Excellent work and collaboration between Haematology and Urology looking after this highly prevelent and devastating problem in men with #SickleCell . Great to see the network expanding to look after our SE London population and beyond.
Stuart Orkin featured TIME magazine's #TIME100 . His pioneering work in understanding how key genes are regulated has led to #genetherapy in #SickleCell , giving patients the hope of cure. But so much more needs to be done to make these therapies available to all who need it
Please share! #sicklecell literature for the kiddos and the grown ups taking care of them!
Fantastic talk by Dr Michael DeBaun on 'The curative therapy for sickle cell disease: The good, the bad and the future'!!
pubmed.ncbi.nlm.nih.gov/38493482/
#REIWeek2024 Children's National Hospital 🏥 Vanderbilt School of Medicine #SickleCell Disease #SickleCell #TenRedefined
Today we launched the joint #haematology / #urology clinic King's College NHS for #SickleCell & #priapism .
Brilliant to learn from #haematology #DrDeKreuk in this setting & offer MDT care with 100% attendance rate today!
KCH_Urology
king’s Andrology
Maj Shabbir #DrKesse -Adu
Join our monthly Community-Wide #SickleCell #EmpowermentCircle , with Dr. Rashida.
A dedicated #safespace where the #sicklecell community comes together to share stories, challenges & triumphs.
👨🏾💻bit.ly/sicklecellmn-s…
#JoinTheCircle
#SickleCell Circle #SickleCell MN
Thank you to the staff at HCC_UCLH UCLH for an amazing early birthday surprise
It is truly appreciated by me, 'Calvin,' and all at RED CELLS R US ❣
Please give blood and save more lives, like Calvin and others at Give Blood NHS 🩸🩹 NHS Blood+Transplant
#SickleCell #InOurBlood #birthday
Amazing work from Cheryl Stucky on #SickleCell and #FabryDisease . Much more people is Australia them than I realised. Also, great to hear about the posters in only 90 secs! #AusPainSoc Australian Pain Soc
Try being a #ChronicPain or #Cancer or #SickleCell
#IPP #CPP #Walgreens not only refuse to fill our prescriptions they turn your dr into the #DEA because pharmacies ARE TURNING STATES EVIDENCE TO HELP WITH THEIR OWN LAWSUITS
ITS DISGUSTING now #SuicideDue2Pain IS SKYROCKETING!!
We are just one month away from Marc Thomas Day, and we are eagerly anticipating celebrating our founder with you. Please join us for a wonderful time with the sickle cell community as we honor the legacy of Marc Thomas. #MarcThomas #SickleCell #SickleCell Community #Celebration
Joining forces with the Rotary Clubs from #Stratford & #CanaryWharf , @givebloodnhs,@sicklecelluk & Westfield Stratford City for a HUGE #BloodDonation , #thalassaemia & #sicklecell awareness event on May 11th!!!
We have blood donation 15 spots available for the day - contact us!
Great kick off to the #LOS2024 Cancer Congress with the talks from Dr. Chancellor Donald on CRISPR advances in #sicklecell treatment, and Dr. Karine Tawagi diving into the latest trends in #bladdercancer . 👏🏻
Transition from childhood to adulthood is very difficult for people with chronic disease especially #sicklecell .
In countries with comprehensive treatment centers for SCD, usually the ball gets dropped when patients turn 18yrs,due to arbitrary cut off for patients to be seen by
The cure for #sicklecell disease and other devastating genetic diseases is around the corner. However it will likely cost millions per patient.
Podcast does a great job introducing some of the economic and ethical considerations and solutions.
open.spotify.com/episode/7KyEIS…
This is how they treat #SickleCell #Cancer #ChronicPain #IPP #CPP PATIENTS COMMUNITY!!!!!
#ChronicPain #SickleCell #Cancer #IPP #CPP patients are NOW FORCED TO THE STREETS because DRs NO LONGER TREAT PAIN!!!
YOU can go to 100 drs for pain medicine & YOU WOULD BE LUCKY if EVEN 1 of them helped you & EVEN THAT PROBABLY WOULDNT HAPPEN!!!!
#OpioidHysteria #SuicideDue2Pain