
Sonya Chowdhury
@sonyachowdhury
Chief Executive, @actionforme and Board Director, @curo_group. All tweets and views expressed are personal & don’t reflect the views of Action for M.E./Curo
ID: 320375469
http://www.actionforme.org.uk 19-06-2011 20:07:26
6,6K Tweet
2,2K Followers
494 Following

Tom Kindlon
@tomkindlon
With ME 36 years (30 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs
Kat Lay
@katlay
Global health correspondent at The Guardian
Sajid Javid
@sajidjavid
Rt Hon Sir Sajid Javid | Partner, Centricus Partners LLP | Former Chancellor of the Exchequer
James Melville 🚜
@jamesmelville
Made in Fife. 🏴 Communications and Sponsorship consultant. Campaigner, commentator and pundit. [email protected] @NoFarmsNoFoods 🚜
Y Not Festival ⚡
@ynotfestival
Join us for the Peaks' biggest party! 🎉⛰️🎸 31st Jul - 3rd Aug 2025 #summeriscoming
Action for ME
@actionforme
This account is no longer actively managed.
Peter W 🇺🇦
@mediumwhite
Europhile 🏳️🌈, lived in 🇬🇧🇮🇹🇨🇼🇧🇪 🇧🇩. Dedicated follower of science. Former textile engineer, now a Mgmt consultant. I believe in believing people.
Danny.
@dannyjred

