That’s a lot of words ✍️
Final chapter complete, on to editing.

Knowledge sharing is a personal passion of mine. So over a weekend just before ASCO I built a resource to make that easier for rare cancers and diseases.

Started with #chrcc but it’s built in a way that can be repurposed for others.

Check it out here
medresourceconnect.com

BorikWine 🎗 In Maryland for these ones but I’ll have to add this to my list for my next ones in Houston.

📶 Signal boost: Please retweet to share with patient communities! OncoAlert Hans Hammers Toni Choueiri, MD Rana McKay Pavlos Msaouel Sumanta K. Pal, MD, FASCO Brian Shuch, MD David Braun Katie Coleman IKCC Kidney Cancer

Lisao87 Thanks Cancer! I used to feel the same, it was one of the most conflicting emotions I’ve ever felt. I was unbelievably happy and excited for them, then afterwards was left with the painful reminder of a milestone I’d likely never reach.

Realizing it can signify different milestones for…

2 years ago today I received the news that due to the blood shortage, a life saving surgery for me may have to be canceled. In an unfamiliarity city, an army of strangers drove in over 70 units that week to make it wasn’t.

I think of those beautiful humans at least once a week🩸

This episode is a bit more causal than other episodes we’ve recorded. Would love to hear from any listeners which you prefer.

NIH bound, scans tomorrow 🤞

Katie Coleman I like it- but a hit long? Let others share (some people like that) very nice also

We’ve added a new resource for #Chromophobe #kidneycancer . Everything from high level summaries to in depth reviews. The institutions studying it to the cell lines available

This is a very new resource and still evolving but let us know what you think
medresourceconnect.com

In a group chat, talking about food while fasting and waiting for scans. Torture. But while we’re at it, what type of cuisine should I go for afterwards?

Susan Waiting is the hardest part. Wishing the best for his results as well 🤞

I just discovered this feature, so in case it’s helpful for others - if you tap the video the … will take you to playback speed.

*This video also deserve context of the fact I’ve been on active surveillance for the past 2 years (minus some ablations) - that certainly helps…

Julie Johnson Let’s do it!! Soon as I branch it out, we’ll put sarcoma on the top of the list

First time trying out Twitter long format videos. We’ll see how this goes.

Living life 3 months at a time after a stage IV cancer dx made me ridiculously productive (coping mechanism).

In this video, I share both the successes and failures that’s brought over the past 2 years.…

Cecilia (Cece) Lyra, Agent Happy Birthday!! 🎉🎉
I have a memoir coming your way soon 😊 (just finished my first draft)

I’m doing this!

youtu.be/cepUz29tqEI

How do you feel about long format videos on Twitter (in general)?

We have this one member who’s skipped every box for 9 years—we still like him though.

Caroline Coleman I’m so glad it’s been helpful and thank you for the feedback! It means a lot.

Katie Colorectal Cancer Alliance Thanks Cancer! I would love to set up some time to chat to better understand your interests Katie Coleman and then I can make some specific suggestions

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Understanding cancer survival rates.

Hank Green thank you for making these topics so much more approachable for others 👏