“It’s exhausting trying to get people to get it, and usually comes with judgments, assumptions… Unless it’s a very close friend or someone who needs to know…I just say ‘I have 3 #autoimmune diseases’ and leave it at that.” buff.ly/3TYBaml CreakyJoints.org #chronicillness

“Then the #fatigue hit. Bone-crushing, mind-numbing, utterly debilitating fatigue… I started to question who I was, what my worth was, if I couldn’t even get out of bed. But #chronicillness persisted and I learnt to redefine what makes a person valuable.” buff.ly/3TJD351

“Social media in the #chronicillness community can be a source of comfort… finding support from others. It really can build your confidence up and help you feel less alone. And nobody should feel alone with health issues.” buff.ly/3vlnclc Through the Fibro Fog #spoonie #cpp

“I feel useless because sometimes I’m not able to do things to the best of my abilities or I just can’t do them at all due to #chronicillness … It’s so incredibly easy to get into a downward spiral… You are worth more than you think… #YouAreNotAlone .” buff.ly/3vNx2fD

“If you find TV too stimulating, you can try listening to #podcasts instead. They’re also great for when you’re in too much pain, and can only lie there and stare at the ceiling.” buff.ly/3TugwJo A Chronic Voice #chronicpain #chronicmigraine #allodynia #hypersensitivity

“I have done everything I could to reduce the #pain level and increase my ability to function… However, the fear of never working again consumes me… Still, I know there’s no cure for my #chronicillness and I have no idea where this will lead.” buff.ly/3PK1X3i #cpp

“The DEA has no clue about proper medical practice and is completely ignorant of which #patients truly need what medications. #Physicians […] are the only ones trained to make those decisions. Not the DEA… pursuing false metrics.” buff.ly/3U058Xc #opioidhysteria #cpp

“I’m tired of being told to “deal with it”… It’s hard to deal with something that never goes away… But I’m also tired of blaming myself for my #chronicillness . Because it is not my fault… I’m trying my best, even though it might not seem like it.” buff.ly/43U4C05 #endo

“If you think something is wrong but people are dismissing you, keep pushing… You know your body more than anyone else, including people with medical degrees. If you know that something is wrong… keep pushing.” buff.ly/3IShlH0 Kate Mitchell | Kate the (Almost) Great #chronicpain #fatigue

“It feels like my entire life force has been stolen from me. I’m a shell of a person nestled on the couch trying to hide from the sunlight peeking through the curtains as light sensitivity sets in.” buff.ly/3VHwLpa #MyalgicEncephalomyelitis #MECFS #LongCovid #Spoonie

“ #ChronicPain is invisible and often misunderstood…[ #cpp ] are very good at hiding it… Most aren’t going to understand how hard it is to be in constant pain… but you can be supportive and believe people in pain— #kindness can go a long way.” buff.ly/3VJoTne Sarah

“We are so used to pushing through and fighting, but sometimes rest is exactly what we need. We don’t have superpowers and our bodies need rest to be able to keep going. Listen to your body.” buff.ly/3vmaLpb #chronicallyill #chronicpain #spoonie

“I was so sure I could find a way around my health problems. This was not the plan; I was meant to have it all worked out. I prayed, I meditated… but every day still brought the same constant symptoms and flareups.” Diagnosis To Acceptance buff.ly/4bPLT9K #chronicillness

“In true denial, I thought I could will myself through my torturous symptoms. I returned to work, only to lose that job because I could no longer do it. After years of schooling…I was in too much pain to continue my career.” buff.ly/3Jc0mQd #CRPS #Disability #ChronicPain

“Don’t underestimate the impact chronic conditions can have on #mentalhealth nor the impact mental health can have… There shouldn’t be guilt or pressure… You don’t always have to be productive. You don’t have to worry what others think.” buff.ly/3vuy6oP InvisiblyMe

“Never in my life did I think that taking a shower would actually be hard. It’s an exhausting activity that usually requires me to sit or lie down for a while afterward to recover.” Challenging Daily Decisions With #ChronicIllness buff.ly/3TMI90e #ChronicPain  #Spoonie

“The inconvenient truth is that #ChronicPain is unending… When we receive unsolicited health advice on how to cope, it makes it even harder. Patients live with pain that endures for days… months, years… lifetimes! It’s exhausting.” buff.ly/4aF8bcN Carrie Kellenberger - MySeveralWorlds.com

“Our lives are very different from your lives… It’s not fair to have the same expectations from us as you would a healthy person. This is a never-ending struggle! People tend to forget… #chronicillness is something you…deal with every day of your life.” buff.ly/43Nb35e

“I don’t want to disappoint anyone, which is a feeling I’m sure weighs many of us down all the time, tied to #chronicillness , #pain and #fatigue … But I need to remind myself to take it one step at at a time and not #stress over the small stuff.” buff.ly/3PMpCQG A Chronic Voice

“Be good to yourself and put #selfcare first on your priority list. Do only what your body tells you to do and find appropriate, healthy ways to soothe yourself. Yoga, tai chi, meditating are helpful. Rest!” When No One Seems to Understand: #ChronicIllness buff.ly/3wSHenh