Twitter Beğeni Hilesi

“Approximately 25% of people infected with SARS-CoV-1 developed debilitating fatigue and other symptoms that met diagnostic criteria for myalgic encephalomyelitis (ME) or chronic fatigue syndrome (CFS) that continued for more than four years” bmj.com/content/374/bm…

In the US alone, 6% of adults & millions of children have #LongCovid, with those numbers bound to grow, yet we risk losing momentum on research to date. We need a moonshot - at least $1 billion/year in US gov funding for the next 10 years Michael Peluso, MD nature.com/articles/d4158…

Hey guys, I've created a GoFundMe for UK billboards. I've just chosen an arbitary target of £5,000 but as stated on the GFM, ALL decisions will be made with Twitter polls and the target can be amended at any time and I won't make any profits from this. gofundme.com/f/billboards-f…

Thank you so much Patient-Led Research Collaborative for live tweeting highlights from today’s PolyBio Fall Symposium! 👇 The Symposium covered topics from #viral persistence, to EBV reactivation, to vagus nerve signaling in #LongCovid and related infection-associated chronic conditions

We are excited to share that Michael VanElzakker & team at MGH Martinos Center have published a preprint with the results of a high-resolution #LongCovid imaging study. They identified neuroinflammation across a wide range of brain regions in LongCovid patients: polybio.org/polybio-suppor…

Aside from virology, most important but neglected aspect of ME research is epidemiology. The US's premiere epidemiologists, at CDC, blew their ME epi investigation in '85. Then they told the press that the MDs who reported the outbreak to CDC were hysterics + publicity seekers.

Inadequate medical training and the lack of a biomarker put pressure on #MECFS patients to describe how they feel (mostly to be disbelieved anyway). I don't recall my mum, for example, having to rack her brains to describe what having cancer was like before receiving chemo.

No better phenomenon for linking together neuroinflammation and vascular dysfunction in #LongCovid patients than chronic mast cell over-activation.

ME/CFS might not be “nothing new” but the real issue is that the dismissal of these life destroying symptoms isn’t new. Don’t let anyone tell you that losing your whole life to a disease isn’t something worth caring about.

The fact that so many non-disabled people don’t believe me when I say my fatigue is usually more debilitating than my joints dislocating multiple times a day tells me that people who haven’t experienced actual fatigue are genuinely incapable of comprehending it.

Thank you for giving us the opportunity to study ME/CFS and chronic Lyme disease. We are grateful for the exceptional generosity of Emily Fairbairn and Carol Sirot - two formidable women who understand the urgency of funding this research. Thank you! 🙏 Prof. Akiko Iwasaki Harlan Krumholz

Number of times I got sick per year on average despite all my handwashing, vitamin c supplements, green smoothies, kale etc etc: 1-3 Number of times I have been sick since 2020 when I started masking in public spaces: 0

Would long Covid or ME/CFS patients pay £285 ($350) to cover the cost of their own sample in a biomarker study? We will be able to receive our results which will be explained The biomarker has very high performance at small scale. It should only get stronger with more samples

I will be live tweeting from the NDUCI 2023 conference about chronic illness, with special attention to talks by Avindra Nath on "ME/CFS data," and Dr. Maureen Hanson on "The Enterovirus Theory of Disease Etiology in Myalgic Encephalomyelitis: A Critical Review"

This is phenomenal work from the #LongCovid community 🚀 If you're in the US, reach out to your reps today. All details on how to do this are included in the link.

Moving testimony from an ME/CFS patient who reports that their condition deteriorated significantly following graded exercise therapy (GET). Comment posted on IAG lead Hilda Bastian’s blog on Cochrane review on exercise and ME/CFS: hbprojecttalk.wordpress.com/2023/11/10/wel…

New research on asexuality shows why it’s so important for doctors and therapists to distinguish between episodes of low libido and a consistent lack of sexual attraction trib.al/3aYXO1k

What limits VO2 max? 🫀🫁 There’s a long-running debate in exercise physiology about what limits VO2 max. The two primary candidates are oxygen transport — our body’s ability to deliver oxygen to working muscles — and oxygen utilization — the ability of our mitochondria to

Don Milliken physoc.onlinelibrary.wiley.com/doi/epdf/10.11…