Adam
@abrokenbattery
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
ID: 904701759058305024
https://linktr.ee/abrokenbattery 04-09-2017 13:44:42
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Tom Kindlon
@tomkindlon
With ME 35 years (30 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrs
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Chris Wexler
@chriswexler
Former CEO and Executive. Full time #LongCovid and #MECFS battler. Avoid Covid and slow down if you get infected. Don’t get Long Covid. Trust me!
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Paul Keeble ME/LC
@paulrkeeble
ME since 2016 (Mild), 2019 Moderate , 2020 Severe Long Covid since March 2020 (V Severe) Funcap55 = 1.9 ( (Severe) previously 2.13, 2.4)
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Edzard Ernst
@edzardernst
Physician, scientist, (H-Index=147), blogger (edzardernst.com), tri-lingual author, columnist: SPIEGEL,WELT,STANDARD,L'EXPRESS,SKEPTIC, many books ...
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Giorgia Lupi
@giorgialupi
Information Designer. Partner @Pentagram. 1/2 of @_deardata, @TEDTalks speaker, Advocating for #datahumanism
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John McDonnell
@johnmcdonnellmp
Labour MP for Hayes & Harlington and Former Shadow Chancellor.
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Hollie-Anne Brooks
@hollieanneb
Award winning freelance journalist & broadcaster. Disability/politics/travel. Living a beautiful slow life with ME/fibro ✨ Tortured Poet 🤍 SAFC ⚽️
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#BeMoreSkater Debut single out now
@joncampling
Act Sing Run Draw Drum Strum @HarryPotterFilm #MANFISH🎬 @FFXVEN #Warhammer40k 🕹️ | DEBUT SINGLE #LONDONTHING out now 🎸 All Acting Enq 👉 @ThreesACrowdMan
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Disability Rights UK
@disrightsuk
We are the UK’s leading organisation run by and for Disabled people, working for justice and equality for all.
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Carol Vorderman
@carolvorders
‘NOW WHAT?’ New book about politics out Sept 12th. PRE ORDER amzn.to/3PMn3xT Radio @LBC Sunday 3-6pm @carolvorderman.bsky.social
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Jane McMullen
@jane_mcmullen
2x Emmy nominated filmmaker & journalist for @BBC - The Day California Burned | Escape from Dubai | China’s Covid Secrets | Big Oil v The World
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Mindy Kitei: journalist
@cfscentral
I'm a science reporter who's covered ME/CFS since 1994 in print and on CFS Central, & co-author of Sugars That Heal: The New Healing Science of Glyconutrients.
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Hannah Davis
@ahandvanish
Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
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Dr Keith Geraghty
@keithgeraghty
Research Fellow | Primary Care, Medical & Health Psychology | People-focused, evidence-based | @FBMH_UoM, @PrimaryCareMcr
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Natasha Devon 🌈💙
@_natashadevon
Taking a break from Twitter. Follow me on threads or Insta (same handle) for updates on mental health campaigning, LBC show, books etc. She/Her
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A 😎 Long Covid + MECFS Billboards
@aaronca11
@lcmebillboards @lcmepirates notrecovereduk.org
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Anil van der Zee ©
@anilvanderzee
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
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Dan Wyke 🦠➡️🧠🔥
@dan_wyke
M.E. inactivist, person-centred counsellor (see link), recovering poet (Rack Press, Waterloo Press).
