Rivka
@rivkatweets
Activist/Organizer: ChronicIllness, disability, ME/CFS, Lyme, LongCovid, women | Writer: WashPost, MarieClaire, NPR, Ms, Newsweek | Playwright: Many productions
ID: 1563543554
02-07-2013 16:12:44
16,16K Tweet
3,3K Followers
1,1K Following
Ezra 👹
@ahhrrr
RIP this account. find me at ezra.zone
Tom Kindlon
@tomkindlon
With ME 36 years (30 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs
Heather Booth
@hboothgo
Social change organizer. Progressive issue and electoral campaign strategist. Member of @DemPartners . Founder of JANE and @MidwestAcad . #VoteBlue
Senator Chris Van Hollen
@chrisvanhollen
U.S. Senator for Maryland
Ziyad Al-Aly, MD
@zalaly
Physician-Scientist | TIME100 Health time.com/6966812/ziyad-… Profile: outlook.wustl.edu/real-world-ref…
Jay Edelson
@jayedelson
Plaintiff's lawyer. NYT: tinyurl.com/49r93mkc. Cases resulted in over $4b in settlements/verdicts as lead counsel & $45b in total. RT≠endorsements
Morgan J. Freeman
@mjfree
Proud Girl Dad, TV Producer, Filmmaker, Vedic Meditation Practitioner, Human Rights & Racial Justice Advocate, Abolitionist. And I don't act! 😆
Tony West
@tonywest
Father, husband and “Pop-pop” | 17th Associate Attorney General of the United States | Views expressed are my own
Tim Walz
@tim_walz
Dad, husband, teacher, coach, veteran. 41st Governor of Minnesota. Official account: @GovTimWalz
Bhupesh K Prusty
@bhupeshprusty
A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Keith Olbermann
@keitholbermann
This account now exists only to promote the Countdown with Keith Olbermann podcast dropping Monday and Thursday AM, plus bulletins. Replies will not be read.
Rebecca Davis O'Brien
@rebeccadobrien
Reporter for The New York Times, covering labor.
Hannah Davis
@ahandvanish
Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Shannon Watts
@shannonrwatts
Author, FIRED UP, coming June 2025 / Speaker, organizer, founder emerita, @MomsDemand / Boardmember, @emergeamerica
Randa Slim
@rmslim
Lebanese-American; Non-Resident Fellow @SAISHopkins FPI @FPI_SAIS. These views are my own.
Mark Hamill
@markhamill
Believe in yourself! Work hard, never give up & anything's possible! OR: Kick back, relax & aim low: You'll never be disappointed...😜 I IGNORE ALL DMs!
Anil van der Zee ©
@anilvanderzee
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #IACC #art2cureME #pwme #millionsmissing
Dan Wyke 🦠➡️🧠🔥
@dan_wyke
M.E. inactivist, person-centred counsellor (see link), recovering poet (Rack & Waterloo Press)
Harry Sisson
@harryjsisson
22 | Democrat | @harryjsisson (1 million+) on Tik Tok | Email: [email protected]
Kristen Stieffel 👊🏻🇺🇦
@kristenstieffel
Author • Editor • Instructor | Stories for Readers and Lessons for Writers at Patreon.com/KristenStieffel | spoutible.com/KristenStieffel
Richelle Sepulveda
@really_richelle
Former Psych instructor. Like a magpie, in that I gather weird facts, though, not shiny bits. She/her, I think? Allergic to garlic 😭.
NowThis Impact
@nowthisimpact
Follow us on Bluesky bsky.app/profile/nowthi… Contact us at [email protected]
davidtuller
@davidtuller1
Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Katy B
@katybruce108
Myalgic Encephalomyelitis ME + POTS 38 years Donor to the @mecfsbiobank for 10 years & @DecodeMEstudy Please watch dialogues-mecfs.co.uk/videos/ #pwME
Michael Osterholm
@mtosterholm
Director @CIDRAP New episodes of our podcast on the latest infectious disease threats: cidrap.umn.edu/osterholm-upda… BlueSky: bsky.app/pr
rob wijbenga
@ludiekje
Naomi A W
@naomiandersonw
Library assistant, copy-editor/proofreader, writer. #longhaulers #researchlongcovid #firstwave
BrooklynDad_Defiant!☮️
@mmpadellan
Proud papa. Perpetually pissed. #BlueWave2026, #Feminist. Subscribe to DEFIANT Dispatches: bit.ly/DEFIANTSub 👉Sr. Advisor, @ReallyAmerican1👈
Justin_Struble
@justin_struble
"Disobedience is the true foundation of liberty. The obedient must be slaves." ~Henry David Thoreau
#MEAction Network
@meactnet
A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing linktr.ee/meactnet
Janet Dafoe
@janetdafoe
Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Putrino Lab
@putrinolab
We make people (and technology) better at Mount Sinai. Opinions are my own.
