MND Peer Support (@mnd_peersupport) 's Twitter Profile
MND Peer Support

@mnd_peersupport

A virtual peer-to-peer support programme for informal caregivers of individuals with Motor Neurone Disease at risk of becoming or currently technology-dependent

ID: 1528394764604870656

linkhttps://rb.gy/scyv6s calendar_today22-05-2022 15:19:15

42 Tweet

206 Takipçi

1,1K Takip Edilen

Liam P Dwyer (@liampdwyer) 's Twitter Profile Photo

#Branches & #Groups if you have MotorNeuroneDisease in need of an #AAC device Pls contact @MND_CommsAids or #MND Connect Helpline it's free and offers information & support on all aspects of motor neurone disease 📞 0808 802 6262 📧 [email protected] mndassociation.org/support-and-in…

MND Peer Support (@mnd_peersupport) 's Twitter Profile Photo

Hooray, the weekend is almost here! But timeoff for caregivers of people with #MND is non-existent. KCL is undertaking #research to see if online #peersupport can help #carers in their invaluable role. Interested? See more here rb.gy/scyv6s Esther Hobson MND Association

red devil (@pilko71) 's Twitter Profile Photo

HELP REQUIRE D; Jordie now requires an Air Flow mattress and I am having trouble finding holiday cottages that have this, plenty with electric bed but not air flow mattress. MND friends can you help 🤞🙏❤️MND Association My Name'5 Doddie Foundation Rob Burrow CBE Darby Rimmer MND Foundation

Oliver Pain (@ollie_pain) 's Twitter Profile Photo

Our new preprint: ALS brain transcriptome-/proteome-wide association study (TWAS/PWAS) elucidates molecular mechanisms, highlights drugs reversing ALS risk profiles, and generates blood-based polytranscriptomic scores predicting ALS risk. tinyurl.com/2jdukhb6 (1/6)

Our new preprint: ALS brain transcriptome-/proteome-wide association study (TWAS/PWAS) elucidates molecular mechanisms, highlights drugs reversing ALS risk profiles, and generates blood-based polytranscriptomic scores predicting ALS risk. tinyurl.com/2jdukhb6 (1/6)
Neuroprogressive and Dementia Research Network 🌐 (@nrs_ndn) 's Twitter Profile Photo

Are you a family Carer of someone with Motor Neuron Disease (MND)? We are looking for Family/informal carers of someone with MND for a research study of online peer support. To sign up: [email protected]

Are you a family Carer of someone with Motor Neuron Disease (MND)? 
We are looking for Family/informal carers of someone with MND for a research study of online peer support.
To sign up: peersupport@kcl.ac.uk
Doddie Aid (@doddie_aid) 's Twitter Profile Photo

We have the ‘Match Ball’ for the ‘Doddie Cup 555 Ride’ and we’ve taken it on tour. Anyone know where we are? #doddieaid2023 #mnd #doddiecup555 #dc555 #mndresearch #doddieaid

We have the ‘Match Ball’ for the ‘Doddie Cup 555 Ride’ and we’ve taken it on tour. Anyone know where we are? #doddieaid2023 #mnd #doddiecup555 #dc555 #mndresearch #doddieaid
MND Peer Support (@mnd_peersupport) 's Twitter Profile Photo

Family carers have compassion in abundance! If you care for someone with #MND & are interested in finding out more about our virtual peer support #research trial please contact Rebecca at [email protected] or follow this link rb.gy/scyv6s Esther Hobson St Margaret's Hospice Care

Pilgrims Hospices (@pilgrimshospice) 's Twitter Profile Photo

Do you care for someone with motor neurone disease? You may be able to join this MND Peer Support study, which #PilgrimsHospices is supporting, or become a peer supporter for someone in need. For more info, email [email protected] or click here: ow.ly/IO0t50JTJJH 💙

Do you care for someone with motor neurone disease? You may be able to join this <a href="/MND_PeerSupport/">MND Peer Support</a> study, which #PilgrimsHospices is supporting, or become a peer supporter for someone in need. For more info, email peersupport@kcl.ac.uk or click here: ow.ly/IO0t50JTJJH 💙
Neeraj Shah (@neeraj0588) 's Twitter Profile Photo

Do you look after patients with neuromuscular conditions? #NMD Please complete our survey to tell us what you think is important to measure in future studies on secretion clearance. Your voice is vital to make this work! delphimanager.liv.ac.uk/secretion_clea…

MND Peer Support (@mnd_peersupport) 's Twitter Profile Photo

Are you living with a neuromuscular condition? Or are you caring for someone with #NMD? Please complete our survey to tell us what is important to measure in future studies of treatment to help clear mucus. Your voice is vital to make this work! shorturl.at/pvUW6

MND Peer Support (@mnd_peersupport) 's Twitter Profile Photo

We are running a virtual peer-to-peer support programme for informal caregivers of individuals with #MND at risk of becoming or currently technology-dependent. Read more here rb.gy/scyv6s or email [email protected] #RCT #peersupport

MND Peer Support (@mnd_peersupport) 's Twitter Profile Photo

Are you a carer of someone living with #MND? Are you interested in taking part in a #research trial to see whether #online #peersupport can reduce #stress levels and promote #wellbeing. Interested? Please contact us at [email protected]. More details, rb.gy/scyv6s.

MND Peer Support (@mnd_peersupport) 's Twitter Profile Photo

#newday our #MNDPeerSupport study will continue recruitment until May 2025! 🎉 #trending We have now recruited 119 participants out of a target of 160. 🎯 #thankyou to MND Association Marie Curie King's MND Centre University Hospitals Sussex #research #AcademicTwitter #carersweek