Rare Disease Day
@rarediseaseday
29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
ID:19982434
http://www.rarediseaseday.org 03-02-2009 16:44:43
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We are looking to partner with a creative agency to develop and produce our visual materials for the 2025-2028 #RareDiseaseDay campaigns.
The deadline for submitting tenders is Friday 3 May 2024.
👉 download2.rarediseaseday.org/2025/Rare-Dise…
Did you take part in #RareDiseaseDay 2024? We want to hear from you! 📣
We want to know your thoughts on how we can grow the campaign for 2025. What went well? What could be better next year?
Fill out our survey 📝 before 1 April 👉 form.jotform.com/240503292874356
#ShareYourColours
The #RareDiseaseDay colours 💙💚💜 shone brightly on 29 February 2024!
With the #LightUpForRare initiative, we advocated for the 300 million people living with a rare disease.
Today, we look back at a selection of captured illuminations that joined our Global Chain of Lights ✨
Your incredible support for Rare dazzled us! 🌟 Through our Global Chain of Lights, you illuminated awareness about rare diseases, lighting up the world. Stay tuned for a video featuring highlights from the #LightUpForRare campaign! Together, we make a difference! #RareDiseaseDay
☝️Gracias a la tecnología y las redes sociales, las personas afectadas por enfermedades raras están encontrando y formando comunidades de apoyo, compartiendo experiencias, conocimientos y esperanza. 📱💻
🔔29 de febrero, Día Mundial de Enfermedades Raras 2024.💜
#SOSporlasRaras
Hoy conmemoramos el #DiaMundialEnfermedadesRaras
Un día para hablar, crear conciencia y apoyar a los pacientes y familias que viven y han vivido alguna de las más de 7000 enfermedades raras.
Visita sanfilippocolombia.org
#raredisaseday #raredisease #RareDiseases
We had such a fun and meaningful #RareDiseaseDay with you all! From the TODAY Show Plaza in the morning to seeing the Empire State Building #LightUpForRare at night, rare was on display everywhere today!
#ShowYourStripes #NYC
29 de fevereiro é um dia raro e o Dia Mundial da Doenças Raras. Junte-se a nós e faça parte da campanha para assinalar esta efeméride.
Partilhe o vídeo!
#RDPortugal #DoençasRaras #DiaMundialDasDoençasRaras #RareDiseaseDay
💡The Screen4Care partners (and their mascots 🦓) are excited to #LightUpForRare and wish everyone a happy #RareDiseaseDay !
#Screen4Care #NBS
February 29 is #RareDiseaseDay - an opportunity to shine a light on diseases that many may never have heard of - conditions often hard to treat for various reasons including cost.
Here's one such story from Nottingham University Hospitals in the UK - of a little girl with #AngelmanSyndrome .
Mapping Rare is going live! For #RareDiseaseDay2024 , visit our website to learn about the the achievements of our rare disease community: rarediseasesinternational.org/mappingrare/
The visible challenges facing those living with rare diseases are the tip of the iceberg.
Let’s not settle for skimming the surface. It's time to #ActRare2024 , dive deep, and emerge with solutions for a brighter future.
🏊 Dive into our policy demands: eurordis.org/actrare2024/
The Philippines joins #LightUpForRare in celebration of Rare Disease Day and National Rare Disease Week #NRDW2024 #CareForRarePH
February 29 is #RareDiseaseDay
Thank you National Parks Development Committee National Museum of the Philippines UP Manila for joining the global chain of lights! Maraming salamat po!
Today's the day! We are thrilled to officially launch the Canadian Rare Disease Network (CRDN) on #RareDiseaseDay . Together, we will make a difference for ALL rare disease patients across Canada. 🚀 #CRDNLaunch #RareLivesSharedStrength #Canada4Rare #RareDiseaseDay
🎙️ Discover Leif's journey with GNE Myopathy on #RareOnAirStories . From diagnosis in Switzerland to resilience in adversity, Hear his story of perseverance.
Tune in: rarediseaseday.org/heroes/leifs-s…
#RareDiseaseDay
