
VHL Alliance
@vhlalliance
We are a non-profit support organization for patients and families affected by von Hippel-Lindau disease (VHL).
ID: 320965775
http://vhl.org 20-06-2011 20:20:28
1,1K Tweet
982 Followers
421 Following

John Krasinski
@johnkrasinski
What if everything you believed as a kid… was real?! IF is in theaters now!!! @IFmovie
The ALS Association
@alsassociation
Fighting ALS on every front through research, care services, and advocacy. Community guidelines: bit.ly/2nx5xE4
@FacingOurRisk
@facingourrisk
🌅 We're taking a temporary hiatus from Twitter/X, but fear not! Connect with us on Facebook, Instagram, and LinkedIn for all the latest updates and news!
Moffitt Cancer Center
@moffittnews
Moffitt Cancer Center is a global leader in patient care, research and education with a mission to contribute to the prevention and cure of cancer.
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Amer. Urol. Assn.
@amerurological
The American Urological Association is a premier urologic association, providing invaluable support to the urologic community.
Becky Johnson
@beckyjohnson08
sometimes I tweet other times I scroll, currently recovering post surgery
Michelle Cieslak
@michellecieslak

Rod Miller MBA CPHR CLC
@rodpmiller
Life-Long Learner, HR Evangelist, APPLE geek, Dad to 2 amazing kids, Wine guy. I’m he/him. Tweets are mine
National Organization for Rare Disorders (NORD)
@rarediseases
National Organization for Rare Disorders (#NORD) is the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay.
Elliot K Fishman / CTisus.com
@ctisus
Everything you need to know about CT scanning. Opinions our own.
Mark Ball, MD, FACS
@markballmd
Urologic Oncologist at NCI | Assoc Prof & Fellowship APD | Social Media Editor @uroloncol | #kidneycancer #pheo surgery & translational genomics 🧬 Views mine
Autoimmune Association
@autoimmuneassoc
Leading the fight against autoimmune disease by collaborating to improve healthcare, advance research, and support the community.
Olivia Nolan
@oliviapnolan

Mohamad Allaf
@allaf_mo
Director, Dept of Urology; Johns Hopkins Medicine; Views are my own; RTs not endorsements
Ben Whittam
@bwhittam
Theoretical particle physicist | pediatric urologist @RileyChildrens @IU_Health. I wish I loved anything as much as I hate almost everything. he/him
Ziad Bakouny, MD, MSc
@ziadbakouny
PGY-4 Heme/Onc @MSK_DeptOfMed | via @USJLiban @DanaFarber @BrighamMedRes | @ASCO #IMG CoP & #JCOCCI Assoc Editor | Opinions my own | FCOI: bit.ly/3abof8w
Clara Hwang
@clarahwangmd
GU medical oncology, Henry Ford Cancer, @HenryFordHealth
Cary Mariash
@cmariash
Endocrinologist Hobby: Aviation
Craig Rogers MD
@craigrogersmd
husband | dad | Chair, Department of Urology @VUI, robotic kidney surgery, Fellowship Dir. views=mine
Jennifer Galenkamp
@galenkampjs
“But let justice roll on like a river, righteousness like a never-failing stream!” #CuringCancerThroughVHL #VHLA
Phillip Pierorazio
@drphil_urology
Prof & Chief of Urology, PPMC @PennUrology | VC Faculty Development @PennSurgery | Online Content Editor @JUrology @AmerUrological | @OperateZen creator
Jan Byrne
@byrne_utahteal
Physician and ovarian cancer survivor. Founder Utah Ovarian Cancer Alliance.
Valena Wright
@valenamd
Director of Gynecologic Oncology @LaheyHospital. Expert in Minimally Invasive Laparoscopic Surgery. Enjoy healthy living, family, and my bicycle.
Luke Sabal
@lukesabal
MD Student @umnmedschool | Augustine Fellow @umniem | Formerly @VillanovaU @NovaSwimDive
Brian Rini, MD
@brian_rini

Von Hippel-Lindau
@supportingvhl
As a person who's been diagnosed with VHL I struggled to come to terms with it. Now I want to raise more awareness and support others in the same situation.
Erika Woodson
@erikawoodsonmd
Ear, Nose, Throat Surgeon @ClevelandClinic, Otolaryngology, Otology/Neurotology/Skull Base Surgery, Women In Otolaryngology
Genomes2People
@genomes2people
Translational research program led by @RobertCGreen integrating genomic research and sequencing into #precisionmedicine and clinical practice. #AccessToGCs
Julie Woodruff
@juliewoodruff4

