Delighted that the poster abstract that I submitted ranked Top Ten out of over 170 submissions at #ECRD2024 ! Huge thanks to EURORDIS-Rare Diseases Europe for highlighting #HealthcareTransition for #RareDiseases 💫 A wonderful conference with fruitful discussion from start to finish! 💫
Our #CareCoordination webinar is happening this week! Will you be joining us? Hear from the work that our colleagues from EURORDIS-Rare Diseases Europe, Children's Health Ireland and Genetic Alliance UK are doing to improve how care is coordinated across services for families living with #RareDiseases 💫
En ce 29 février, #JIMR2024 Journée Internationale des Maladies Rares, j'apporte tout mon soutien aux malades, aux chercheurs et aux associations, AFM-Téléthon, EURORDIS-Rare Diseases Europe et Alliance maladies rares, engagées dans la lutte contre ce fléau qui touche 3 millions de nos compatriotes.
We have a really exciting webinar coming up next month on #CareCoordination for #RareDisease ✨ An excellent line-up planned! All to be revealed during the week 🤫 Save the date! EURORDIS-Rare Diseases Europe Genetic Alliance UK 22Q11 Ireland Dr Suja Somanadhan Prof AJ McKnight ✨ Registration link to follow 🧬☔️
EURORDIS-Rare Diseases Europe #SLC6A1 some day.... 😉
Institut de Recerca Sant Pau Sant Pau - Campus Salut Barcelona Epilepsia Transversal GeneticaSantPau Plataforma Malalties Minoritàries FEDER | Enfermedades Raras #ArthursQuestCharity #VZWGenBe Susana Boronat Dra. Alba Tristán-Noguero Ángel Aledo-Serrano D'Genes Asoc. de ER Rocio calvo medina Neurociències Vall d'Hebron
📣We are calling on policymakers to #ActRare2024 ! But what drives this call to action?
Meet Reinhard Pell! Read the full article to learn more about how the campaign’s calls could benefit families in Europe living with rare diseases.
👉go.eurordis.org/m8en5j
Did you hear?! 👂
This is your chance submit the patient advocates, patient organisations, policymakers, scientists, companies, and more who are going above and beyond for our community for the #EURORDISAwards2025 !
Start nominating! 🔗 go.eurordis.org/cz7ZK6
Delighted to be at the EURORDIS-Rare Diseases Europe #ECRD24 . If you are joining us in Brussels, pop down to my poster to chat #HealthcareTransition or visit my online toolbox! ✨
Have you heard about the Rare Barometer Study and the HCare Study? Jessie Dubief and Rita Franciso EURORDIS-Rare Diseases Europe are sharing the study deatils at the RAiN webinar live now! University College Dublin Queen's University Belfast 🎓 Rare Diseases Ireland RARE Ireland
We're asking everyone to sign this open letter - tell Europe 🇪🇺 that we want joined up thinking across Europe to help address the needs of people living with rare diseases Stephen Donnelly Department of Health Billy Kelleher MEP Pádraig O'Sullivan TD RARE Ireland Rare Disease Clinical Trial Network, Ireland
It’s been a pleasure to present our HTx Project funded work on the use of #CausalInference for #TargetTrialEmulation methods at ANSM and EURORDIS-Rare Diseases Europe yesterday. The Centre for Health Economics University of York
Care -Coordination, what is it? Wesley Mulcahy Children's Health Ireland is explaining the concept in detail 22Q11 Ireland Rare Diseases Ireland RARE Ireland EURORDIS-Rare Diseases Europe University College Dublin QUB Public Health
🎓 Opportunity for young graduates eager to continue towards a #PhD : #FrancescaMartiniAward for an Experimental Thesis in #Oncohematology ! 🌟🔬 Deadline: 20/08/2024.
Learn more ➡️ nanaets.org/en/research/re…
uniamomalattierare EURORDIS-Rare Diseases Europe Biostella s.r.l. #scientists
Solidarity For Brazil! This week our precious RED LATINOAMERICANA DE GENÉTICA HUMANA-RELAGH meeting on #genomics #rarediseases and #rarecancers is saddened by pain and death 🙏🙏🏽🙏🏼🙏🏾 Medical College of Wisconsin Rare Cancer Research Foundation + Pattern.org Rare Disease Advisor RarasNoInvisibles EURORDIS-Rare Diseases Europe MCW Global Ignacio Zarante Palau & Hoenicka IPER-Lab Harmony 4 Hope #BrazilFloods
Partecipiamo al seminario SIBBM a Trento, 17-19 giugno, per consegnare il premio Francesca Martini al Migliore Poster in ricerca oncologica. 🧬
➡️ Scopri i vincitori passati: nanaets.org/ricerca/premi-…
#ricercaoncologica #premioscientifico uniamomalattierare EURORDIS-Rare Diseases Europe #scicomm
Excited to announce the next speakers for our upcoming #CareCoordination webinar, Dr. Rita Francisco and Dr. Jessie Dubief from EURORDIS-Rare Diseases Europe, who will be speaking about the Rare Barometer Programme and H-Care project for Rare Diseases.
Register here: ucd-ie.zoom.us/webinar/regist…… ✨🧬
