🌎 Right to Breathe campaigners take action at the Brazilian Cystic Fibrosis Congress! 🇧🇷 Advocating for global access to essential #CysticFibrosis medication and urging @VertexPharm to lower prices. #RightToBreathe

If you have been following the 'Right To Breathe' campaign over the past few months, then it is now easier to keep up with the latest developments and connect with the campaign via this vibrant new website ⬇️ righttobreathe.net @cfaware #cysticfibrosis Just Treatment 💊

The European #CysticFibrosis Conference has kicked off today in Vienna! 🙌 We're excited to speak to CF clinicians & advocates about our #RightToBreathe campaign for global access to lifesaving CF treatment. 🌍 Find out more ⬇ righttobreathe.net #ECFS2023 Vertex Save Us

Lots of support already for the #RightToBreathe campaign at #ECFS2023! Thousands of #cysticfibrosis patients are being left to suffer & die because Vertex Pharmaceuticals is charging $326k for lifesaving treatment. This must change. #CFcantwait Find out more 👇 righttobreathe.net

Day 2 of the European CF Conference in Vienna - we are here to highlight the disparity in access to #Trikafta #Kaftrio and speak up for all those countries without access. Enough is enough. #RightToBreathe #NoOneLeftBehind

Dr Marco Zampoli, from #SouthAfrica CF advocate & VSU supporter, presenting at the European CF Conference today, outlining the unacceptable disparity in access to #Trikafta #Kaftrio around the world. #RightToBreathe

#ECFS2023 Vertex Pharmaceuticals session - real-world study - #Trikafta for children age 6-11. Challenging Vrtx on access to #cysticfibrosis medicines in LMICs. “Clinicians and families in those countries would also like to see these results”. We need a global access plan NOW #CFWontWait

#ECFS2023 After 3x Vertex Pharmaceuticals talks about the effectiveness of #Kaftrio. VSU mum urte_g from #Lithuania joins CF researcher Jonathan Guo to talk about life w/o access to CF modulators. So powerful ❤️. One attendee said this was “the best presentation at the conference by far”

📢 Last week at the #ECFS2023, Vertex Pharmaceuticals faced unprecedented pressure from the #RightToBreathe campaign. Patients, parents & clinicians were united in a call for affordable access to lifesaving #CF meds. The silence is broken & the tide is turning⬇️ righttobreathe.net/post/vertex-un…

The action was led by 3 #cysticfibrosis mums - Gayle (UK🇬🇧), Pratibha (India🇮🇳) & Urte (Lithuania🇱🇹) - who travelled across the world to confront Vertex. They brought dozens of messages from CF families urging global access to meds. Vertex Pharmaceuticals, are you listening?"

BREAKING: Today VSU representatives were at Vertex Pharmaceuticals offices in Boston to deliver heartbreaking messages from CF families around the world who cannot access #Trikafta b/c of the extortionate price tag. Enough is enough! Every patient everywhere has the #RightToBreathe.

We are at #NACFC2023 in Arizona. Raising our voices for CF families around the world that don’t have access to #Trikafta & other modulators. Taking a message to Vertex Pharmaceuticals that their profit driven behaviour is not acceptable. We will not stay silent. #Trikafta4All #NACFC

Urtė from #Lithuania spoke about life without access to modulators for her daughter Milda. The reality is so powerful that some audience members were moved to tears. 😢 Vertex Pharmaceuticals must change their ways & provide access to all. #RightToBreathe

#NACFC2023 Following Jonathan Guo’s presentation on equitable access to modulators, with emotional testimony from Lithuanian CF mum urte_g, audience members waited to have their say, including: (1/6)

Dr Meghan McGarry - saying it as it is: Vertex Pharmaceuticals: not normal behaviour…record breaking profits…not putting $ back…$3b stock buybacks…serving shareholders… using the CF community…copay changes…no one can afford these drugs…Vertex don’t care…we need to speak out.👊💊🌎

My daughter with CF has no access to gene modulators! Vertex Pharmaceuticals how many billions is enough?!

I had a short speach at #NACFC2023 as a member of Vertex Save Us about not having gene modulators in my country #lithuania because of their high price Vertex Pharmaceuticals has set. My 3 year old daughter Milda is condemned to a slow and painful death without these drugs. #righttobreathe

It’s not only #cysticfibrosis patients in low income countries that can’t access #Kaftrio #Trikafta because of the price tag 💵 We’ll be at European Cystic Fibrosis Society next week for patients like Lukas #Lithuania who continue to suffer. Shame on you Vertex Pharmaceuticals righttobreathe.net/post/patients-…

We are in Glasgow this week at #ECFS2024 to highlight the plight of thousands of #CysticFibrosis patients around the world who do not have access to lifesaving medicines because of the extortionate price tag. 🫁💊🌍 Together we will be heard. #Trikafta4All Just Treatment 💊

VSU CF mums & supporters have been speaking out at the European CF Conference in Glasgow to insist that Vertex Pharmaceuticals lowers their unjustifiable price for #Trikafta and stops holding sick children to ransom. Enough is enough. 🫁💊🌍 #RightToBreathe #Trikafta4All #CFWontWait