
Adam
@abrokenbattery
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
ID: 904701759058305024
https://linktr.ee/abrokenbattery 04-09-2017 13:44:42
5,5K Tweet
7,7K Followers
1,1K Following

Tom Kindlon
@tomkindlon
With ME 36 years (30 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs
Paul Keeble ME/LC
@paulrkeeble
ME since 2016 (Mild), 2019 Moderate , 2020 Severe Long Covid since March 2020 (V Severe) Funcap55 = 1.9 - 2.1 (Severe)
Jennifer Hulme
@jenniferhulme
Physician, Assistant Prof @UofT Family & Community Medicine | Health systems | Health equity | Health in all policies | Long COVID/ME/POTS. Tweets are my own
Darren Parkinson ๐๐๐
@darrenbar88
Green Party Campaigner | Living with Long Covid | Bradford | Shipley Town Councillor 2020-24 | Views own.
christina lawrence
@christina_law
Struggling with #MECFS, #celiac, #migraine Former Financial/Data Analyst and College Economics Lecturer. christinalawrence.me
Grant Macaskill
@grantmacaskill
Aberdeen Uni. Kirby Laing Chair of New Testament. #actuallyautistic, Long Covid awareness. Personal account. Also thechairmaker.bandcamp.com/releases
The Guardian
@guardian
This account has been archived. Follow us on theguardian.com or download our app.
#BeMoreSkater Debut single out now
@joncampling
Act Sing Run Draw Drum Strum @HarryPotterFilm #MANFISH๐ฌ @FFXVEN #Warhammer40k ๐น๏ธ | DEBUT SINGLE #LONDONTHING out now ๐ธ All Acting Enq ๐ @ThreesACrowdMan
Hannah Davis
@ahandvanish
Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Dr Keith Geraghty
@keithgeraghty
Research Fellow | Primary Care, Medical & Health Psychology | People-focused, evidence-based researcher & chartered psychologist |@FBMH_UoM, @PrimaryCareMcr
NickyProctor
@nickyproctor
Writing up my #PhD in coach learning & development @LeedsBeckett and campaigning for better healthcare #MEcfs #POTS
Katiana.
@katiamek
26. Former greek Architecture student, athlete and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic
Resia Pretorius
@resiapretorius
Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Catriona Parfitt
@pcatriona
Wildlife Photographer and Filmmaker, Biologist, occasional Artist
Anil van der Zee ยฉ
@anilvanderzee
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #IACC #art2cureME #pwme #millionsmissing
Dr Andrew Wood
@drandrewgwood
Sport & Performance Psychologist. Family ๐ฉต . MIA since March 2020 & doing utmost to recover from Long Covid โ๏ธ๐.
Dan Wyke ๐ฆ โก๏ธ๐ง ๐ฅ
@dan_wyke
M.E. inactivist, person-centred counsellor (see link), recovering poet (Rack & Waterloo Press)
Guus
@guustweet
#LongCovid since janโ21 โฟ๏ธ - tweets with brain fog, so pls bear with me - ๐ฃ tries to advocate @NietHersteld - eager to learn - she/her - tweets in ๐ฌ๐ง & ๐ณ๐ฑ
Daniel Moore
@talmandaniel
Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
Dr Sue Peters
@suepeters21
LA Area Senior Educational Psychologist. EP for @longcovidkids and independent EP work sppsych.com. Interested in mental health & wellbeing & #longcovidkids
Karen Hargrave @karenlhargrave.๐ฆ.social
@karenlhargrave
Independent researcher & policy analyst | @karenlhargrave.bsky.social | Research Associate @ODI_Global | Co-founder #ThereForME linktr.ee/ThereForME
davidtuller
@davidtuller1
Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Katy B
@katybruce108
Myalgic Encephalomyelitis ME + POTS 38 years Donor to the @mecfsbiobank for 10 years & @DecodeMEstudy Please watch dialogues-mecfs.co.uk/videos/ #pwME
Lizzy H
@hopefullizzy
30y/o creative, with complex health issues๐ค๐ผME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-authorโจ
eIisa
@mildtin
Humanity's better future: Zero chronic illness. End needless suffering. Millions with Long Covid and ME/CFS working and waiting to get our lives back.
Kerren Garner ๐
@kerrengarner
Actress & Director on pause. #BHAFC & Politics. Trying to work out life with chronic illness
Marco
@gmwetz
Tweets about Long Covid, ME and politics // NAFO fella
James Walton
@james_walton96

