#ResearcherSpotlight 💡

Dr Younbok Lee is developing a new potential therapy for people with #MND #ALS who have a change in the FUS gene. 🧬

It is hoped the therapy could be used just 𝐨𝐧𝐜𝐞 to help prevent further motor neuron loss.

Learn more: mndassociation.org/research/our-r…

These rather knobbly tree trunks seen on my walk today ……🫤

#EASTENDERS newcomer Kirsty J Curtis took part in the #LondonMarathon #otd 2015, raising awareness and almost £8,000 for MOTOR NEURON DISEASE!

KIRSTY lost her beloved uncle to this horrific condition in 2010.

💙THANK YOU Kirsty, and so sorry for your loss🧡

#MND #MoreNeedsDoing

A move by the brilliant designer Adrian Newey chief technology officer of #RedBull racing, maybe to join forces with #Ferrari and Lewis Hamilton ….let’s wait and see #F1

Please take a look at this open letter addressing the very important issue regarding the lack of information around the results and data from the Mirocals trial. The reason it is so important is that we are being denied access to a potentially effective treatment, Interleukin 2.…

Explaining to MP’s in Parliament the hope for Interleukin 2.
Full video here ⬇️

youtu.be/OyQYIKg-JBc?si…

#newdrug #interleukin #trial #hope #treatment #mnd #als #motorneuronedisease #lougehrigsdisease

Some photos from my walk yesterday #springtime …..🤩

It’s that time of the week again! We’re open from 5pm serving up all of your favourites plus some brand new seasonal treats from our new spring menu. The gang will be on hand to make sure your weekend is delicious - see you at JuJu’s 🧡

I made the MND Association Thumb Print magazine 🧡💙

mndassociation.org/media/thumb-pr…

What a fantastic amazing amount of blossom on this #FloweringCherry seen during my walk today 🤍

What a Try 🏉 Those were the Days 👏🙏💙

We are so sorry to hear the sad news of Julia Peckham's death yesterday. Julia was an amazing #MND supporter, who was especially valued as an Association visitor MNDA East Sussex. She will be very much missed & our thoughts are with all her family and friends🧡💙

please sign this if you or famiky or firends are affected in any way with MOTOR NEURONE DISEASE... ❤️🙏❤️this could potentially slow the progression of motor neurone disease...
Thank you please Could you retweet and repost 🙏❤️🙏

Please share RT 🙏🏻
gofund.me/5370955e
❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
#mnd warrior #mnd efiance #mnd #motorneuronediseaseawareness #mnd awareness #als #als awareness #mnd feminabellator #googlemnd

Huge thanks Darby Rimmer MND Foundation Steph Houghton MBE Rob Burrow CBE Geoff Burrow Jo & Ed Slater Marcus & Louise Stewart for sending open letter requesting TRANSPARENCY on commercial contracts for #Mirocals to involved scientists & MND Association To show support please see united2endmnd.org/support-miroca…

PLEASE PLEASE RT click on the link and sign! We need your help!🙏🏻 #mnd warrior #mnd efiance #mnd #motorneuronediseaseawareness #mnd awareness #als #als awareness #mnd feminabellator #googlemnd 💙🧡💙🧡

Love this beautifully scented pale pink #azalia and one of my #camelia that I planted 12 years ago, this spring is the first time it’s flowered 👏

So true and agree Tanya Curry this needs addressing urgently for those who are eligible for Tofersen. Do you have any thoughts on being denied a second treatment for mnd (Proleukin) due to MND Association and other Consortium members agreeing a deal with ILTOO as well?

#attackmnd

I’d really like to hear thoughts on the continuing #proleukin #mirocalsconsortium debacle too. It’s plain that energy does exist to fight for patients within the #MNDAssociation however it seems that some battles are more preferable to face than others. I wonder why that is?

Good evening #GardensHour shocking weather conditions today, hopefully it will improve soon 🤞
Here’s a few colourful flowers and a snippet of my #Abiesfir with its purple flower to brighten things up!!
#WorldEarthDay 🌎🌍🌏 2024.