.uk/news/health-67… Ben Oxlade-Parker cf/Aware Nicola Johnson Ciaran Mc Varnock™ Liam Mc Hugh

I have cystic fibrosis but experts say drugs for others like me are too expensive. What price a life? | Johanna Tate | The Guardian theguardian.com/commentisfree/…

Offer COVID-19 boosters to all over 50s, asthmatics and long Covid sufferers We believe the COVID-19 autumn programme unfairly excludes certain people, and that widening entitlement would better protect the public and create financial savings. petition.parliament.uk/petitions/6521… #covid

The clinically extremely vulnerable have no choice, but to visit hospital regularly. The least they can expect in a medical setting is #CleanAir Pls sign/RT petition.parliament.uk/petitions/6545… Anand Mishra Dr Sally Witcher @christyfraser Jane Webster Gina 😷 SARS2isAirborne #VoteGreen 💚 Siouxsieloveshurts

Introduce new air quality and PPE rules for health and social care settings Many people go into hospital for one problem and end up with #covid as well. I wonder why so many critical incidents are being declared at hospitals across the UK? PETITION ⬇️ petition.parliament.uk/petitions/6545…

▶️Three weeks until petition closes ▶️No recent updates ▶️Sign/share for the next generation of #cysticfibrosis patients #NoOneLeftBehind petition.parliament.uk/petitions/6506… cf/Aware Dr Zoe Bagley Rachel cole Liam Mc Hugh Greg Barber my CF Hero 💙 Jody65 #CFcarer Evergreen Nebulisers - 💙Gail

Update - Day Two ended with over 300 new signatures! Great work everyone💪 Day THREE starts now. Every share counts. Every person you ask to sign AND SHARE offline counts.

Can we ask Sadiq Khan to please support this petition calling for #CleanAirInHealthcare? Clean air and adequate PPE in health settings will SAVE LIVES petition.parliament.uk/petitions/6545… #cleanairNOW #Health #ProtectPatients #patients

Mask Up and Sign Up Signatures on this petition can help to make change happen in hospitals and medical settings PETITION🔽 petition.parliament.uk/petitions/6545… #CleanAirInHealthcare #cleanair #health #covid #maskup #masksinhealthcare #patients

"Skip for 11 minutes every day" they said "I can do that" I said And now I've got to do it - starting tomorrow!! Please donate for the #CFTrust while I go and untangle the skipping ropes😳 🔽🔽 cysticfibrosistrust.enthuse.com/pf/team-strawf…

My daughter is thriving whilst theirs continue to suffer, along with 000’s of other #CysticFibrosis sons & daughters worldwide. This is not OK - lifesaving drugs should be available to ALL regardless of wealth or geography. 🫁💊🌍 #CFMumsUnited #RightToBreathe #Trikafta4All

As we welcome the news that NICE have approved permanent access to life changing #cysticfibrosis drugs on #NHS in England - please support the call for fair access in every country Follow Vertex Save Us Just Treatment 💊 righttobreathe.net DONATE HERE actionnetwork.org/fundraising/cf…