Bernadette Sheehan Gilroy
@sheehangilroy
Lecturer Researcher Advocate
#PKU #LowProtein #BrainHealth #RareDisease
"Ní neart go cur le chéile"
The views and opinions expressed here are solely my own
ID: 921374435281694720
20-10-2017 13:55:58
5,5K Tweet
1,1K Followers
4,4K Following
Pauline O'Connor
@poconnor
Author & Advocate. Subscribe for updates, as not here often. Books #TheRedHatStories #LivingWithPKU #LivingWithMildBrainInjury #RareDisease #BrainInjury #PKU
Nick Baker
@nbaker
Director, Office of Open Learning & instructor @UWindsor. A work in progress. Exploring open spaces, technology, accessibility, teaching & learning.
Chris Riches
@chrismriches
@Daily_Express NW Correspondent, CF & PKU Campaigner, 2019 British Press Awards🏆& 2020 British Journalism Awards Campaign Journalist of the Year 🏆. ❤️Spurs
Gary Brennan
@gary86
Assistant professor School of Biomolecular and Biomedical Science, University College Dublin. Molecular mechanisms of epilepsy development. he/him/his 🏳️🌈
Tom Tolkien
@tomtolkien
Editor of @schoolreading and @k12readinglist. Avid snapper. I don't monitor DMs. #kidlit | #booktwitter
Małgorzata Henek
@ma_henek
Boardmember of ESPKU. PKU Patient & Advocate. Wspieram chorych na Fenyloketonurię. Interesuję się zdrowiem i polityką społeczną. Loves: ski jumping + 📖 🎶📺🚗✈
Clair W 🧡
@clairbear42
Ginger #PKU Adult & Mumma. She/Her. Blogger.👩💻🍓 Expert on films, ice cream, cats and tea. 🎮🌜#ADHD 🏳️🌈
Sarah Marshall
@mrssjmarshall
Health Research Charities Ireland - HRCI
@hrcireland
National umbrella org supporting 45+ charities active in health, medical & social care research. Also run the Irish Health Research Forum. Charity No. 20052973
Prof Helen L. Fisher
@helenlfisher
Professor of Developmental Psychopathology at IoPPN, KCL. Researching biopsychosocial & environmental risk & protective factors for young people's mental health
PKU_Greg
@brewcrewgreg
Kate Learoyd
@pkufamily
Mum, charity trustee, ask awkward questions, trying to cope with this icky platform: support @NSPKU for better future for #RareDisease #pku, tweeting own views
NPKUA
@npkua_info
The mission of the National PKU Alliance is to improve the lives of individuals with PKU and pursue a cure.
Niamh Fitzpatrick
@nfitzpsychology
Psychologist: •Grief •Mental Health •Performance. || Author: Tell Me The Truth About Loss. || Former: •Agony Aunt Today FM •Irish Olympic Team Psychologist.
NSPKU
@nspku
The NSPKU exists to help and support people with PKU, their families and carers. It was formed in 1973, see nspku.org
Anita MacDonald
@macdonj
All tweets discuss low protein foods to help children on low protein diets. All views are my own.
Promin Metabolics
@prominmetabolic
Family run company supplying low protein foods and meal solutions for people with #PKU
22Q11 Ireland
@22q11_ireland
Parent group raising awareness of #22q Working toward integrated care for 22qDS & individually rare collectively common #RareDiseases. Tweets AnneL CHY 17647
DFI
@disabilityfed
National support organisation for voluntary #disability groups. RT is not necessarily an endorsement. Also at bit.ly/2TekkzO and bit.ly/3jfMjK4
Dr Suja Somanadhan
@sujas15
Associate Dean for Global Engagement | Associate Professor I Researcher| #UCD #FulbrightScholar |Paediatrics I PhD I RCN|#RareDiseases #RAIN Views are my own
Chloë Ormerod
@ormerodchloe
jakub
@jakubrudnic
ESPKU
@official_espku
Official Account of the European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria
Jessica Brown
@jess_brown10
Lorna
@lornakerin
Passionate about the power of participatory research to improve health research, service provision & clinical outcomes. Own views.
Cmckenna
@mckennagenetics
Clinical Geneticist. Ex-paediatrician. Views are my own.
Effie Parks
@onceuponagene
Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
Kerry Longmore
@longmorekerry
Hannah Wilson
@hannahjewilson
👩🏻⚕️PhD - StAR Research Lecturer @RCSI_SWaT📍Royal College of Surgeons in Ireland 📗 ECR EdBoard @jadvnursing 🧘🏻♂️ Yogi
Sebile Kılavuz
@klavuzsebile
Alvaro Hermida
@info_rares
Specialist on Metabolic Diseases and always looking on the bright side of life.