IoD
@the_iod
The UK's largest membership organisation for business leaders.
This Feeling
@this_feeling
“The best club for future Rock and Roll stars” Noel Gallagher / “If you're going to see a new great band you'll see them at This Feeling first” Carl Barat
Solve ME/CFS Initiative
@plzsolvecfs
Making ME/CFS, Long Covid & associated conditions widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid Donate @ ow.ly/jQji50Srbuv
Bhupesh K Prusty
@bhupeshprusty
A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
ME Association
@meassociation
We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RPs do not necessarily mean endorsement.
Jane McMullen
@jane_mcmullen
2x Emmy nominated filmmaker & journalist for @BBC - The Day California Burned | Escape from Dubai | China’s Covid Secrets | Big Oil v The World
Angela Rayner
@angelarayner
Deputy Prime Minister of the United Kingdom. Secretary of State for Housing, Communities and Local Government. MP for Ashton-under-Lyne.
kathryn samson
@kathrynsamsonc4
Scotland Correspondent for @Channel4News
Frances Ryan
@drfrancesryan
Guardian journalist. Commentator of the Year 2024. Author of Who Wants Normal? (pre-order) and Crippled (out now). E: [email protected]
Helen McArdle
@hmcardleht
Former Health Correspondent at Herald. Specialist Reporter of the Year 2022, Scottish Press Awards. Obsessed with cats, movies, podcasts, and pizza
Dr Ben Marsh 💙
@bendymarsh
Neurodisability Paediatrician educating re Post viral syndromes #MECFS pwME #LongCovid @PSPforMECFS @DoctorsWithME ExeterChiefs & LFC fan. Ravenclaw. Views mine
Paul Whitaker
@drpaulwhitaker
Respiratory Consultant @BTHFT, TB, lung infections, bronchiectasis, and drug allergy.
Sayoni Das
@sayoni03
VP of Bioinformatics @precisionlifeAI. Postdoc @CATH_Gene3D, PhD @UCL.
Emma Penney
@emmapnny
journalist based in Amman • prev @BBCRadio4 • en/fr/عربي • she/her
Rob Appleyard
@rob_appleyard
Alderman of both Bath & North East Somerset & The city of Bath. Fmr Mayor of Bath #795 2022/23 . Experienced NED. Married to One in a Million Amanda 🍎
Ruth Lampard
@ruth_lampard
Looking out for blessings & wrestling them. Chaplain with AfME Healthcare: views my own. Living w ME & LongCovid. Virtual Pilgrim. Fan of rewilding, life too.
Lawrence Hayes
@drlawrencehayes
Lecturer in Physiology @LancasterMedSch. Interests: Exercise, ageing, dementia, long COVID, ME/CFS, and mobile health
davidtuller
@davidtuller1
Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Luci Reeves
@nanacuratoo
Mom & a Granma Protect our planet…be the best you can be…
Open Medicine Foundation
@openmedf
OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS, Long COVID, and related diseases.
Emily Burt
@emilypburt
Editor @ThirdSector / formerly @PeopleMgt / Co-Founder @FumbleUK / Other words @Campaignmag, @Work_Magazine, @StuffTV / she/her 🏳️🌈
Simmaron Research
@redefiningmecfs
Official Twitter account for Simmaron Research, a non-profit scientifically redefining ME/CFS. Visit our site to learn more.
Lizzy H
@hopefullizzy
30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Michael VanElzakker
@mbvanelzakker
Neuroscience researcher @MGHMartinos / @HarvardMed and @PolyBioRF, researching #MEcfs, #LongCOVID, & #PTSD. (all opinions are my own)
Mark Bonnar
@mark_bonnar
Virus with shoes. Patron of @heartresearchuk @thefrasercentre @turgwetrust
Jennie Jacques
@jenniejacques1
avid reader 📚 lover of science 🧪 🧬 actress 🎭 & writer ✍️ #disabilityswareness 🌻 #mecfs 💙 @bake4mecfs
David Strain
@docstrain
Clinical Academic working with older adults, diabetes and sarcopenia. Affiliations with @ActionforME @BMA_Academics @ExeterMed
PrecisionLife - follow @precisionlife.bsky.social
@precisionlifeai
PrecisionLife is the clinical-stage precision medicine company for complex chronic diseases. Creating better, more personalized treatment options for patients.
shiner_sam
@shiner_sam
New music champion 🎶 | band tee enthusiast
#MEAction Network
@meactnet
A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing linktr.ee/meactnet
PoTS UK
@ukpots
A charity passionate about supporting those with Postural Tachycardia Syndrome; raising funds to provide information, education, research, awareness & advocacy.
Janet Dafoe
@janetdafoe
Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Joshua Stokes
@joshuastokesitv
Isle of Man Reporter @GranadaReports | RTS Emerging Talent 2024 | Self-shooter | Drone Pilot | @ITVNews | @SolentUni Alumni | Email: [email protected]
Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇮🇳🇬🇧#pwLC
@doctorasadkhan
Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Oonagh Cousins
@oonagh_cousins
Communications and Fundraising at @long_covid #ThereForME campaign team. 'Anti-Recovery Activist' oonaghcousins.bsky.social
Jesus Castro, Ph.D.
@jcastro_marrero
PhD senior researcher in the Rheumatology Division (Research Unit in ME/CFS and Long COVID) @VHIR_ at Vall d'Hebron University Hospital Campus @vallhebron
Dame Alwen Williams
@a_williamsnhs
Strategic Advisor. All tweets are my personal views.
kate bath 💙
@kate_bath
GP. Parent. I care for people and the environment.
Alex Moore
@alexmoo22833837
Front man of the Lathums
Physios For ME
@physiosforme
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Martin
@pausedme
#MECFS⎮#Lawyer by profession | #Musician by passion | PERSONAL ACCOUNT |
DecodeME the ME/CFS Study
@decodemestudy
The world's largest study ever into #MEcfs. #pwME [email protected] - 0800 196 8664 #DecodeMEStudy #pwME #MillionsMissing
Kate Gerrand
@gerrandkate
Working on health protection research, @DHSCgovuk, @NIHRresearch. Previously @UKHSA and @LSHTM. 🇦🇺 🇮🇹 🇬🇧 she/her. My views only.
Becky Holmes hates spinach
@deathtospinach
I only date celebs (inc. Keanu, Brad, Neeson, Jagger & Prince William), brave US peacekeeping soldiers in Syria or oil rig workers. First book out now 🎉
European ME Coalition (EMEC)
@emec_advocacy
Advocacy organization for ME/CFS patients and their carers in Europe
Long Covid Advocacy 💙
@longcovidadvoc
📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne 🛍️ longcovidadvoc.shop
Knut Endre Berentzen
@knut_berentzen
Subsea consultant, supports Focus on ME, interested in ME awareness & research, biomedical research funding, people, adventure motorcycle riding, music...
Steve Vince
@stevevince14

THE K'S
@theksuk
Pre Order “Pretty On The Internet” Now!! 🩷🖤
Lucy Chappell
@lucychappell2
Chief Scientific Adviser @DHSCgovuk. CEO @NIHRresearch. Obstetrics @KingsCollegeLon & NHS Dr. Working to change lives through health & social care research.
Mike Skinner
@mikeskinnerltd
THE DARKER THE SHADOW THE BRIGHTER THE LIGHT. The new album, out now.
Science for ME online forum
@s4me_info
We are an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us.
Sten Helmfrid 🇺🇦
@stenhelmfrid
Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Natalie Owen
@drnatalieowen
Civil servant - Head of NIHR Research Infrastructure, DHSC.
Sian L
@siangotme
Advocate with @WorldMEAlliance & @DecodeMEstudy. ME since 2013. Lover of birds, spreadsheets, and graphic design. || She/her