Travere Therapeutics
@travererare
Our mission is to identify, develop and deliver life-changing therapies to people living with rare disease. #InRareForLife travere.com/community
ID: 1286719088245370886
https://www.travere.com 24-07-2020 17:45:19
361 Tweet
597 Followers
175 Following
National Kidney Foundation
@nkf
We’re fighting to eliminate preventable kidney disease, accelerate innovation, and dismantle structural inequities in kidney care. Join our fight.
St. Jude
@stjude
St. Jude Children's Research Hospital® is leading the way the world understands, treats and defeats childhood cancer.
SickKids Foundation
@sickkids
We support The Hospital for Sick Children @sickkidsnews in Toronto, Canada. Donate for SickKids 150th and fight for every birthday. #SickKids150 #SickKidsVS
SDBNJobs
@sdbnjobs
San Diego biotechnology & life science research and professional jobs from SDBN, 5-10 posted daily. Browse, apply for, and post jobs at sdbn.org/jobs
FiercePharma
@fiercepharma
Pharma’s go-to destination for news & trends shaping approved drugs. Delivering news, revealing insights straight to your inbox.
Oncology Times
@oncologytimes
Reporting essential clinical news w/ independent analysis for cancer care professionals to optimize patient care & outcomes; oncology/hematology
LeAnnaJCarey
@leannajcarey
Business Strategy. Brand Driven Innovation. Executive Presence. Crisis Communication. Scuba Diver.
San Diego Business Journal
@sdbusiness
The San Diego Business Journal provides breaking, regional and industry news to San Diego County.
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Medical Design Tech
@mdt_mag
Providing the latest on medical device design and manufacturing news, trends, and analysis.
BMC
@biomedcentral
A pioneer of sustainable open access, where research is always in progress.
American Kidney Fund
@kidneyfund
National independent nonprofit fighting CKD & ESRD w/prevention, education, clinical research & financial assistance. Take #KidneyAction with @akf_advocacy!
The Hospital for Sick Children (SickKids)
@sickkidsnews
Official Twitter account for The Hospital for Sick Children (SickKids). Our vision: Healthier Children. A Better World.™ Account not monitored 24/7.
Muscular Dystrophy Association
@mdaorg
MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.
Daniel S. Levine
@dslevine
Principal, Levine Media Group, host of The Bio Report and RARECast podcasts, award-winning journalist focused on the life sciences.
National Organization for Rare Disorders (NORD)
@rarediseases
National Organization for Rare Disorders (#NORD) is the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay.
Global Genes
@globalgenes
Empowering the Next Generation Rare Disease Advocate. Merged with RARE-X Dec. 2022. #CareAboutRare
EveryLife Foundation
@everylifeorg
Nonprofit org. dedicated to advancing the development of treatment & diagnostic opportunities for rare disease patients through science-driven public policy.
BiotechStockResearch
@biotechstockrsr
Independent Research on biotechnology stocks.
American Association of Kidney Patients
@kidneypatients
The official account of the American Association of Kidney Patients (AAKP), the independent voice of kidney patients since 1969.
Jen Gann
@jngann
beach mom, formerly @thecut @NYMag
Garrett Rhyasen
@grhyasen
VP - Search, Evaluation, and Transactions @GSK. Previously: @AstraZeneca, @BMSNews. Tweets=my personal opinion.
Pulse Infoframe
@pulseinfoframe
Accelerating science and research with real world evidence, from real patients, in real time. #realworldevidence #raredisease #cancer
Rare Disease UK
@rarediseaseuk
National campaign run by @GeneticAll_UK to improve the lives of those affected by rare conditions and all who support them. #RareDisease.
Sarita Edwards
@saritaedwards
Rare Mom (#Trisomy 18) | Doctoral candidate | MHA | CEO @everyoneiswe | Podcaster | Global Keynote | Award Winning Advocate | #RareDisease #Equity #MentalHealth
National Alliance for Caregiving
@na4caregiving
The National Alliance for #Caregiving is a national non-profit building a future where family caregivers are valued & supported.
Antoni Montserrat Moliner
@tonimontserratm
Former Senior Expert on Cancer and Rare diseases, European Comission. Member of Luxembourg Comité National Maladies Rares. Casals catalans, drets de l'emigració
AJHG
@ajhgnews
The American Journal of Human Genetics
Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Stephanie Fischer
@rarepov
#Raredisease patient advocate & #stroke survivor.🦓 Member of @PARareDisease. Opinions are my own.
Women In Bio
@womeninbio
A 501(c)(3) nonprofit organization committed to promoting careers, leadership & entrepreneurship for all women in the life sciences. #womeninbio
Out Leadership
@outleadership
The global LGBTQ+ business network trusted by CEOs and multinational companies to drive equality forward #ReturnOnEquality #OutLEADER #ProudlyResilient
KDIGO
@gokdigo
KDIGO is a global non-profit foundation dedicated to improving the care and outcomes of people with kidney disease worldwide.
