Do you need an easy way to monitor your seizures?

Our free EpSMon app can help.

Download EpSMon: sudep.org/epilepsy-self-…

#SUDEP #epilepsy #seizures

We look forward to welcoming you to our coffee club in Grantham this Sunday (10am-12pm).

If you have any questions about the meeting or any of our upcoming coffee clubs, get in touch at [email protected]

Find out more: sudep.org/coffee-club-me…

#epilepsy #SUDEP #epilepsy awareness

Thank you for joining us this year and remembering on #OnlineEpilepsyMemorialDay 🌸

We are here for you if you need us. You can email [email protected] or call us on 01235 772852.

#SUDEP #epilepsy

Our CEO Sammy Ashby lights a candle in memory of loved ones who have lost their lives to epilepsy.

Thank you for remembering on #OnlineEpilepsyMemorialDay 🌸

#SUDEP #epilepsy

Join us at 7pm over on Facebook this evening where our CEO Sammy Ashby will be lighting a candle in memory of loved ones lost to epilepsy.

Share your candle-lighting with us 🕯️

Thank you for remembering on #OnlineEpilepsyMemorialDay 🌸

#SUDEP #epilepsy

“What we once enjoyed and deeply loved we can never lose, for all that we love deeply becomes a part of us.” – Helen Keller 🌸

Our support team can be reached on 01235 772852 or email [email protected]

#OnlineEpilepsyMemorialDay #SUDEP #epilepsy

Franki Bond wrote this song ‘Save Me a Space’ as a tribute to her friend Laurence Richards, who died of #SUDEP in 2023, aged 27.

For Online Epilepsy Memorial Day 2024, we're sharing it as a tribute to all those we're remembering today.

youtube.com/watch?v=max0Iv…

🌸

Today is #OnlineEpilepsyMemorialDay , a day to remember all those who have died from #epilepsy .

You can head over to our Dedication Wall too to leave a tribute 🌸

tinyurl.com/muprtswr

Please do contact our support team on 01235 772852 or email support@[email protected]

Well done to Lauren & George Gosling who completed the Exeter Inflatable 5k last Saturday, in memory of Harry Gosling.

George has organised an Odd Sock Day at his school on May 22nd to raise funds for SUDEP Action & awareness of #SUDEP

To donate: tinyurl.com/a7mr9ump

Tomorrow is #OnlineEpilepsyMemorialDay 2024 🌸

Join us on Facebook to share photos, memories and thoughts of loved ones lost to epilepsy.

You can leave a tribute on our Memorial Day Dedication Wall: sudepaction.memorypage.org/foreverremembe…

#SUDEP #epilepsy

This Saturday, the The Maisie Tothill Foundation are holding their second spring ball in loving memory of Maisie Tothill who died of #SUDEP in January 2019, aged 22.

To donate, email [email protected]

To read Maisie’s story: sudep.org/my-story/stori…

#epilepsy

May 1st 2024 is #OnlineEpilepsyMemorialDay

Join us this Wednesday over on Facebook to share photos & memories of loved ones who have lost their lives to #epilepsy .

Head online to leave a personal tribute on our Dedication Wall: tinyurl.com/muprtswr

🌸

#SUDEP

Anna Stone sadly died last November.

This Saturday evening, a version of the song ‘Over the Rainbow’ which she recorded and sang on will be played between 8.50-9.05pm on: spectrumonair.com

#SUDEP #epilepsy

In memory of Kat Buchanan, a group of her family & friends are taking on the Chester Half Marathon to raise money for SUDEP Action.

To donate: justgiving.com/page/rachel-mo…

#SUDEP #epilepsy #chestermarathon

Good luck to Lauren and George Gosling on Saturday at the Exeter #inflatable5k in memory of Harry Gosling.

“We hope we make you proud Harry, like you made us all proud every single day.”

To donate: justgiving.com/page/lauren-go…

#SUDEP #epilepsy

We’re holding a Glasgow Coffee Club this Saturday, from 10:30am-12:30pm as well as a Grantham Coffee Club on Sunday 5th May from 10am-12pm.

Our coffee clubs are a safe space to meet others who know what it is like to be bereaved by #epilepsy 💜

Contact Vicky at [email protected]

“Medicines are the first line of defence against preventable epilepsy deaths, including SUDEP.”

See our article in the Welsh Pharmacy Review, P42: waleshealthcare.com/wp-content/upl…

#SUDEP #epilepsy #epilepsy awareness

A tremendous well done to Elaine🌹justiceforCliveTreacey👍#Clive'sWay👍 and NHS Midlands and ADASS for the launch of Clive's Way, in memory of Clive Treacey.

Jane Hanna represented SUDEP Action yesterday, highlighting our work: sudep.org/article/nhs-en…

#epilepsy #learningdisability

#OnlineEpilepsyMemorialDay 2024 is on May 1st.

We hope you will join us over on Facebook on the day, to remember loved ones lost to #epilepsy

In the meantime, you can leave a personal tribute on our Dedication Wall
tinyurl.com/muprtswr

Forever missed, forever remembered 🌸

Thanks to Young Epilepsy for having our Special Projects Coordinator, Ben, and Digital Project Manager, Kezie along yesterday to talk about our important work in death prevention and bereavement support.

To learn more about what we do: sudep.org

#SUDEP #epilepsy