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@RepAnnaEshoo, Jamie fought for #Nurown. She saw UNPRECEDENTED benefits in #ALS➡️100% progressive/fatal SINCE 1869 Dr. Robert M. Califf & CONGRESS, FDA Biologics ALS regulatory RIGIDITY left Jamie & tens of 1000s to die WITHOUT HOPE for years. CONGRESS, dying ALS/future diagnosed NEED

ALL patients we know received #ALS #NurOwn on the docket saw improvements in how they feel and function. FDA Biologics has sided with U.S. FDA endorsed, failed scoring methods while on the public record dismissing real patient improvements in 100% fatal disease. Yet you say it’s an

We presented two posters on the Target ALS Natural History Study and Multicenter Human Postmortem Tissue Core at the Annual NEALS Consortium Meeting. These efforts provide scientists with critical tools and datasets to further #ALS research (1/3)

ALS stinks.

I’m glad to hear there continues to be a path forward for #NurOwn for #ALS but 2 hours notice for an 8:30am meeting is amateur.

Remembering JamieRoseBerryy today. The sorrow is heavy for those we have lost and for those who fight the #ALS battle today. My heart hurts for the children and families left behind to mourn their loss. When will we go from terminal to chronic in ALS?

I urge @senrandpaul to support #ALSVeterans and their families by cosponsoring and passing the Justice for ALS Veterans Act (H.R.3790/S.1590) bit.ly/JusticeforALSV… #ALSAdvocacy

I urge Thomas Massie to support #ALSVeterans and their families by cosponsoring and passing the Justice for ALS Veterans Act (H.R.3790/S.1590) bit.ly/JusticeforALSV… #ALSAdvocacy

Thank you Sandra Abrevaya and Brian Wallach for speaking at the senate hearing about the Promising Pathway Act. You did great. #NurOwnNow

Sharing an opportunity to help an amazing family ♥️ ♥️ Fundraiser by Maceo Carter : Help Maceo get on the Move! gofund.me/07ccb52c

“What are the odds that everybody will know somebody that has #ALS” asked the scientist of the mathematician. “It’s guaranteed” the mathematician responded to the scientist. This is why we fight to #ENDALS 🕯️

Ben Stiller and Christine Taylor Honor Friend Who Died of 'Devastating' ALS: 'We All Were So Shocked By What Happened to Her' people.com/ben-stiller-ch… via People

No shame in my game! Anything to put a smile on their faces! Making memories with family, there’s nothing better! #HappyHalloween2023 #ALS #FightLikeAGirl #MakingMemories #Yoshi

I urge @mcconnellpress to support #ALSVeterans and their families by cosponsoring and passing the Justice for ALS Veterans Act (H.R.3790/S.1590) bit.ly/JusticeforALSV… #ALSAdvocacy

I urge @senrandpaul to support #ALSVeterans and their families by cosponsoring and passing the Justice for ALS Veterans Act (H.R.3790/S.1590) bit.ly/JusticeforALSV… #ALSAdvocacy

Welcome to Indiana, Charlie Becker ‼️ #IUFB | Charlie Becker

Cincinnati millionaire leaves world's largest-ever gift for ALS local12.com/news/local/cin…