Patient Worthy
@patientworthy
We're a resource for engaging, informative content and rare patient news, well done.
Brock O'Neil
@onconeil
Urologic oncology fellow and health services researcher. Family man.
Jessica Marquard
@jessimarquard
Genetic counselor at Cleveland Clinic specializing in hereditary cancer
Michael Gorin, M.D.
@michael_gorin
Husband, father of two, technophile, life hacker, academic urologist. Proud alumnus of @brady_urology, @umiamimedicine, & @umich. EIC of @BJUICompass.
Jin He
@jhatjhmi1

KidneyCAN
@kidneycan
Our mission is to accelerate cures for #kidneycancer. We educate patients about clinical trials, advocate for research funding, and bring researchers together.
KaelinLab
@kaelin_lab
William Kaelin’s lab of @DanaFarber and @HHMINEWS and @harvardmed. We love hypoxia, tumor suppressor proteins, up-assays, and most of all controls.
UNC Urologic Oncology Program
@uncuroonc
Multidisciplinary health care providers with expertise in the management of genitourinary cancers. News & updates from @UNC_Lineberger Urologic Oncology Program
Samantha Greenberg, PhD, MS, MPH, CGC
@sgreenberggc
Director Genetic Counseling Prog @UTSWedu w @umich roots. PhD from @uofunursing. Interest in '3 Ps': prostate, paraganglioma, and ppl (education). 🧬 she/her
Mohamed G. Atta
@moatta007
Hopkins nephrology
Caitlin Finn MS, CGC
@caitlin_finnn
Cardiovascular Genetic Counselor | BIDMC @BIDMCHealth | CardioGenetics @BIDMCCVI
Toni Choueiri, MD
@drchoueiri
Senior Executive & Chief GU Cancers @DanaFarber; Prof Medicine @HarvardMed; 2021 Giants of Cancer Award; ⚽ lover; 🚲@PanMass, seen @msnbc @cnn @TODAYshow @GMA
Priyanka Kanth,MD,MS
@priyanka_kanth
Associate Professor, Gastroenterology, MedStar Georgetown University Hospital. Adjunct UofUtah, Hereditary GI cancers,serrated colon polyps, (Tweets my own)
Rare Action Network
@rareaction
Advocating at the state & federal level to improve the lives of the 30 million Americans with #RareDiseases. #RareAction: a #NORD (@RareDiseases) initiative.
Matt Weiss
@surgeonweiss
Deputy Physician-in-Chief, Vice Chair of Surgery, and Director of Surgical Oncology, Northwell Health. Opinions are my own
Joey Ketchum
@joeyketchum1

Gail H Vance
@ghvancemd
Sutphin Professor of Cancer Genetics Professor of Pathology and Laboratory Medicine, Director of IU Genetic Testing Labs and President of the LLC
Pheo Para Alliance
@pheopara
Investing in research and supporting #pheochromocytoma and #paraganglioma patients globally. "Stronger United" #NETCancer #RareDisease #pheo #para
Enlightening Results 💡
@gracecordovano
#Cancer #PatientAdvocate | Healthcare Navigating Solutionist | De-Frictionizer | ⬇️ Patient Administrative Burden | #Techquity | co-founder @UnblockHealth
Arti Bhan
@artibhan1
Division Head, Endocrinology @HenryFordHealth, Specializing in #Thyroid disease and #Diabetes. #WomenInMedicine. RTs not endorsements, views my own
Charis Eng, MD, PhD
@charisengmdphd
Chair of Genomic Medicine Institute & Director of Center for Personalized Genetic Healthcare at Cleveland Clinic. Tweets are my own and are not medical advice.
Alessandro Larcher
@_alelarcher
Urologist at @SanRaffaeleMI | VHL clinical and research program
Benjamin L Maughan
@maughanonc
I am a physician specializing in the treatment of genitourinary cancers. I am passionate for improving cancer therapy through research.
Scott Schwartz
@ir_schwartzmd
Interventional Radiologist, IR Centers at Michigan Institute of Urology. Tweets are my own. Patients have given written consent for any images or PHI shared.
Nupur Gupta
@nupur_nephron
Aspire, Dream and Innovate - my three mantras. #Home Dialysis Enthusiasts, Clinical Educator, married to @rajat_alveoli
Rare Advocacy Movement
@rareadvocacy
Network of people with #RareDisease #LivedExperiences dedicated to evolving the #LivingRare experience into opportunities for the global community to thrive.