I’m cycling 100 miles in May to raise funds for PCD Support UK 🫁 🚴‍♀️

Please check out my fundraising story and donate here 👇🏻

2024fordridelondon.enthuse.com/pf/katie-horton

All donations gratefully received 🫶🏻

It's #RareDiseaseDay and we're celebrating all things rare here at PCD Support UK!
We would for you to join in and #ShareYourRare and help us raise awareness for #primaryciliarydyskinesia .
📷Tag us in your photos, videos and stories about living with a rare condition.

Aged between 16 and 24 and care about lung conditions? The European Lung Foundation Youth Group needs you! Find out more about their upcoming drop-in session and how to get involved 👇

europeanlung.org/en/people-and-…

🗣Participants needed for PCD Patient Transitioning Study with Cardiff University

➡To take part please email: Kristina Hay (MSc Genetic and Genomic Counselling at Cardiff University) on [email protected] for more details and to take part.

📲pcdsupport.org.uk/news/Participa…

👏We are living in exciting times, with potential therapies for PCD beginning to be developed by pharma, including Ethris

📲 Read the full article here: shorturl.at/jAFNV

Help us this #RareDiseaseDay2024 !

This year, we want to showcase the people behind PCD
and we're working to put together a collage of the 'faces
of PCD' but we need your help.

Send us your photographs
📲 [email protected]

Together let's raise awareness for #PCD .

Did you know that the PCD Support UK website is packed full of useful information?

From detailing symptoms to managing your condition, it's a great resource for people just discovering PCD for the first time or understand more!

👉pcdsupport.org.uk

University of Southampton University Hospital Southampton 💙 We are also researching ways to diagnose and cure #PrimaryCiliaryDyskinesia Rare Lung Diseases matter Southampton Medicine PCD Support UK Diana Baralle John Holloway Dr Claire Jackson 🔬 Janice Coles Katie Horton Dr Katie Dexter

Want to keep up to date with all things PCD Support UK?

📰Why not sign up for our newsletter. Filled with the latest news, updates and potential research opportunities.

📲Sign up here: pcdsupport.org.uk
(Scroll to bottom of website)

✨️Participants needed for research into family planning, reproductive decisions and support in those with PCD!
For more information and details on how to get involved, please head to our website pcdsupport.org.uk

#fertility research #pcd #pcd research #fertility

🎄It's #ChristmasJumperDay and we would love to see what festive wear you've chosen to celebrate with! Are you the type who loves a singing jumper? A classic winter knit or maybe you go all out with an elf outfit?

📸Tag us in your photos or use #PCDChristmas

📢Participants needed!
Cardiff University are looking for individuals with PCD to talk about their experience transitioning from paediatric to adult healthcare services through the NHS.

👉Read more: pcdsupport.org.uk/get-involved/j…

Have you signed up yet?

Don’t miss out on the chance to become part of PCD History with the latest PCD Engage clinical trial.

👋 Open to anyone aged 14+
🏃Participants will receive a £20 Amazon voucher and the option to keep their wearable*

👏pcdsupport.org.uk

We're all set up and ready for #BTSWinter2023 with British Thoracic Society (BTS) 👇

If you're visiting make sure to pop by the stand and chat with the team about all things #PCDSupportUK and #PCDAwareness

Last session of our PCD patient conference about Living with PCD is organised by people with PCD and parents of children with PCD and chaired by Lucy Dixon of PCD Support UK.