Please vote

Why aren’t other organizations calling The ALS Association wrong for blocking those they serve? I think others should be condemning it.

It's ridiculous that pALS have to spend time keeping those who claim to "support" HR.7071 transparent, but we do. And it will continue The ALS Association @alstexas @alsagoldenwest @ALSFlorida ALS Upstate New York @ALSAMA @ALSphiladelphia #ALS #ENDALS CNN Health MORE: facebook.com/groups/NOMOREE…

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You’re a bunch of hypocrites. If our voices mattered you wouldn’t block & ignore people with #ALS who ask the tough questions. You only respond to #PALS who are famous in some way while ignoring the rest of us.

TRUTH-BOMB

marketwatch.com/story/als-pati…

Bonus time. WTH?

Ah, ALS. Today, it's showing how #ALS pharma pays #ENDALS doctors for "entertainment". (Or stuff). Now, every MAY is now officially "ALS TRANSPARENCY MONTH" @ No More Excuses ALS Watchdogs on FB. Please join your pALS and become 100% woke. (You know you want to). Hell, I do.👨‍🦼=💸

If #ALS Assn had used a FRACTION of that $115M in #IceBucket $ to fund 30 people in an #ExpandedAccess program for #NurOwn... & even if "only" 35% responded, there would have been 10 more people to prove to the FDA that #NurOwnWorks #IceBucketFail #DyingWaiting #DrugsinBodies

Caitlin Bellina speaking truth to power. The The ALS Association has failed ALS patients and we'd be better off without it. tweedthoughts.com/2021/04/13/als…

1. The ALS Association Will you do a salary match and donate the same amount to the Healey #ExpandedAccess program as you pay in salaries... $10.678 Million? People are #DyingWaiting for #DrugsinBodies giving.massgeneral.org/donate/healey-…

For those saying everyone in #ALS should work together, I'll work with The ALS Association when it: ▪ spends more $ on research than salaries ▪ provides EAP $ for #DrugsinBodies ▪ advocates for promising drugs like NurOwn ▪ prioritizes my 29 yr old daughter's life over lake homes

Why does The ALS Association in the fancy offices and high 6 figure salaries not want Nurown approved? Maybe I answered my own question.

#ALS can happen to anyone at any age. Congress MUST hold #ALShearings to demand U.S. FDA FIX ALS NOW, before more die. #ALS #NoMoreDead Dr. Janet Woodcock Secretary Xavier Becerra President Donald J. Trump Vice President JD Vance Senator Patty Murray Assistant Secretary for Health Richard Burr Rep. Frank Pallone CathyMcMorrisRodgers @RepAnnaEshoo Brett Guthrie Senator Chris Coons

This👇👇👇👇

Honestly, I'm running out of time. My body , my breathing, my will to live, is shutting down. I wonder how much I would have progressed if I had #Nurowrn from the beginning. U.S. FDA Dr. Janet Woodcock because of you , I will never know.#drugsinbodies