Filmed today by Channel 5 News ahead the JustGiving Awards on Tuesday. Fingers crossed! @SUDEPAction do a fantastic job and we are proud to support them in memory of Emily and all those who have died from SUDEP #tuktuktoturkey #win #jgawards #epilepsy #Prevent21 #SUDEP

C5 News tells Emily’s story on the eve of the JustGiving Awards. Please cross your fingers for us tomorrow! #tuktuktoturkey #SUDEP #epilepsy #Prevent21 #win #fundraisingteamoftheyear SUDEP Action

Tonight is the night we find out if we win Fundraising Team of the Year at the JustGiving Awards! Wish us luck and do retweet! #tuktuktoturkey #epilepsy #sudep #Prevent21 #SUDEPAction

We had a fabulous time at the JustGiving Awards last night even though we didn’t win. So many inspiring stories and people. Added bonus was meeting James Cracknell and Ade Adepitan and telling them about the great charity SUDEP Action that we support #tuktuktoturkey #epilepsy

SUDEP Action caseworker Julia met The Good Grief Trust today at Westminster UK Parliament for #NationalGriefAwarenessWeek. They will raise awareness of our services to those bereaved by epilepsy. Thank you so much!

On Monday, Karen who leads on our #Epilepsy Deaths Register, will be at the #NESBereavement2019 conference presenting a poster on our #EDR, the impact of #epilepsy deaths & how specialist support is vital for the #bereaved after an #epilepsy death. epilepsydeathsregister.org

Its vital anyone experiencing problems getting hold of their #epilepsy meds, speaks urgently to their prescribing clinician - they can help you reduce risks. Managing shortages info - bit.ly/medicineshorta… Epilepsy & risks - bit.ly/epilepsyrisks bbc.co.uk/news/health-50…

London or Liverpool? Do go and see this play. Great that a new medium is taking on SUDEP awareness.

Happy Christmas from the TTTT team! And thanks to JustGiving for helping us raise an insane amount of money fir SUDEP Action #tuktuktoturkey #2019 #finalist

@SUDEPAction's services are recognised as best practice for risk management & bereavement services by new @NHSRightcare Epilepsy Toolkit Find out more info here - ow.ly/a8Lc50ylsAk sudep.org [email protected]

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Resharing this as it’s SUDEP action day - always amazed by the the .The Sumarias team’s love & resilience 💙

Thank you Sir David Amess MP for raising SUDEP Action's upcoming #LivesCutShort report in UK House of Commons. A report showing the devastating impact the #COVID19 pandemic is having on #epilepsy & #epilepsy #bereaved communities. Urgent action is needed to support them & save lives.

Thank you for sharing Felix’s story Sophie Pierce, & for raising such vital awareness of #SUDEP & #epilepsy deaths. Such a moving piece in the The Observer Magazine 💜🧡 Find out more about #SUDEP, how to reduce epilepsy risks, & for epilepsy bereavement services: sudep.org

Sophie Pierce’s son, Felix, died from SUDEP at just 20. She is publishing a book, in the form of letters to her son, about grief, love and loss: unbound.com/books/thegreen…

“The Checklist is a really useful tool to enable the discussion about SUDEP. It is also good to follow up on, to have an outcome measure of risk, local health service commissioners have liked this.” SUDEP & Seizure Safety Checklist: sudep.org/checklist

Thank you to journalist Caroline Scott for her superb article on SUDEP. Our own Emily is one of those young people who went to bed and never woke up.

We shall be nominating Tracy and her team who deserve to be recognised. The ripples of a needless young death go far and wide and the bereavement team at SUDEP Action are absolute gems.

15/2/23 - 26 years ago our beautiful son Felix was born. He died, aged 20, from #SUDEP - sudden unexpected death in epilepsy. SUDEP Action is working to understand this mystery which takes so many young lives. Pls RT to raise awareness. ERUK is now @EpilepsyInst

If anyone would like to go to this then please do. Proceeds from print sales go to the charity we support in memory of Emily.