Thank you Jeff Fortenberry. No cancer drug helps all patients. Some cancers are still largely untreatable. Does that mean we deprive those who might be helped of any chance? or that we stop working for cures for all in the meantime? Of course not. Dr. Jill Biden President Donald J. Trump #ALSMoonshot

50.000 #als patients in Europe 30.000 in USA and 500.000 wordwide without any efficient treatment! 100% FATAL #alstreatmentsnow #nurown #amx0035 Dr. Janet Woodcock FDA Biologics Joe Biden Vice President JD Vance Ursula von der Leyen Stella Kyriakides EU Medicines Agency Boris Johnson #Als #MND #ELA #SLA #RareDiseaseDay

Let's PLEASE clarify! What Dr. Janet Woodcock and FDA Biologics say about #NUROWN is just wrong. I can assure you: if you are dying from #ALS while personally seeing MULTIPLE patients receive HALTED progression from the exact same trial you are in, THIS IS 100% "SIGNIFICANT" IN EVERY WAY.

Let’s see.... Option A) Just die Option B) Try a treatment that has a 35% chance of helping. This is a hard one....seriously, even an 8 year old gets it! To quote her, “So why can’t you just let ‘em?!??” #endALS #imamom #RareDiseaseDay President Donald J. Trump First Lady Melania Trump BrainStorm FDA Biologics

Before you kick off your weekend we have one ask of you. Sign. this. petition. bit.ly/3rhrLpo Why? Because telling ALS patients to go home and get their affairs in order is simply not acceptable.

This cutie is talking to you, Dr. Janet Woodcock. Please at least offer an explanation for why you shut down #NurOwn and as a result, also slowed or halted the path forward for future working #ALS treatments. It's not too late to take it back and do the right thing.

Can someone please explain to me why the FDA Drug Information Dr. Janet Woodcock are not taking into consideration Matt Bellina improvement on #NurOwn? tweedthoughts.com/2021/03/05/bra…

If you haven’t signed this yet, please take a moment to do so and then share for others to do the same. Thank you in advance for making the world a better place. The ALS community.

Want to take 2 minutes and help ALS patients? Sign the petition 👇

What say you Dr. Janet Woodcock ?

3 years ago this week I was DX with ALS. Today I started to use a tablet to talk, I have a rollator to walk,my wife dress me and I could have imagined I would be at this point It is amazing what you can endure when you have no choice We need to end this nightmare Dr. Janet Woodcock

I now consider FDA Biologics Dr. Janet Woodcock to be murderers for ignoring the ALS community and withholding possible lifesaving treatments! Patients with a 💯% terminal illness are denied because #Nurown only works in 35% of pALS. Cruel & inhumane treatment I AM ALS No More Excuses ALS Watchdogs!

500.000 people are dying,1 every 90 min. And you don't do nothing? #ALS #MND #ELA #SLA need same access to investigational drugs as people who have common,well-funded diseases. therapies cannot be stuck in research silos! 100% lethality! EU Medicines Agency Stella Kyriakides Ursula von der Leyen

Biogen Wouldn't it help your breaking hearts if you saved a significant number of pALS by providing easy access to your therapy? No More Excuses ALS Watchdogs! ALS Action Canada I AM ALS

Any legitimate patient advocate organization would advocate for all patients (not block them) & would advocate for ALL Drugs. People w #ALS want #DrugsinBodies NOW. They didn't do Walks & #IceBucketChallenge to have ALSA refuse to help their #pALS get #ExpandedAccess to drugs

Dr. Janet Woodcock If you're commited to protecting the health of Americans why withhold #Nurown ? Pals are dying every 90 minutes while waiting for drugs! This is infuriating! It makes NO SENSE! 😡

Lisa's team has now done more for ALS' FAILED DRUG ACCESS problem in weeks than The ALS Association has in YEARS. Don't expect ALSA to join the fight; doing so would pressure it's 💰 SPONSOR Biogen. So many pALS (and others) are finally witnessing how "ALS defeatism" works. #ALS NME

Meg Tirrell Thank you for pulling the veil back on ALS. We have a group Shifted Pixels on Facebook fighting for treatments. Nurown BrainStorm is the treatment. This story must be told. Help us Pete Najarian No More Excuses ALS Watchdogs! Sean Mino STAT

I'm 34yrs W/#ALS A disease that is 100% fatal every time. Why wouldn't U.S. FDA give us #NurOwn that has a potential to help 35% of participants, isn't this a no Brainer? There is no other options. Dr. Janet Woodcock FDA Biologics I just want to raise my young children. Please help the US