🧠☕Have you ever seen more productive and ReCONNETting coffee breaks?💡💡💡 Yes, all togethERN we can do it at ERN ReCONNET 🇪🇺 Plenary Meeting in Brussels - 22/24 April 2023😀 #ERNReCONNET23 #healthcare EU Health - #HealthUnion HaDEA #ernreconnet #sharecarecure

🔔📢 An important message from our Coordinator:. ERN ReCONNET is a system and a crucial infrastructure 🏢🏥🏬 at ERN ReCONNET Plenary Meeting in Brussels - 22/24 April 2023 #ERNReCONNET23 #healthcare EU Health - #HealthUnion HaDEA #ernreconnet #sharecarecure

And now, ladies and gentlemen, let me introduce our Coordinator and our Network Manager talking about of the ERN ReCONNET 'SYSTEM' at ERN ReCONNET Plenary Meeting in Brussels - 22/24 April 2023 #ERNReCONNET23 #healthcare EU Health - #HealthUnion HaDEA #ernreconnet #sharecarecure

♥️😍♥️ here with #patients , the ERN ReCONNET 🇪🇺 ePAGs 🇪🇺 Ilaria Galetti 🇸🇩 Sue Farrington Silvia Aguilera ➕ #ERNReCONNET PM Diana Marinello

✅ Thank you Reumatología Clinic & José A. Gómez Puerta for the kind invitation to talk about relapsing #polychondritis this morning! 👍
Hospital Clínic
@ERNReCONNET

Almost in Milan for #EULAR2023 ! 🇮🇹
Thanks to ERN ReCONNET 🇪🇺 for giving me a bursary and making it possible 😍
#ERNReCONNET #ERNReCONNET fellowships #ERNReCONNET atEULAR #rarediseases #ERNs #ShareCareCure

💚💙💗 ERN ReCONNET 🇪🇺 #RareDisease awareness month
📢 today we announce the #ERNReCONNET 2⃣0⃣2⃣4⃣ #webinar calendar!
🗞️Newsletter has just been released with:
🆕Upcoming episode, registrations are all open
🎞️Recorded webinars are all freely available
🔗 bit.ly/3T4Yo9V

✅ #FATIGUE & #Lupus
@ERNReCONNET 👍
youtu.be/7jc7SiP5BsA

Please beg these lovely humans to find me and guide my treatment plans with me! My new PCP diagnosed me within one visit based on my extreme fitting of this.

Now my trachea is collapsing, nose saddled, SPO2 is 75%. I have the rare neuropy. I see rheum Monday! #rpc #@ERNReCONNET

📢 new ERN ReCONNET 🇪🇺 #webinar in #MCTD 👏
When? June 2️⃣8️⃣th
What time? 🕓 4pm CEST
🖋 registration is open!
#rarediseases #education #hcp #mds #clinicalresearch #ernreconnet

💚💙💗ERN ReCONNET 🇪🇺 #RareDisease Awareness Month
🤩 #ERNReCONNET is glad to share the 8th World #Scleroderma Congress that will be held on March 14- 16 in Prague (Czech Republic).
🎯Hands-on workshops, lectures n much more
ℹ️ Program n Registration:
🔗 bit.ly/3I6D4dP

📣 #DYK that ERN ReCONNET 🇪🇺 has opened a🆕 #socialmedia account to reach more people n increase its impact?
🤩 Join us on 'at Threads' to stay always updated with the good news about #ERNs n #ERNReCONNET
🔗 threads.net/@ernreconnet

Silvia Aguilera SAF España ERN ReCONNET 🇪🇺 .Marta Mosca, Coordinator of ERN ReCONNET 🇪🇺 , opens the session on knowledge with Clinical Practice Guidelines on Rare Diseases.

Marta Mosca, coordinadora de #ERN ReCONNET , abre la sesión sobre conocimiento con Directrices de práctica clínica en EERR.

#EUAction4Rare #ERN

Happy to be here… let’s do it for the benefits of patients 🫶
Felice di essere qui. Felice di essere qui e poter fare qualcosa in “piccolo” per aiutare i pazienti rari.
#ernreconnet #wecare

ERN ReCONNET 🇪🇺 Silvia Aguilera Savino Sciascia European Commission EJP RD - European Joint Programme on Rare Diseases EUScience&Innovation🇪🇺 SAF España Tg2 Beacon for Rare Diseases European Patients' Forum APS Foundation of America European Health Parliament Foresight in Rare Disease Policy I will be there!! 🥳

#ERNReCONNET #RareDiseases #APS #AntiphospholipidSyndrome

❤️ SAF España 🇪🇸
#SAF #SíndromeAntifosfolípido

#ERNReConnet

ERN ReCONNET 🇪🇺 Congresso SIR 🇪🇺 Ilaria Galetti 🇸🇩 Diana Marinello Super mitiche 🇪🇺 Ilaria Galetti 🇸🇩 e Diana Marinello 😊🩷 #ernreconnet

🩺
ERN ReCONNET 🇪🇺
National Hub info n contents are available! Check them out n reach out for Qs 📷 Brochures can be downloaded for free n in 9 different languages bit.ly/45BmPQp 📷bit.ly/45Bpo4d #ERNs #ERNReCONNET

Sabéis qué es la ERN ReCONNET 🇪🇺 ? Las ERN son las redes europeas de referencia de alguna enfermedad, y en este caso 🔬📷 #ERNReCONNET es la red europea de referencia de las enfermedades raras y complejas del tejido conectivo , entre ellas el #EhlersDanlos