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This week of streams has been amazing! Thank you to electrode13_5 Captain_Pesky DocJay Ironvald Saria 🌸 Nemra🐉Cultist VTuber Spoony Hudson 🪶 3D coms open Lyssa Ishida 🌺 Aloha Spirit Ember | Little streaming bean Wolfe | Still Learning How to Draw | HAPPY FAZ MAY / Free 🇵🇸 🇱🇧 & ValkyrieVP for the raids! BIG love to you all! We have raised £268.69 for Ehlers-Danlos Support UK so far

Excited to join Ehlers-Danlos Support UK next week.

A shout out to AHPs from Northern Ireland, a rare opportunity to learn more about #Chiari #Syringomyelia #EDS in The Walton, Liverpool, Thur 3 July - AHP day . Talks on rehabilitation, pain management, physiotherapy management, holistic need. Shona Pryde

Stream over!! Only got one new colouring page done buuuut we got a lot fixed on the old raptor design and turned it into 5 new ones!! New colouring page will be going up on my Kofi soon!! All funds raised from the sales will go into the grand total raised for Ehlers-Danlos Support UK !!

The newest colouring page is up on my Kofi!!! All money raised from the sales of these pages goes directly into the grand total we raise this month for Ehlers-Danlos Support UK !!! ko-fi.com/s/0d3101276e #dinosaur #colouringpage #coloringpage #steggosaurus #charity #fundraiser

We've had so many amazing comments from our members who have joined one of our recent webinars. Some exciting webinars are coming up in the next few weeks, and these can all now be booked through our online shop shop.ehlers-danlos.org/product-catego…

"This May I am participating in Dazzle Walk 2025 to raise money for Ehlers-Danlos Support UK - but in my own way! I’m determined to do something to help others." Thank you to Abi for taking part in the Dazzle Walk and for raising an incredible £720 so far! justgiving.com/page/abi-stands

First time playing R.E.P.O with TheDieselpunk_Wookiee and Zarunax !! Day 13 raising money for Ehlers-Danlos Support UK !!! twitch.tv/deviant_nails_

Having a chronic and complex condition like an Ehlers-Danlos syndrome (EDS) or hypermobility spectrum disorder (HSD) can often be isolating. EDS UK is here to help. here: ehlers-danlos.org/support/suppor…

Join EDS UK and wear #REDS4VEDS today! Help us to raise awareness of #vascularEhlersDanlossyndrome (vEDS). We have launched a groundbreaking research programme for the vEDS community, jointly funded with Annabelles Challenge Vascular EDS Charity and LENI Research Group - Sheffield Hallam University ehlers-danlos.org/news/exciting-…

Start of The Dazzle Walk supporting my good friend Katie Katie Wearing what a superb day for it,5km along the west coast,just on our doorstep,a great turn out in support of Katie and The The Ehlers-Danlos Society Ehlers-Danlos Support UK A great charity for yet another rare disease, 🦓💜🦓💜

"I have lived with #EhlersDanlossyndrome my entire life. In honour of EDS and HSD Awareness Month, I have been participating in the 2025 Ehlers-Danlos Support UK Dazzle Walk, a sponsored walk aimed at raising funds for this vital cause. justgiving.com/page/sophiesda…

I gathered a few flies on my longer route this weekend! 🪰 make it all worth it and sponsor me at: justgiving.com/page/charlotte… Ehlers-Danlos Support UK #charity #sundayrunner

Dr. Lu Liu and the Nazish Sayed MD, MS, PhD Lab are doing some interesting research into Vascular Ehlers-Danlos syndrome (vEDS). 📺 youtu.be/-CFDyet3-MM?sf… @Stanfordvasc Ehlers-Danlos Support UK #ehlersdanlos The Ehlers-Danlos Society

Thank you to our fantastic fundraiser Zoe who, at the age of just 12 years old, completed a full marathon distance in one month and raised a fantastic £1,809 for Ehlers-Danlos Support UK

I'm having an ill day so it's gonna be a chill stream tonight, but I wanna try something new! I'm gonna attempt to doodle dino's for donations! Each dono £5+ to Ehlers-Danlos Support UK will get to pick the next dino I doodle for colouring book pages! twitch.tv/deviant_nails_

Exciting news - I am launching a YouTube Channel. Please subscribe and spread the word far and wide youtube.com/@bendybraindrj… #hypermobilty #eds #neurodivergence #fibromyalgia #mecfs #anxiety #allthethings

IT'S WORKING!!!! It's been a DAY so we're relaxing with some Diamond Painting for Ehlers-Danlos Support UK twitch.tv/deviant_nails_

🌐 Join the 99% of members who say our website is important to them. Find trusted support and information at ehlers-danlos.org These tools are helping thousands better understand their conditions and feel empowered. #Hypermobility #EhlersDanlosSyndrome

Thank you to everyone who is raising awareness in their corner of the UK this May. Faye, one of our Isle of Wight members organised a display wall at St Marys Hospital. Here she is with Stephanie Russell, Diagnostic Center Head of Department Isle of Wight NHS Trust Thank you Faye!