“It may not be going too far to suggest that much of U.S. public health policy regarding medical treatment of people in #pain is fraudulent. The [CDC] #opioid prescribing guidelines…knew their recommendation…did not have a sound scientific basis.” buff.ly/3yiy58a #cpp

“Plan B meals. Whenever I make food that can be frozen… I freeze half and have the other for dinner… On high pain or just out of the hospital days… I can pop it in the oven and have a home-cooked meal.” #LifeHacks To Make Cooking W/ #ChronicPain Easier buff.ly/3QxI3c4

“ #ChronicIllness , #ChronicPain and #Disability can have a way of shrinking our lives, reducing+restricting what we do… They can take a lot from us, things we may never quite stop mourning… Whatever you’re dealing with—small joys matter.” buff.ly/4cewFLp InvisiblyMe

“You will get through this (really)… You are not being lazy. Taking care of yourself is doing something… Try to be present in this moment. Continuously thinking and worrying about the future isn’t helpful. Just get through here and now.” buff.ly/3PnsvXU #chronicillness

“I don’t want to disappoint anyone, which is a feeling I’m sure weighs many of us down all the time, tied to #chronicillness , #pain and #fatigue … But I need to remind myself to take it one step at at a time and not #stress over the small stuff.” buff.ly/3UuL6TQ A Chronic Voice

“I miss feeling productive. I miss feeling spontaneous…I miss not being exhausted constantly. I miss feeling like I had a future… I’m trying hard to find my identity again. I have lost so much…after I worked so hard to become who I was.” buff.ly/4ajQ3oL #chronicillness

“Forcing [ #cpp ] to abruptly taper their dosages: Too little is known about the benefits and harms of reducing high dosages of #opioids in physically dependent patients for researchers to recommend this.” CDC Admits Its Guidelines Hurt #ChronicPain Patients buff.ly/3URhbXn

“Being #chronicallyill —you never wanted the condition to affect you—let alone someone you dearly love… There’s so much guilt in living with #chronicpain it can be overwhelming… For someone who was once self-sufficient, it’s hard to accept you need help.” buff.ly/3UMxZPa

“Don’t let anyone, even the doctor tell you what you feel. You know what you feel… Many doctors don’t understand… I have had many horrible experiences… At some point, you will probably know more about  #CRPS than your doctor.” Things I wish I had known buff.ly/4bsEaNW

“Living with #chronicillness and pain frequently means the pride you feel from having a ‘productive’ day can be suddenly swept away by waves of pain because, actually, you did too much.” Unfortunate Realities of Life With #ChronicPain and Illness buff.ly/3y9pRiM #cpp

“Social media in the #chronicillness community can be a source of comfort… finding support from others. It really can build your confidence up and help you feel less alone. And nobody should feel alone with health issues.” buff.ly/3y3N6dU Through the Fibro Fog #spoonie #cpp

“Deep breathing. It’s not from anger or frustration with anyone, it’s trying to keep from screaming or crying at the searing hot pokers that are coursing through every joint and every bone in my body.” buff.ly/3Uqn8KG #ChronicPain #NeuropathicPain #ChronicIllness 

“The DEA has no clue about proper medical practice and is completely ignorant of which #patients truly need what medications. #Physicians […] are the only ones trained to make those decisions. Not the DEA… pursuing false metrics.” buff.ly/3y71iTz #opioidhysteria #cpp

“ #ChronicPain and emotional well-being are not merely intersecting factors but rather in a perpetual state of push and pull. They influence and reshape each other constantly, adding layers of complexity to our efforts to manage them.” buff.ly/4btkbym #MentalHealthMatters

“Life with a physical #disability is hard because we live in an inaccessible world and every time you turn around there is another barrier that makes life even more difficult… Some disabled people cannot work… Most […] live in poverty.” buff.ly/4aTCoFA Sarah

“People with #chronicpain learn to function while in enough pain to send a person to the ER… They learn to act relatively normal because it makes most uncomfortable to see someone in pain… that day they were stuck in bed, in tears from intolerable pain.” buff.ly/3wnyfL2

“I was devastated when I learned that my symptoms weren't going to go away and my life wouldn't be returning to normal. To make matters worse… family members refused to accept that my illness was real [or] my pain was real.” buff.ly/4a6VvL6 #invisibleillness #chronicpain

“Nobody chooses #chronicillness … So, before judging, remember that they may have done everything right, but illness is unpredictable, unfair and unforgiving. The fact you see [them] out at all is a testament to their efforts to live, despite the #pain .” buff.ly/4a9f5Gr

“The crackdown on #opioids is harming pain #patients … Oregon Medical Board finally recognize that their arbitrary opioid dosing policies harmed people with #ChronicPain … It seems the Board may have been adversely affected by ‘advice’ received from PROP.” buff.ly/3WzQIi7

“ #CRPS (complex regional pain syndrome)… unrelenting pain, I was now also dealing with #allodynia (burning skin pain), occipital neuralgia (electric shock-like headaches) and #Raynauds (painful circulation issues)… my body constantly seems to fail me.” buff.ly/4a2A8KJ