Tomorrow mtng wid our respected MP Pallab Lochan Das, about SMA & it's medicine Risdipalm. কালি তেজপুৰ লোকসভা সমষ্টিৰ মাননীয় সাংসদ শ্ৰী যুত পল্লৱ লোচন দাসদেৱক SMA আৰু আমাৰ চিকিৎসা সম্পৰ্কে অৱগত কৰাৰ মুহূৰ্তত। Pallab Lochan Das Himanta Biswa Sarma Chief Minister Assam Cure SMA Foundation of India 🇮🇳

Dear Sir Himanta Biswa Sarma Ji Keshab Mahanta Ji, pls don't take too long 2 provide access 2 life saving medicine 2 #SpinalMuscularAtrophy patients. Assam has few #SMA patients n funding their treatmt shouldn't b difficult 4 state 2 save lives of yr state citizens Sarmistha pritam

Heartfelt gratitude 2 Hon'ble PM Shri Narendra Modi Ji Narendra Modi 4 sparing time 2day with our #SMArtWarriors Roli n Akshat Rastogi 🙏. V truly believe "मोदी है तो मुमकिन है". With yr blessings ALL #SpinalMuscularAtrophy patients in India will get life saving medicine soon 🙏

Heartfelt gratitude 2 hon'ble Shri Yogi Adityanath Ji n Hon'ble Anandiben Patel Ji 4 listening about #SpinalMacularAtrophy from ur #SMArtWarrior Roli n Akshat Rastogi 2day. V truly believe dat under yr leadership Roli, Akshat n ALL UP #SMA patients will get life saving medicine.

Our sincere gratitude Honr’ble Vijay Baghel 🙏🏻 meetin wid Prashant Patient Cure SMA Foundation of India 🇮🇳 r waitin 4 lifesaving treatment #Risdiplam #ZolgenSMA #Spinraza , Office of Dr Mansukh Mandaviya Narendra Modi Dr.Bharati Pravin Pawar, PMO India #SMApatient r dyin, please help us win #BattleAgainstSMA

Respected Sh.anand mahindra ji👏 Save the innocent #SMA Children are in a lot of pain if children are not given medicines on time, their condition will become more serious, you are our hope. Cure SMA Foundation of India 🇮🇳 medicine #Evrysdi risdiplam 🙏

Sushant was never ever depressed. He didn't commit suicide. He was murdered by a huge conspiracy. Big sharks ate him up mentally. Give him & his fans justice. DoPT @ips_nupurprasad SSR Murdered By Conspiracy

#SMAawarenessMonth Day 17: We are proudly sharing today the scholarly article on "SMA Nutrition" by Dr. Sudeshna Maitra Nag, Chief Dietician, Peerless Hospital, Kolkata. Heartfelt gratitude to Sudeshna Ma'am for this enriching article 🙏. #BattleAgainstSMA #SMAckSMA

#SMAawarenessMonth Today's factsheet addresses the swallowing problems in #SMA - how they arise, how to evaluate & how to manage. Risk of aspiration can lead to lung infection which can be fatal in some cases. #BattleAgainstSMA #SMAckSMA

#SMAawarenessMonth Day 18: Today's #factsheet is on "Gastrointestinal dysfunctions in SMA". Gastric problems lead to serious complications and are the second most common cause of hospitalisation in SMA. #BattleAgainstSMA #SMAckSMA

#SMAawarenessMonth Day 19: Today's factsheet is on the three major determinants of quality of life in SMA : ability to breathe, swallow and move - how to assess and preserve them. #BattleAgainstSMA #SMAckSMA

#SMAawarenessMonth Day 20: Today's factsheet creates general awareness on rehabilitation. To maintain functionality and to prevent contractures, rehabilitation measures are important for #SMAwarriors . #BattleAgainstSMA #SMAckSMA

#SMAawarenessMonth Today's #SMArtWarrior (Type 3) is Mr Hardik Mewada , currently aged 30 battling the symptoms since 18 years of age. He shares about his rollercoaster life journey which he took control of with sheer will power and confidence. #BattleAgainstSMA #SMAckSMA

#SMAawarenessMonth Today's #factsheet is: "Why is physiotherapy important in SMA?" #SMA causes low muscle tone, muscle weakness, & muscle wasting which lead to progressive loss of muscle strength, mobility & function. Physiotherapy helps develop & maintain muscle strength!

#SMAawarenessMonth Day 22: Our factsheet today gives the evaluation and therapeutic approach in physical therapy for #SMA . It has been proved that early treatment and physical therapy has helped to delay the progression of disease. #BattleAgainstSMA #SMAckSMA

Rohit Rastogi Narendra Modi Yogi Adityanath sonu Dr Mansukh Mandaviya PMO India Saurabh Srivastava (Modi Ka Parivar) Cmo Varanasi Naveen Kapoor Amit Shah Thanku Cmo Varanasi Sh.Sandeep Chaudhary Ji 4 helping ur SMArtWarriors Roli Rastogi n Akshat make d UDID card vthout having 2visit civil hospital on ♿ 🙏. Rohit Rastogi Narendra Modi PMO India Yogi Adityanath Ministry of Social Justice & Empowerment, GOI Dr Mansukh Mandaviya Ministry of Health NITI Aayog DD Uttar Pradesh(DDUP)डीडी उत्तर प्रदेश(डीडी यूपी)

#myartwork on♿ #InternationalDisabilityDay "Right to live equal life" 🤗Let's join hands to build a more inclusive world- spread the word & commit to action. #battleagainstSMA #DisabilityInclusion #everylifematters #disabilityawareness PMO India Yogi Adityanath Narendra Modi

In April 2022, I got Covid and was hospitalised. When we claimed the insurance, the policy for the entire family was discontinued. Why? Because of my congenital disability. Here's what happened. A thread.

Patient & parent Cure SMA Foundation of India 🇮🇳 r livin d worst nightmare We hv been requestin 4 Govt intervention but r loosin precious live despite an approved therapy being available but not accessible. Sanjay Singh AAP 🙏🏻 4 agreein to take our plea to Narendra Modi PMO India #BattleAgainstSMA