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Emma 🛌♿🌱☮️♻️🍉
@emma_vegan_mua
She/her. Severe ME, CCI/AAI, hEDS & co, AuDHD. Ex makeup artist, ethical vegan, socialist. #BlackLivesMatter #TransRightsAreHumanRights Support striking workers
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Karen Hargrave
@karenlhargrave
Independent researcher & policy analyst | Migration & displacement | Research Associate @ODI_Global | Co-founder #ThereForME linktr.ee/ThereForME
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davidtuller
@davidtuller1
Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
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Katy B
@katybruce108
Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch dialogues-mecfs.co.uk/videos/ #pwME
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Emily Mendenhall
@mendenhall_em
Anthropologist & Professor @georgetownsfs, on leave as Guggenheim Fellow, Editor-in-Chief @SocSciMed-MH, writing about Long Covid+
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Rob Wüst
@robwust
Assistant-Professor Muscle Metabolism at Vrije University Amsterdam, Netherlands. Interested in skeletal muscle function in health and disease
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Lizzy H
@hopefullizzy
29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
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Kerren Garner 💙
@kerrengarner
Actress & Director on pause. #BHAFC & Politics. Trying to work out life with chronic illness
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Wading through treacle
@kimisgubbed
Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
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Matt Lazell-Fairman
@mfairma
ME patient. Spouse with LC & ME. Fund marginalized diseases. Plow under suburbia. Build walkable, accessible towns and cities.
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Janet Dafoe
@janetdafoe
Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
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Putrino Lab
@putrinolab
We make people (and technology) better at Mount Sinai. Opinions are my own.
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Ellie Fry
@ielliefry
Deputy Features Editor (Live) @DailyMirror | Previously @Independent | Contact: [email protected]
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Naomi Harvey PhD #WearAMask
@naomi_d_harvey
Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ naomidharvey.bsky.social
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Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇮🇳🇬🇧#pwLC
@doctorasadkhan
Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
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Dr. Markus Fraczek
@mareksjf
• Scientist ‖ PhD mathematical physics (not MD) ‖ Dr. rer. nat. • Interests: Medicine ‖ History ‖ Global Politics • #MECFS ➡️ mecfs.de/was-ist-me • EN ‖ PL ‖ DE
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Natalia
@nataliahodgins
Disabled writer with words in @Refinery29AU, @ABCNews, @PublicHerald | Activist | Feminist | MECFS | Follow on IG - same handle
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Oonagh Cousins
@oonagh_cousins
Working for an IACC paradigm shift Oxford University @long_covid #ThereForME "Anti-Recovery Activist" Phil Parker May 2024
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Harriet Carroll: Long Covid Scientific Consultancy
@angryhacademic
#LongCovid Scientific Consultant Hon Research Fellow, Lund Uni PhD Nutrition & Metabolism Tweets: nutrition▪health▪all-things-science▪activism▪#TeamClots
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Lara Crowther
@fillthewhole
BSc, MRes Neuroscience, BMedSci, PhD Med Ed (& life) on hold due to covid caused #longcovid #pots #mcas #adenomyosis #hypothyroid Ex PT & yoga teacher 😷
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ME/CFS News
@mecfsnews
News, interesting information and commentary on ME/CFS. Semi-retired account.
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Marky Mark
@mrkstdngr
#ME #CFS #CCI #POTS #MCAS
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Billy Hanlon
@bhanlon15
Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID
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peeping slut
@chonkadonkawonk
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Fran Haddock
@franhaddock_
Spoonie 🥄 Activist ✊ Vet 🩺 (she/her) Currently bedbound with severe ME + Long Covid (more active on IG)
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Otter Braun
@otteritarian
Supreme Leader of The Great Otterman Empire. Hates hoomans & trash pandas. Currently leading The Great Otter Uprising. Otters rise up! #NewWorldOtter
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Long Covid Support 🌍
@long_covid
UK Charity • Support • Advocacy • Research Involvement • Education • Keeping people with #LongCovid at the centre. #CureLongCovid
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Sibylle Dahrendorf 💥
@sibylle_berlin
Once a Filmmaker | Stop denial of #ComplexChronicIllnesses | #SmallFiber #POTS #MCAS #CCI #Lyme #FQToxicity #ME || Twitter/X Break ||
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Cat in the Hat 🐈⬛ 🎩 🇬🇧
@_catinthehat
Mum • Lover of nature and clean, fresh air • Passionate about science • “Without data, you’re just another person with an opinion.”
