erinreyn 🪷(@notterinreyn) 's Twitter Profile Photo

May is NF Awareness Month 🩵

As someone who struggles with NF1, I want to help spread awareness!

On May 17th, I will be doing a 24 hour charity stream for Nerve Tumours UK, which includes our Shine a Light event 💚

Shine a light on NF !

May is NF Awareness Month 🩵

As someone who struggles with NF1, I want to help spread awareness!

On May 17th, I will be doing a 24 hour charity stream for Nerve Tumours UK, which includes our Shine a Light event 💚

Shine a light on NF !
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Neurofibromatosis Network(@nfnetwork) 's Twitter Profile Photo

Happy NF Awareness Month! 🎉
We have all kinds of great things in store!

Go here to see how you can participate: nfnetwork.org/fundraising/nf…

1 -SWN awareness network

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Marie Alghamdi, MSc.(@ghamdiah88) 's Twitter Profile Photo

راح انبه الاشخاص والاهالي الي عندهم اطفال في جسمهم وحمات متعددة.
مؤخراً اشتغلنا على مشروع بحثي عن المرضى المشخصين ب Neurofibromatosis 1 (NF1)
ويعتبر من الامراض الي تتسبب بالوفاة المبكرة واورام خطيرة بسبب التخيص المتأخر.
طبعاً ممكن تلاحظون في اجسامكم او اجسام اطفالكم مثل هذه…

راح انبه الاشخاص والاهالي الي عندهم اطفال في جسمهم وحمات متعددة.
مؤخراً اشتغلنا على مشروع بحثي عن المرضى المشخصين ب Neurofibromatosis 1 (NF1)
ويعتبر من الامراض الي تتسبب بالوفاة المبكرة واورام خطيرة بسبب التخيص المتأخر.
طبعاً ممكن تلاحظون في اجسامكم او اجسام اطفالكم مثل هذه…
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🚂🅰🆄🆁🤍🅽🅵🪐🆂🅰🆃🆄🆁(@aurryaur_nf) 's Twitter Profile Photo

หลังจากที่เจฟเดินไปแล้ว
NF1 : เด๋วๆๆตรงนี้มันนนท์แฟมรึป่าว?
NF2 : ใช่ๆๆๆๆ
NF1 : เมื่อกี้ไม่ใช่เมนคุณน่ะ
NF ALL : เราเป็นนนท์แฟมวันเสาร์ค่ะ
(สามารถมอบตัวได้ที่สน.ไหนคะ🤣)


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薬剤師P(やくP)~ブログ始めました~(@yakuzaishi_p) 's Twitter Profile Photo

✅輸液の勉強シリーズ

『ビーフリードとエルネオパの違いは?』

・投与経路
・構成栄養素と組成
・浸透圧比
など一覧にしてみました📝

ちなみにビーフリードは、
ビタミンB1も入ってますが少量です💦
ビーフリード1L:ビタミンB1 1.92g
エルネオパNF1号 1L:ビタミンB1 3.0g…

✅輸液の勉強シリーズ

『ビーフリードとエルネオパの違いは?』

・投与経路
・構成栄養素と組成
・浸透圧比
など一覧にしてみました📝

ちなみにビーフリードは、
ビタミンB1も入ってますが少量です💦
ビーフリード1L:ビタミンB1 1.92g
エルネオパNF1号 1L:ビタミンB1 3.0g…
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Journal of Neurological Surgery (JNLS)(@JNLSReports) 's Twitter Profile Photo


🧠Read this rare case report about a NF1 patient with a giant thrombotic aneurysm and rapid progression of visual disturbance by M.Kobayashi, et al. !

thieme-connect.de/products/ejour…

#OpenAccessSunday
🧠Read this rare case report about a NF1 patient with a giant thrombotic aneurysm and rapid progression of visual disturbance by M.Kobayashi, et al. !

thieme-connect.de/products/ejour…

#jnlsreports #skullbase #aneurysm #NF1 #visualdisturbance #neurosurgery
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EDEN Study(@UoM_edenstudy) 's Twitter Profile Photo

Call for expectant parents with NF1 in the UK!
Please get in touch with us if you meet the following criteria:
-You or your partner have NF1
-You or your partner is pregnant
-You are living in the UK
Please feel free to ask if you have any questions.

Call for expectant parents with NF1 in the UK!
Please get in touch with us if you meet the following criteria:
-You or your partner have NF1
-You or your partner is pregnant
-You are living in the UK
Please feel free to ask if you have any questions.
#nf1 #IVF #PGT #pregnancy
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Beths Bumpy Journey(@BethsNFjourney) 's Twitter Profile Photo

1st May means 1st day of Neurofibromatosis awareness Month.
Hello my name is Beth I have NF1. I have been living with this for 17 years now. I was 14 when I was diagnosed with NF1 after a brain tumour I am now almost 32 years old

1st May means 1st day of Neurofibromatosis awareness Month. 
Hello my name is Beth I have NF1. I have been living with this for 17 years now. I was 14 when I was diagnosed with NF1 after a brain tumour I am now almost 32 years old
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i.vesga(@ivvesga) 's Twitter Profile Photo

Scott C. Howard Café au lait spots and limb deformities point towards either Albright syndrome or NF1

The skin spots don’t seem like the usual “coast of main” pattern and I see no signs of breast development, however the legs seem most compatible with Albright than with NF1 🤔

@schowardjd Café au lait spots and limb deformities point towards either Albright syndrome or NF1

The skin spots don’t seem like the usual “coast of main” pattern and I see no signs of breast development, however the legs seem most compatible with Albright than with NF1 🤔
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Aarushi Jain(@aarushijain_) 's Twitter Profile Photo

Excited to attend my first in Denver next week and to present my poster featuring glioma development and management in NF1 patients. Can’t wait to meet everyone! American Academy of Neurology

Excited to attend my first #AANAM in Denver next week and to present my poster featuring glioma development and management in NF1 patients. Can’t wait to meet everyone!  @AANmember
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Kaitlyn(@Keekeebooks) 's Twitter Profile Photo

Babies with disabilities and birth defects deserve to be born. I have nf1 which i talked about on here a couple of times basically causes tumors to grow on your nerves they usually not cancerous. 👇

Babies with disabilities and birth defects deserve to be born. I have nf1 which i talked about on here a couple of times basically causes tumors to grow on your nerves they usually not cancerous. 👇
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Ezhil(@EEzhilME) 's Twitter Profile Photo

Modern Health Lisch nodules are melanocytic hamartomas of the iris, often associated with neurofibromatosis (NF) I. They are usually elevated and tan in appearance. Their incidence in NF1 increases with age and their prevalence raises by about 10% per year of life, up to age 9.

@modernHealthMe Lisch nodules are melanocytic hamartomas of the iris, often associated with neurofibromatosis (NF) I. They are usually elevated and tan in appearance. Their incidence in NF1 increases with age and their prevalence raises by about 10% per year of life, up to age 9.
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株式会社ルパルナス(@leparnassSA) 's Twitter Profile Photo

ぶっ飛んでる〜❗️
農場や雪深い村向け
完全マニア向け車輌
スウェーデン陸軍の為に作った
1979
ボルボBV202 NF1 バンドヴァグナ
2,351 km ガソリン
995万円

ぶっ飛んでる〜❗️
農場や雪深い村向け
完全マニア向け車輌
スウェーデン陸軍の為に作った
1979 
ボルボBV202 NF1 バンドヴァグナ
2,351 km ガソリン
995万円
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