Wading through treacle
@kimisgubbed
Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme ๐ฌ
Janet Dafoe
@janetdafoe
Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Putrino Lab
@putrinolab
We make people (and technology) better at Mount Sinai. Opinions are my own.
Naomi Harvey PhD #WearAMask
@naomi_d_harvey
Zoologist. She/her. 23yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) โฟ๏ธ naomidharvey.bsky.social
Dr Asad Khan FRCP FRACP ๐ต๐ธ๐ณ๐ฟ๐ฎ๐ณ๐ฌ๐ง#pwLC
@doctorasadkhan
Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweetsโ endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Emma GL ๐๐ฆ
@gorelloyd
DELTA-qualified EAL teacher; also EFL, ESOL and EAP. Caregiver to neuroscientist partner with v severe ME from LC & Lyme. #ThereForME She/her ๐ณ๏ธโโง๏ธ๐ณ๏ธโ๐๐ต๐ธ
Dr. Markus Fraczek
@mareksjf
โข Scientist โ PhD mathematical physics (not MD) โ Dr. rer. nat. โข Interests: Medicine โ History โ Global Politics โข #MECFS โก๏ธ mecfs.de/was-ist-me โข EN โ PL โ DE
Natalia
@nataliahodgins
Disabled writer with words in @Refinery29AU, @ABCNews, @PublicHerald | Activist | Feminist | MECFS | Follow on IG - same handle
Oonagh Cousins
@oonagh_cousins
Communications and Fundraising at @long_covid #ThereForME campaign team. 'Anti-Recovery Activist' oonaghcousins.bsky.social
Dr LG (is a longhauler)
@subversivepsych
๐ฎ๐ชDr(MD/MRCPsych)BSc(Hons)Pharmac. Covid 04/20โญ๏ธ #LC+VI 02/21 โญ๏ธ โฌ๏ธcoag,#MECFS, โฌ๏ธT4. Life on hold. Coagulonaut! #endmedicalgaslighting.Not medical advice.
ME/CFS News
@mecfsnews
News, interesting information and commentary on ME/CFS. Mostly inactive these days.
Billy Hanlon
@bhanlon15
ME/CFS | Long COVID | IACC
Dom #FBLC
@dominicmoss13
Bikes, old vw, cars, bmx, surf, indie, retro, ๐ค
Long Covid Support ๐
@long_covid
UK Charity โข Support โข Research โข Advocacy โข Education โข Keeping people with #LongCovid at the centre. #CureLongCovid
Sam Disabled Man Welfare Not Warfare
@counsellingsam
#LongCovid #POTS #Disabled #ActuallyAutistic #LGBTQIA friendly. on PIP writes for @TheCanaryUK Arsenal fan buymeacoffee.com/samthelongcoviโฆ ๐ฆ
Long Covid Scotland ๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ
@longcovidscot
Long Covid Scotland is a charity & action group led by & advocating for people living with Long Covid.
Spectre
@spectre0799
mashups, hip-hop remakes, and original music. 190k+ subs ๐จ๐ฆ ๐ฏ๐ฒ content by me and @qoqinox inquiries: [email protected]
Michael Alexander
@michaeltikus
I like animals ๐ Covid? Not so much. Views my own. @Long_Covid @RenegadeRes @WeCrunchME @OneSpoonProject
Natalie Hilliard
@nataliehilliar7
Physio specialising in ME/LC/Lyme/Dysautonomia etc; Co-founder of 'Physios For ME'; Living with LC/Chronic Lyme
Kirst
@kirstler31
#MECFS #LongCovid - March 2020 ๐ท #PostVac #POTS
Kornelia Paulsen
@korneliapaulsen
On Twitter to share my illustrations to raise awareness about M.E. | ๐ and ๐ to support #pwME | IG: illustrating_ME | Please be aware of copyright ๐ซถ๐ผ๐ณ๐ด
Yes, I have ME
@yes_ihaveme
More importantly I have a sense of humour and optimism much of the time. ME since 1983. Mostly horizontal now. Staying Alive. Limited energy not into arguments.
Anton ๐ซ๐ฎ
@finnishgunners
Fighting to survive the biggest medical scandal of the 21st century, more precisely ME/CFS. Former football player, now football spectator. Arsenal supporter.
Tom Molmans, MD
@molbaas
Psychiatrist | Life on hold since Oct. '21 due to long Covid | LC foundation NL | Carpe diem sed non inpensa crastina | Tweets are my own | No medical advice
elle carnitine ๐
@elle_carnitine
immunocompromised โข made & kept sick by the state โข kept alive by my beloved @predi_cam_ents๐ชณ
NietHersteld
@niethersteld
Actiegroep die laat zien welke mensen we missen in de maatschappij omdat ze niet hersteld zijn. #LongCovid & andere postinfectieuze aandoeningen. #NietHersteld
Lindsey ๐จ๐ฆ๐ฉต
@linds_longcovid
#LongCovid #MECFS #pwME #POTS #chronicillness since 01/22 ๐ 36 โข Cat mom โข Dancer โข Empath โข Music Former MUA๐ Web/UX Designer ๐ป gofund.me/5c993e9c
CrunchME
@wecrunchme
Creating the evidence and insight base to crunch ME/CFS, Long COVID, and other infection-associated chronic conditions (IACCs) ๐
dianna haze
@diannahaze
Tweeting through the hazy brain fog of Severe Long Covid. (Chronically ill alter-ego of @thephysicsgirl)
fiphfo
@pheob289
๐ฌ๐ง ๐ซ๐ท ๐ฉ๐ช
The Rest Is Entertainment
@restisents
The Rest Is Entertainment pulls back the curtain on television, film, journalism and more with @RichardOsman and @MarinaHyde.
Patrick
@frmlss
The human mind serves evolutionary success, not truth
Spoony
@spoonyapp
A safe space for neurodivergent, chronically ill and disabled people to make friends and find support
#ThereForME
@thereforme_uk

Kirsty Schnickelfritz
@kschnickelfritz
Housebound knitter with a chocolate habit and bird obsession. #ME #POTS #LC #Lyme
แดสแด แดแดแด ษชแด แดแดแด แดส แดแด
@thecovidcoverup
Serious about public health
Journey Through Time
@throughtimepod
History from the ground up. Ordinary people, extraordinary impact. Hosted by @DavidOlusoga and Sarah Churchwell. ๐
Carole Bruce
@carolebruce17
๐Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. bsky.app/profile/cabrucโฆ
Niko Suvisto
@nikosuvisto
Life on hold by (severe) ME/CFS ๐ Here to talk about it. Other interests are Basketball ๐ / (Film) Photography ๐๏ธ๐ท / Music/Vinyl ๐ถ๐ฟ / Movies ๐ฝ๏ธ
Sten Helmfrid ๐บ๐ฆ
@stenhelmfrid
Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
ME Advocates Ireland
@meadvocatesire
Advocating for People with Myalgic Encephalomyelitis (M.E.) in Ireland, for Severe ME in particular. [email protected]