22Q11 Ireland (@22q11_ireland) 's Twitter Profile
22Q11 Ireland

@22q11_ireland

Parent group raising awareness of #22q
Working toward integrated care for 22qDS & individually rare collectively common #RareDiseases. Tweets AnneL CHY 17647

ID: 1566409892

linkhttp://www.22q11ireland.org calendar_today03-07-2013 18:30:17

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Mostly not factored in for patients either. e.g. children are not treated holistically in the context of their families(all parent carers know this as fact) *cost* seen in purely financial terms. Cost to both HSCP's & public's mental&physical health is enormous.