Scott LaPointe (@scottlapointe) 's Twitter Profile
Scott LaPointe

@scottlapointe

Husband, Father and ALS warrior #teamlapointeforthewin

ID: 76512232

calendar_today23-09-2009 01:01:41

469 Tweet

180 Followers

598 Following

elsie johnson (@elsiejo22955940) 's Twitter Profile Photo

FDA PROTEST JUNE 12TH tweets got hundreds of impressions but almost no engagements. Why don't people care😞pALS should want this day to b epic & others should care- this can easily b u or a loved one tomorrow. I feel so..empty, hard to keep fighting..but failure is not an option

elsie johnson (@elsiejo22955940) 's Twitter Profile Photo

Corey Polen 🧑🏽‍🦼 Promising Pathway Act Brian Wallach Steve Gleason - "Live Impossible" Pete Frates Peaceful Paws Angelina Fanous Mark bedwell AlS Tom Ford Sandy Morris The ALS Association Hey pALS/Avengers can I ask that you rt/promote FDA PROTEST JUNE 12TH tweets or create ur own. I recognize some being cautious w/ur image but styles aside come on man we r in this together & 2 win WE need this day to a revolution TOGETHER WE WILL MAKE HISTORY ALONE WE WILL DIE

Brian Wallach (@bsw5020) 's Twitter Profile Photo

Life is all about priorities. U.S. FDA, we know you got a lot going on. BUT it seems obvious to prioritize saving lives. That’s why we want the ALS Trial Guidance We ask for a timeline. You gave one. Then you blew it off. Now we take our fight public. #ReleaseTheGuidanceNow

Scott LaPointe (@scottlapointe) 's Twitter Profile Photo

May is ALS awareness month why the hell doesn’t the MLB recognize / advocate for a cure like the NFL does with breast cancer? #EndALS

Scott LaPointe (@scottlapointe) 's Twitter Profile Photo

Day 32 of ALS awareness month. Some believe it ended yesterday. I along with thousands of others still have it. Awareness doesn’t stop because we turned a page on a calendar. We stop when there’s a cure. #IamALS

Scott LaPointe (@scottlapointe) 's Twitter Profile Photo

Having ALS means having so many shitty things you loose. HOWEVER, I now receive sponge baths from my wife every day, which isn’t all that bad. 😉 #lookingforthepositive #iamals #EndALS

Brian Wallach (@bsw5020) 's Twitter Profile Photo

It’s been 28,503 days since Lou Gehrig died. Since then we won WWII, discovered AND cured HIV, declared that love is love and that racism and sexism will not be tolerated. But we haven’t fucking cured ALS. By year end the I AM ALS army will surpass 28,503 and we will #EndALS

I AM ALS (@iamalsorg) 's Twitter Profile Photo

15 pALS and cALS wrote a letter to the FDA to hold them accountable for the long overdue ALS guidance document. When we hand deliver this letter we want your name on it. This is all of our fight. Make your voice heard. Read the letter and sign it here: iamalsorg.typeform.com/to/EYs4oV