On balance & core strength. #EndALS #ALS #ALSawareness

Sometimes I am proud of the person I have become. Like today.

¿Y te dolió? -Sí, pero no como antes.

Everyday I grapple with the reality that my life is hard but I am still lucky. That’s the thing about life, you get the cards you are dealt and then play the best hand you can. Good night moon.

I'm ALIVE! Today is the 9yr anniversary of my diagnosis. My daily plan to thrive : 1. THANK GOD OFTEN 2. PRAY OFTENER 3. Have a TEAM who has my back at every turn. THANK you for your part in my journey @titans Penn State Football @ALSTennessee Alex Solleiro ALS TDI

Am I the only person that doesn’t like to be told what I should care about? I may have ALS but I can think for myself, thank you very much!

Así soy yo; diferente a ti, con otro acento, contextura, altura, color de piel, cabello y ojos, gustos, creencias, costumbres, manías, en fin, soy tan humano como tú.

The sheer number of hours each day Brian works and the massive complexity and challenges he continues to tackle so thoughtfully while being as sick as he is and continues to get sicker astounds me. Yes, I love him. But maybe a surprise - I'm in fucking awe of my husband.

My brother died today. He was only 23. He was full of life. He had a stroke and died in my father’s arms, just like that.. My life changed for ever.

ALS in its most advanced stages changes not only your perspective on life but the core essence of who you are. When I lost my ability to walk during my first year of symptoms, I was still concerned of my new image as a disabled person and how I was seen by society. I bought a

This is how I got out of bed this morning. It isn’t pretty, but I am so grateful to have today.

My first time flying since I've been using a wheelchair. This is an aisle chair. Much more to come from my trip to Los Angeles, including an already-too-long #blog post. #ALS #ALSAwareness #ThisIsALS #EndALS #disabilityawareness #wheelchair

Had lunch at Buffalo Wild Wings today with my 19 year old son. As he was attempting to pay our bill, our server told us that it had been picked up by a generous gentleman two tables over who had watched my son patiently feed me. Thank you kind sir! #RandomActOfKindness

This is ALS. A 42 year old father sitting on the back porch in his wheelchair being fed by a feeding tube. The good news is I am still alive and listening to an amazing audiobook.

I think I like being serenaded to on my birthday! Happy Birthday me!

still here.

My girlfriend and I spent New Year's at an accessible Airbnb in Montreal! We had a wonderful time and hope to go back in warmer weather. So many more things to do and foods to eat! #alifederailed #ThisIsALS #ALS #EndALS #ALSAwareness #MND #MNDAwareness

I’m rocking with the kingdom today! Let’s go Chiefs!!! #ChiefsKingdom