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Tracey Burgess
@traceyaburgess
Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
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out of context dogs
@contextdogs
follow us for daily dog Content 🐶| Dm for credit and removals | @gifpuppies
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@TheChronicCollaboration
@thechroniccolab
A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
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Bridget O'Shea
@bridget_oshea
Certified medical #writer, enthusiastic #journalist, cat mom, @UChicagoProEd, ME/CFS patient. Freelance journalist. Available for medical writing and editing.
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Kirst
@kirstler31
#MECFS #LongCovid - March 2020 😷 #PostVac #POTS
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Kornelia Paulsen
@korneliapaulsen
On Twitter to share my illustrations to raise awareness about M.E. | 💟 and 🔁 to support #pwME | IG: illustrating_ME | Please be aware of copyright 🫶🏼🇳🇴
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Misfits Boxing
@misfitsboxing
The official Twitter of Misfits Boxing 🥊 CEO: @KSI | Presidents: @MamsTaylor @SauerlandBros 🤝
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Gunnar Gottschalk
@ggottschalkphd
ME/CFS and Long-COVID Researcher Scientist and Executive Director Simmaron Research Inc.
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Alexis
@alexis___me
Consultant in Health Protection (Public Health) | Severe ME, Long Covid and POTS patient | Advocate | Father | Husband to @clglbrt
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The Sick Times
@thesicktimes
Non-profit news site chronicling the #LongCovid crisis. Founded by @betsyladyzhets and @mileswgriffis. Donate: the-sick-times.fundjournalism.org
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Patrick
@frmlss
The human mind serves evolutionary success, not truth
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Etta Loveday
@ettalovedayme
She/Her. Rising awareness for people living with Myalgic encephalomyelitis (ME). #ME #SevereME #VerySevereME
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It'sME(Jaime)
@exceedhergrasp1
Director of Sci & Med Outreach, #MEAction Stanford Med TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
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Julie Houston
@julesahouston
Body malfunctioning since 1998 MECFS POTS MCAS. #LongCovidKids #LongCovid #PANS #PANDAS ally. #MasksInHealthcare #CleanAirForAll #GreatestMEdicalScandal
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Rachel Maclean
@redditchrachel
Former MP for Redditch and the Villages, served as Housing, Home Office, Justice and Transport Minister. Mum. Nana.
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Carole Bruce
@carolebruce17
💙Art, Nature, Books, Some Music. Severe ME 32 years, would love to be released from this one room. Daughter severe 38 years. Furious about treatment of ME.
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Trish Orwen
@trishorwen
Toronto Star. Montreal Gazette. retired journalist. national science award winner. Proud mom and grandma. @[email protected] #BringBackMasks
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Sten Helmfrid 🇺🇦
@stenhelmfrid
Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
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Elizabeth Ansell
@elizansell
Founder @njfatigue. Previously at Showtime and ABC News, among other places. Quit career due to #MECFS. This is #NotJustFatigue.
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Rebecca Ryan
@drrebeccaryan
Gastroenterologist & Hepatologist. Disorders of the Gut Brain Axis. Treating Long Covid, POTS, MCAS and hEDS.
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ME Advocates Ireland
@meadvocatesire
Advocating for People with Myalgic Encephalomyelitis (M.E.) in Ireland, for Severe ME in particular. [email protected]
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Dr Anjali Agarwal
@dranjaliphysio2
Health care Professional, consultant Physiotherapist. Lifestyle consultant. Advocacy Co Director Long covid Physio, treats #EDS #Hypermobile #POTS
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Dr Joshua Wolrich (BSc MSc MBBS MRCS)
@drjoshuawolrich
NHS doctor (HAES) & nutritionist (ANutr) • weight stigma, misinformation & social inequity • Sunday Times Bestselling author of 'Food Isn't Medicine' • He/Him
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