Do you or someone you know have MND and live in the UK? Please help us take part in our research to improve the way we support people experiencing emotional distress. Emily Mayberry (she/her) Chris McDermott Charlotte Massey Paul Wicks South Yorkshire MNDA Neuroscience Institute NIHR Sheffield Biomedical Research Centre

Latest publication 🎉:
End of life decision making when home mechanical ventilation is used to sustain breathing in MND: patient & family perspectives. doi.org/10.1186/s12904…
Dr. Eleanor Wilson christina faull jon palmer Ben Messer Alison Armstrong Ed Presswood

Find the clinical trial process confusing?

Not sure what all the different terms and abbreviations mean?

Not sure where to start to find information?

You need to follow our new #ClinicalTrials 101 !

#MND #ALS #ClinicalTrials

Congratulations to our award-winning ECRs and thank you to all those who took part in our first ECR symposium. sheffield.ac.uk/neuroscience-i…

World HMV Day 2024 is four weeks away! To find out how you can support the event and take part in our HMV&Me Campaign go to hmvip.co.uk/world-hmv-day-…. The more taking part, the greater the impact on raising awareness of the benefits which home mechanical ventilation provides. #HMV

I joined doctors & patients protesting outside GMC as Dr Sarah Benn awaits to hear if she will be struck off for peaceful climate action.

Striking whistleblowing doctors off rides roughshod over the GMC’s own legal and ethical responsibility to protect patient safety.

🚨 BREAKING: Dr Sarah Benn Found Guilty of Professional Misconduct after Taking Action to Protect Patients' Lives

⛓️ The Medical Practitioners Tribunal has found Dr Sarah Benn, a GP and NHS doctor of more than 30 years, guilty of professional misconduct after being imprisoned…

💥 NHS STAFF 💥

Please consider signing this open letter to Victoria Atkins & Amanda Pritchard at NHS England expressing your dismay at their extraordinary decision to cut NHS Practitioner Health funding for hospital staff.

Please share widely 🙏

Letter here:

forms.gle/YmXpi8dxSbW7UR…

We are running a virtual peer-to-peer support programme for informal caregivers of individuals with #MND at risk of becoming or currently technology-dependent. Read more here rb.gy/scyv6s or email [email protected] #RCT #peersupport

The University of Sheffield The University of Sheffield is recruiting for a Clinical Research Fellow to work within MND / Neurology / Translationaly Neuroscience working on gene therapy. Closing date: 6th May.

dementiaresearcher.nihr.ac.uk/job/clinical-r…

Watching #theAssembly what an amazing bunch of role models. So much kindness. Incredible amount of support in that room for each other.

There's only a month left to apply for one of Neuroscience Institute's Advanced Cell and Gene Therapies scholarships!
We have two bursaries worth £6,200 each to help students fund their master's studies. Read the eligibility criteria and apply at sheffield.ac.uk/smph/postgradu….
Sheffield Uni - Clinical Medicine 🦠 💉 🫀💙🔬🩺

Love to see Tom Pidcock popping to Mozzies in Leeds for his weekly shop in that car.

The Association, alongside My Name'5 Doddie Foundation & MND Scotland, understand the continued frustration within the MND community that we are still awaiting publication of data from the MIROCALS trial.

Read our full statement below.

If we had transparency we've requested for months on process followed by #Mirocals Consortium to select commercial partner #Iltoo , it would help. Why a small company? Why a NEW drug when trial drug #Proleukin already available? Lessons MUST be learned for future trials-see image

𝐋𝐚𝐭𝐞𝐬𝐭 𝐧𝐞𝐰𝐬

The phase 3 clinical trial testing TUDCA as a treatment for #ALS #MND failed to meet its primary outcome.

No significant differences were observed across secondary endpoints.

Read more ⬇️

mndassociation.org/research/lates…

To create a world free of motor neurone disease ( #MND / #ALS ), we first need to find effective treatments. 🔬

EXPERTS-ALS, supported by MND Association, aims to rapidly screen potential treatments and prioritise the most promising candidates.

Read more: mndresearch.blog/2023/06/21/exp…

TUDCA-ALS study did not meet the ALSFRS-R primary endpoint and there were also no significant differences observed across secondary endpoints.

Perhaps no surprise following Relyvrio outcome but still disappointing
tudca.eu/top-line-resul…

🗣 INVITATION TO RESEARCH 🗣
As a part of my MSc Dissertation, I'm looking to speak to Speech and Language Therapists with experience of voice banking for people living with Motor Neurone Disease. Please get in touch if interested! Thank you ☺️
#voicebanking #mnd #sltresearch

Calling all band 5/6 respiratory physiologists, nurses and physios - Breas UK are running a Non-Invasive Ventilation study day in Warwick on the 9th May. Click on the link to apply for your place🙂

forms.office.com/e/JVKPVjTwFD

HMV-UK SiLVaH

#Vivo123 #Nippy4 #NIV #HFNT #HFNO