Int Society of Nephrology
@isnkidneycare
International Society of Nephrology #ThisIsISN • World Congress of Nephrology: @ISNWCN • Member forum: chat.theisn.org • Young Nephrologists: #ISNyoung
VitalTransformation
@vitaltransform
The impact of #health technology made simple
Levine Media Group
@lmgbio
Providing content, research, and analysis to life sciences clients
Rare Patient Voice
@rarepatientvoic
We help clients find rare & non-rare disease patients & caregivers for research studies, & connect patients & caregivers with paid research opportunities.
Big4Bio
@big4bio
Subscribe FREE for daily biohub news covering the Boston, San Diego, San Francisco, Philadelphia, Los Angeles, New York City, Capital Region, and Seattle areas.
Nephrology Journal Club
@nephjc
A twice monthly nephrology journal club that meets on Twitter. Hashtag #NephJC
nephro news
@nephropathyiga
tweet aggregator for kidney disease, kidney transplant and Nephritis
Cambridge Rare Disease Network (CamRARE)
@camraredisease
making #rarediseases an everyday conversation bsky.app/profile/camrar…
IPNA Ped Nephrology
@ipna_pedneph
Our mission is to lead the global efforts to enhance the care for all children with kidney disease through advocacy, education, training and research.
HCUNetworkAustralia
@hcunetworkaust
RARE Revolution Magazine
@rarerevolutionm
Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
NephCure
@nephcure
Fighting for a world where all who are affected by rare, protein-spilling kidney disease are connected to new and better treatments — and one day, a cure.
HCU Network America
@hcuamerica
The mission of HCU Network America is to help patients with #Homocystinuria and related disorders manage their disease and to find a cure. #HCUNetworkAmerica
International Society of Glomerular Disease
@isgdtweets
A professional society for glomerular disease experts, founded 2022. President @Tobias_B_Huber Español @ISGD_la 🦋 bsky.app/profile/isgd.b…
NationalKidneyFoundationSTL
@kidney_stl
NatlKidneyFoundation - Eastern MO, Metro East & AR dedicated to CKD prevention, awareness, patient advocacy & improving the health & well-being of all affected.
Begin_NGS
@begin_ngs
BeginNGS is a novel health care delivery system designed to screen newborns for genetic diseases — and connect their doctors with effective treatment options.
The Rare Disease Company Coalition
@rarecoalition
We are a coalition of life science companies committed to discovering, developing & delivering rare disease treatments for the patients we serve. #OneRareVoice
EY US
@ey_us
Official US Ernst & Young LLP account. Join us as we ask #BetterQuestions and discuss topics that matter to you, the workplace, and the future of business.
@ctxalliance
@ctxalliance
Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease
AdvocacyEve
@advocacyeve
Driving empowerment of patients and families within the global #RareDisease community through advancing advocacy, awareness, and collaboration.
David Ross
@mensraredisease
MRDMH supports men’s mental health for those suffering with a rare disease. #raredisease #malementalhealth #mentalhealth #rarementalk #mrdcharity
Ben and Lindsey
@hcupodcast
Podcast for people affected by HCU! Want to share your journey? If so, please reach out! See Ben's patient story at hcunetworkamerica.org/ben-georgia
Kristen Hood, EdD, MSN, RN
@hoodpartyoffive
Associate Director, Thought Leader Liaison All tweets/replies are my own.
Lisa Bonebrake
@lisabonebrake
Alport syndrome patient, parent, and advocate. Executive Director of Alport Syndrome Foundation. Big belief: Fear No Art!
Hybrid Calisthenics
@hcalisthenics
🌱 Hampton 🤸🏻♂️ Fitness | Motivation | Comedy 💪🏻 Cultivate long-term health and fitness!
Biocom California | Bay Area
@biocominsf
IROC - Improving Renal Outcomes Collaborative
@irocnow
Partnering with patients who have kidney disease and their families to improve health, longevity, and quality of life. #IROCStrong #ImprovingTogether
World Congress of Nephrology
@isnwcn
Official Twitter handle of the @ISNkidneycare World Congress of Nephrology • WCN'26 is hosted by @jsnorjp & @apsn_eph • Hashtag #ISNWCN
Ataxia and Me CIO 1184030
@ataxia_and_me
#Ataxia is a #raredisease affecting #Balance #Speech and #Coordination #Patients Helping Patients #MovementDisorder #Health #Medical #pharma
Mickie's Miracles
@mickiesmiracles
A nonprofit dedicated to global Pediatric Epilepsy awareness, education and advocacy to help families get an urgent diagnosis and the highest level of care.
HDF
@hdfcures
The official Twitter feed of the Hereditary Disease Foundation. Innovating research, discovering cures. #hdfcures #ResearchSpotlightWebinars