Fred Doherty
@fred17842988
Tsipi.B
@tsipib
אמא , עורכת דין, קצינה במיל. , אוהבת ללמוד , מתעניינת במדע אקטואליה וכו
CCNEIreland
@ccneireland
Centre of Children’s Nurse Education (based at Children’s Health Ireland) for education, training and development of Nurses and other health care professionals.
Selin
@selinka_l
Resident, bookworm ,grumpy
Caddick
@caddick40023484
Natalia Duda
@natduda_
PhD candidate in Psychology at @tcddublin @AdvanceCrt | Researching invisible illnesses and poorly understood syndromes | MSc Applied Psych; BA Psych | 🐈⬛
Melody Buckley
@melodyb77905028
Angela Carey
@angelacarey26
Interests: Quality patient care, improved patient experience, supporting staff, supports for young adults with intellectual disability. Opinions posted my own!
Mayra Gallegos Rivas
@mayragallegosr3
Miguel A Pavlovsky MD
@pavlovsky_mig
Lymphoma and CLL - Buenos Aires, Argentina .
Lucy Crowe
@lucy_crowe15
Lecturer at Munster Technological University (Kerry) in EU Policy & Law, Irish Law, French, Dissertation supervision Ed.D candidate DCU IOE. Views my own.
Rachel Martin
@fussireland
Children & young adults with disabilities in Ireland are facing long waitlists/no services/no support. Time to rally. #letsmakeafuss
Bridget Moran
@bridget24061081
Doctor 🩺 | 🇮🇪 | Interested in ophthalmology, ocular genetics and medical research | she/her |
23_light ui/UX
@walter_mrap
UI designer/graphic designer @PENstrap.com for more Artist/ songwriter/ musician audiomack.com/walter_mrap999…
Inward Companion - Inner Child Healing Journal
@inwardcompanion
🌟 Healing the past that’s holding you back 📒 Guided journaling for inner child work ☀️ Transformative self-discovery tools 👇 Grab Your Journal Now
JamieBertie
@q1a8od7cyj51t
Jacqueline Yvonne Gallegos
@jazzeeejaxxx
MTUResearchToImpact
@mturesearchirl
Munster Technological University Research News @MTU_ie #MTUResearchToImpact #EUinmyregion MTU Registered Charity No. 20206029 mtu.ie/policies
Jeremia Coumans
@coumansjeremia
Healthy lifestyle
Adrianko1200
@adrianko1200
Myrna Bishop
@7tnuieor6m4p0
現在、アルバイトの募集をしています。勤務時間:30~90分。日給7,000円～50,000円！ ✨ すぐお金になる副業 今直ぐ即金で稼ぐ事が出来る在宅ワークになります🌈 副業相談LINE追加:【line.me/ti/p/qv4T-W_W9e】
Kais
@kais39976215411
Rare Disease Research Network (RDRN)
@the_rdrn
A new, inclusive, online hub facilitating patient-initiated #raredisease research. #NIHR funded, co-created by the rare disease community, #CamRARE & #PLRH.
Nairteybl
@nairteybl6qdnm
bitebright
@bitebright95660
Claire Thomson
@clairethom3142
Solace Nutrition
@solacenutrition
Safe, reliable, and effective nutrition formulas that help individuals with unique metabolic nutritional needs and chronic diseases.
Poppy Six
@poppysix559333
Dotodear
@dotodear5qj
dmad8
@dmad8280063
RDA
@vertetpleinair
Young farmer. Passionate about rare breeds, regenerative farming, chemical free farming, healthy meat and quality soil. A healthier world!!
Timeman
@timvhac
Bertha
@ellisbertha15
Blygrir
@blygrirw3y
𝔸𝕝𝕖𝕩𝕚𝕤 𝕄𝕒𝕣𝕥𝕚𝕟
@mrs_martin_2012
Wife, mum to an 16 year old with phenylketonuria (PKU), new dog mum, ELCE in Clacks
kashif chaudary
@kashifch3762
Suzanne Crowe
@itsthatgirlsuzi
Doctor, mostly for children. She/Her. AssProfUCD, Med Council President. NSAC. Trustee LGBT Ire, Cheshire Ire. Opinions mine @itsthatgirlsuzi.bsky.social
Martin Pratt
@acamh_ceo
CEO @ACAMH multidisciplinary body at forefront of evidence-based child & adolescent mental health.
Caroline Graham
@carolinepku
Mum, Designer, Artist, NSPKU volunteer, 3 kids 2 with #PKU all views my own