Sharing a poignant #SMAjourney today. Meet Kodimela Venkata Rao & Suseela from Andhra, a family battling SMA type 3. Their sons Adithya Kumar (18) & Ravi Prakash (14) both diagnosed. Despite challenges, their unwavering determination shines. Saluting their strength!

#SMAawarenessMonth Day 16: As we continue our efforts to raise awareness about #SMA, focusing on gastric complications is vital. Did you know that gastric issues are the second most common reason for hospitalization among SMA patients? Often, we face symptoms without

#SMAawarenessMonth Day 22: Today's factsheet focuses on a few good exercises empowering #SMA individuals on rehabilitative care goals include enhancing mobility, improving quality of life, managing muscle strength, and fostering independence. These exercises are to be followed

#SMAawarenessMonth Day 30: 🔍 Curious about Risdiplam? We've gathered and answered some frequently asked questions about this drug to help you understand it better. Stay informed and empowered! 💡 #RisdiplamExplained #MedicalFAQs #BattleAgainstSMA #SMAawareness

Greater Chennai Corporation Udhay - தமிழ்நாட்டை தலைகுனிய விடமாட்டேன் anna please help me. I am a person with disablity with #spinalmuscularatrophy. Drainage water flooded our house in 184 Big Street, Chepauk. Toilet clogged. Unable to move out on wheelchair. #ChennaiFloods

'Beneath the Simolu Tree' by Sarmistha Pritam is out now! Originally written in Assamese and translated by Ranjita Biswas, it is now available wherever books are sold. In a village in rural Assam, quiet, unassuming Paridhi grows up witnessing domestic violence at close

'Beneath the Simolu Tree' by Sarmistha Pritam is out now! Originally written in Assamese and translated by Ranjita Biswas, it is now available wherever books are sold. #translatedbook #translatedstories #assamesestory #beneaththesimolutree #ranjitabiswas #newbook #outnow

'Beneath the Simolu Tree' by Sarmistha Pritam is out now! Originally written in Assamese and translated by Ranjita Biswas, it is now available wherever books are sold. In a village in rural Assam, quiet, unassuming Paridhi grows up witnessing domestic violence at close

Heartfelt gratitude 2 anonymous donar vinod kumar menon & Mid Day 4 coverin d plight of SMA patient We Cure SMA Foundation of India 🇮🇳 r requestin 4 Govt support CMO Maharashtra @OfficeOfDevendra Devendra Fadnavis Eknath Shinde - एकनाथ शिंदे Dr Shrikant Lata Eknath Shinde please helpus save Akriti’s life 🙏🏻 mid-day.com/mumbai/mumbai-…

#BeneathTheSimoluTree Simon & Schuster India ✨

Gratitude to Kerala Government | കേരള സർക്കാർ for aiding 23 more children with #SMA (6-12 yrs) access Risdiplam! Deeply appreciate the initiatives including SMA clinic & skill development. KARE initiative is a true blessing. Heartfelt thanks to CMO Kerala and Veena George #RareDisease #Gratitude

All stakeholders 2gether wid patients 2 improve d lives of those who go thru purgatory while battling the one of d most debilitating, progressive n most 'expensive to manage' diseases ever known, #SpinalMuscularAtrophy

I saw hope in the eyes of the patients and their families. I saw resolve in the scientists who decided to take up this research work. Let's create an outstanding virtual centre for top quality research on rare genetic disorders. Let's join hands to make an impact.

Concerted efforts needed starting from carrier testing for spinal muscular atrophy to new approaches for drugs and biologics for this rare genetic disorder. Meeting organised by Prof Jonaki Sen w/ ICMR and Cure SMA Foundation of India 🇮🇳 has strengthened our resolve for viable solutions.

Cure SMA Foundation of India 🇮🇳 Ministry of Health Dr L Swasticharan NITI Aayog स्पाइनल मस्कुलर एट्रॉफी जानलेवा प्रगतिशील बीमारी का भारत में शोध शुरू होगा PMO India Ministry of Health ICMR , IIT Kanpur कानपुर की शोध टीम को मेरी तरफ से शुभकामनाएं (आत्मनिर्भर भारत) Cure SMA Foundation of India 🇮🇳 समस्त परिवार को शुभकामनाएं 🙏

The Indian Panorama, a prestigious section of the International Film Festival of India (IFFI) has announced its selection of 25 Feature Films and 20 Non-Feature Films to be showcased at the 55th edition of IFFI including 5 films from mainstream cinema in the Feature Films

Good news for Assamese film industry 📽️ 3 Assamese films have been recognised for showcasing in the prestigious Indian Panorama Section at the 55th International Film Festival of India Festival 2024. 📽️Jui Phool 📽️Rodor Pakhi 📽️Swargarath Congratulations to everyone associated with the three films.

HEALTHCARE FOR ALL! Let's celebrate our right to healthcare and request #UrgentTreatmentAccess4SMA in India! With collective action, we can create a brighter future Ministry of Health President of India #right2life #right2health #curesmaindia #battleagainstSMA #acchedinkabayenge

THANK YOU to everyone who ran with us for SMA awareness! 🙏💪 Your energy & support mean the world to the SMA community. Special thanks to our esteemed guests for their inspiring presence! 🙌 Every step counts towards a better future for SMA warriors! 💕 #RunForSMA #SMAawareness