Great reflective/ debrief session on NMU today with three members of staff sharing their stories and experiences of catastrophic bleeds in palliative care patients, facilitated by Aron our chaplain.

Thank you to all involved 🤩

🗣️ “They just didn’t place any value on that part of my identity and I wasn’t seen”

Coming soon. Our new co-produced resource ‘It’s more than rainbows in receptions’ - Working with LGBTQ+ People in Palliative and End of Life Care’.

Illustration: Cass Humphries-Massey

This little VGA to HDMI adapter represents so much of what disappoints me working in the NHS.

A thread:

1/

This amazing family in Derby light up their house for all to appreciate in memory of their loved one, and raise money for The Nightingale Macmillan Unit.

I have visited tonight and it is beautiful… your fundraising each year really is appreciated ✨🎄❤️

'I've never doubted it — people are suffering,' says Harlan Krumholz, a cardiologist at Yale University involved in #LongCovid research. 'But we're now seeing imaging evidence, biopsy evidence, physiologic testing evidence of derangements in people who have long COVID.' npr.org/sections/healt…

Internal Autistic Traits

#Autistic #ActuallyAutistic #Autism
#Neurodivergent
#Autism Acceptance
#MentalHealth
#Disability

People with chronic illnesses really should have (and deserve) a care coordinator who can do the fighting, chasing up, and be the single point of contact so the patient doesn’t have to do all the phone calls etc…

Patients should be able to focus on living, not fighting for care

i wonder if me saying something like, ‘i don’t understand intentions, can you tell me what you mean?’ comes off as manipulative. non-autistic people are trying to not say what they mean. and me, an autistic person is picking up on this, feeling confused + wanting more info

October marks the start of #DysautonomiaAwarenessMonth = disorders of the autonomic nervous system, including #PoTS 💜

Many are diagnosed after viruses, such as #Covid19
Please learn more on our website: potsuk.org

#Medtwitter #TeamGP #MECFS #EDS

Ward 2 celebrating falls awareness week staff have all worn yellow socks visible which generated lots of questions Clare Hicklin Sophie Wright Paulos the Greek #FallsAwarenessWeek

To be listened to and heard is often all we need. 🧡

DON'T MISS! The Double Empathy Problem and Perceptions of an Autistic Employee in the Workplace by Kathy Szechy PhD et al found that more autistic employees accurately interpret the behavior of an autistic employee than non-autistic people

NEW FREE to Aug 30
liebertpub.com/doi/10.1089/au…

Please keep sharing, can we get to 20,000 by Sunday? petition.parliament.uk/petitions/6373… #Ehlersdanlossyndrome #hypermobilityspectrumdisorder #EnoughIsEnough

Muscarinic receptors (M1-M5) play an important role in the autonomic nervous system and problems with these receptors are implicated in many diseases, such as POTS, Sjogren's, hyperhydrosis & asthma. 1/2

1/ Confused about #covid ?
Not surprised!
We have 2 new strains at once that are different from those seen previously.

One in particular- BA 2.86- the people who sequence think is not omicron but a brand new variant- Pi.
It seems Sars-CoV-2 has made a genetic leap…

This is a perfect metaphor for what it’s like being Autistic attempting to mask Allistic