'She's amazing and an inspiration not just to me but to many people around the world' In February 15 year old Eli Crossley told #BBCBreakfast about how his mum Emily campaigns for people living with Ducehnne Muscular Dystrophy Today she got an OBE 🎉

Did you see ASKEW, the band Eli is in, on BBC Breakfast? Want to see them play at Glastonbury? They’ll be playing the Rabbit Hole at 5.30pm on Friday. Tune in, or go along if you are there!

'We are playing Glastonbury' 16 year old Eli Crossley and his band Askew explained how an appearance on #BBCBreakfast to discuss Duchenne muscular dystrophy led to an offer to play at the music festival bbc.co.uk/events/ec59hn

Just over 24 hours until ASKEW play the Rabbit Hole at Glastonbury Festival! In between preparations for it, Eli Crossley shared his thoughts with the BBC News (UK) and NME about being one of the youngest musicians to play at the festival. Glastonbury Live #Glastonbury bbc.co.uk/news/entertain…

A huge congratulations to ASKEW for being the youngest band ever to play #Glastonbury! Want to see what they do next? You can follow ASKEW on Instagram here: instagram.com/askewband/

In case he is thinking of looking for a new suit, Spiderman actor Tom Holland checked out our SMART Suit when we met with @alexswish and @BrothersTrustUK to discuss its development! A huge thank you to Tom and his family for their support for the DMD community!

📣We're delighted to announce our new event for the Duchenne muscular dystrophy (DMD) community! Taking place in March 2024, the New Horizons conference is for family, caregivers, and those working to help people with DMD. Find out more about it here👇 duchenneuk.org/our-new-horizo…

This video from Bernie Reddington shows exactly how inaccessible ticket vending machines are to visually impaired people. 🤔 How are these an adequate alternative to a ticket office, a fixed spot where you can explain your needs to and get assistance from a human being?

For 10 months, we’ve been following Declan. He is entitled to round-the-clock care at home through the NHS. The repeated breakdown of this vital support has left his mother having to provide it by herself, day and night. bbc.co.uk/news/health-66…

South by Southwest is a huge US event – and the organizers are interested in bringing Eli and the SMART Suit over! This would be an amazing showcase for innovative technology and what you can still do with DMD. We need your help by voting in this poll! panelpicker.sxsw.com/vote/137537

Here’s a wonderful poem by Jack Johnson to celebrate Owen Farrell becoming the top point scorer for England! Jack has Duchenne and is the son of our founder Alex Johnson, and Owen pays tribute to him and Joining Jack with his trademark 👉👈 salute every time he scores 🏉for 🌹.

A huge thank you to everyone who voted for our chair, Krishnan Guru-Murthy! He gets to dance 🕺🪩 for another week!

Accelerating access to medicine is a key part of our work. It was valuable to attend today’s APPG on Access to Medicines and Medical Devices which discussed trials. Here's Emily Reuben OBE, our founder and chief executive, with Lord O’Shaughnessy, and AMRC chair Louise Wood.

Largest % majority (42.6%) ever overturned.

Largest Majority (24,664) ever overturned.

💭Assessment of quality of data submitted for NICE technology appraisals over two decade 📑New from Leeza Osipenko Consilium Scientific et al. Read here bit.ly/3I0UnNG ⬅️

Tune in to BBC News (UK) at 12.45pm today and BBC Breakfast tomorrow to watch an interview with our co-founder and Chief Executive, Emily Reuben OBE, and her son, Eli. They’ll share their story and tell you how we’re seeking out a new world for people with disabilities.

Heading to Parliament to meet our MP’s to talk about how important early access to Givinostat is for our UK Duchenne community. #TimeIsMuscle

Huge thank you to The LTDA for all of their help today! #thebestsupporters #timeismuscle