Remember today is:
Rare Disease Day 🩷
This day needs to come around more than every 4 years. Too many suffering, too little research.
Let's hope new technology offers hope for many suffering.
#RareDisease Day2024
#RareDisease #RareDisease Day
Queen Mary of Denmark❤ Supporting Rare Disease Day. I think she has a fan😊💕 & loving the blue nail polish💙
#QueenMary #Denmark #RareDiseaseDay #RoyalFamily #Royalty #Jo_March62
Rare Disease Day 2024
My Ethan is 1 of 100 diagnosed worldwide with Floating Harbor Syndrome.
With more specific genetic variations my Ethan is 1 of 15 worldwide.
That’s rare. Unique. Wonderful. Special.
#RareDiseaseDay #FloatingHarborSyndrome
A massive thank you to those who shared their stories for Rare Disease Day!
We have released a genetic testing report to help you understand any results a loved one may have received. Download here: bitly.ws/3dXhw
#UniqueAndRare #RareDiseaseDay #RareDiseaseDay 2024
On Rare Disease Day, LRG Director, Data Mgmt. & Research Sahibjeet Parmar talked about the latest GIST trials. Here's a portion of the Q&A. More questions? [email protected]. View recording: bit.ly/CTrialsQ-A #gisteducation#rarediseaseday #clinicaltrials
3 years ago, on #RareDiseaseDay I was a couple months into being diagnosed with an ultra rare, stage IV cancer. Treatment options were limited and my prognosis didn’t look great.
Fast forward 3 years and rare disease day looks much different this year, now w/no active cancer…
Today is National #RareDiseaseDay and I’m one of the 1 in 9 million people living with a life-threatening condition that’s often invisible to others. I have hypophysitis hypopituitarism causing central adrenal insufficiency, a rare condition where my pituitary gland doesn’t work…
True joys of real teamwork and surgical planning to enhance patient care.... on this Saturday with fellows karthik Tappa Timothy Newhook Ching-Wei D. Tzeng Sarah Fisher MD Anderson Cancer Center The National Adrenal Diseases Foundation Rare Disease Day American Association of Endocrine Surgeons YangLu_Raidology Chris Scally
The #RareDiseaseDay colours 💙💚💜 shone brightly on 29 February 2024!
With the #LightUpForRare initiative, we advocated for the 300 million people living with a rare disease.
Today, we look back at a selection of captured illuminations that joined our Global Chain of Lights ✨
Auf Anregung meines Kollegen Erich Irlstorfer bin ich heute zwischen zwei Terminen eine Runde gejoggt. Denn der 29. Februar in Schaltjahren ist #RareDiseaseDay . Menschen mit seltenen Krankheiten brauchen gute medizinische und pflegerische Versorgung.
#atriskalsftd #rarediseaseday The rare disease community , including ALS and FTD, needs support!
Today for #rarediseaseday instead of highlighting one of two conditions, I’d like to invite everyone to comment on this post with a rare disease that you’d like the public to know more about. Feel free to add resources, statistics and fundraising opportunities