Naomi Harvey PhD #WearAMask
@naomi_d_harvey
Zoologist. She/her. 23yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ naomidharvey.bsky.social
Dr. Akilah Cadet, MPH
@changecadet
Founder+CEO of Change Cadet | Strategy + Leadership Dev | @Forbes #Next1000 | Author @hachetteus | Disabled | 🇭🇹 Partner+Owner @oaklandrootssc @oaklandsoulsc
Sharone Lifschitz
@lifschitz_sha
Help! my father Oded Lifshitz is held hostage in Gaza! British Israeli Film Maker/ Academic.
Kamala HQ
@kamalahq
Providing context.
ME/CFS News
@mecfsnews
News, interesting information and commentary on ME/CFS. Mostly inactive these days.
Jonas R. Kunst (@kunstjonas.bsky.social)
@kunstjonas
Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Editor @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
Billy Hanlon
@bhanlon15
ME/CFS | Long COVID | IACC
S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic
@dysclinic
Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Elke Asen
@elkeasen
Previously: MSc in Economics Student @LSEEcon & tax policy analyst @taxfoundation | Life on Pause since Dec ‘21 due to #LongCovid/#MECFS
Martin
@pausedme
#MECFS⎮#Lawyer by profession | #Musician by passion | PERSONAL ACCOUNT |
Whitney Dafoe
@dafoewhitney
Severe ME/CFS patient and advocate. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊ Useful info for ME/CFS and Long Covid patients in bio link.
We Make The Future Action
@wmtfaction
The future is what we do together. #WeMakeTheFuture
charlos
@loscharlos
😎🌁🎷 #LongCovid March 2020 😵💫
Blackdisabledlivesmatter
@blackdisabledl2
We are an organization fight for black disabled lives at all time
MarshFamilySongs
@marshsongs
Singing family who make original & funny/parody songs & vids since going viral in 2020. Social links & support us on Patreon: linktr.ee/marshfamilyson…
Omer Bartov عومر بَرتوف עמר ברטוב
@bartov_omer
Professor of Holocaust and Genocide Studies at Brown University currently writing on the Holocaust, Europe’s eastern borderlands, and Israel-Palestine
Manuel Ruiz
@manruipa
🔬Diving deep into #MECFS, #LongCOVID, #LongEBV & post-vaccine syndrome research. 🦠Dual role:Researcher and EBV ME/CFS patient. Seeking answers. #Antivirals
K
@taraandtitli
Long Covid.
claudia ✨
@desert_claudia
you’re back outside, but they still lied
MEinSeattle
@emmydugas
🧑💻 #Healthcare 👩⚕️ #HousingCrisis 🏠 #JusticeReform🧑⚖️ #LeftandRightUnite 🤝#UnitetoFight 🥊#MECFS 🩺 #Covid 🦠#LongCovid 🐦#BirdFlu
Neurologist Mom
@neurologistmom
A neurologist, M.D., mother of a 16-year-old with #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains.
dianna haze
@diannahaze
Tweeting through the hazy brain fog of Severe Long Covid. (Chronically ill alter-ego of @thephysicsgirl)
#NotJustFatigue
@njfatigue
We are a 501(c)(3) sounding the alarm on ME/CFS through digestible, creative content. This is #NotJustFatigue. Donate today👇
CoRE at Mount Sinai
@coresinai
We advance treatment and knowledge of Long COVID, Tick and Vector-Borne Illnesses, ME/CFS, and hypermobility spectrum disorders.
Julie Sullivan
@curelongcovid
Program Manager of The Covid Recovery Center at Brigham and Women’s Hospital in Boston MA. Opinions are my own. Here to advocate and educate (she/her) 💕
LongCOVIDCampaign
@lccampaign
Nonpartisan & patient-focused, Long COVID Campaign (LCC) works for accelerated research, affordable treatment & expanded support in the U.S. & globally.
@JohnVsJonVsME
@johnvsjonvsme
#JohnVsJonVsME campaign to get Oliver and/or Stewart to bring the awful history of #MyalgicEncephalomyelitis #GreatestMEdicalScandal to light. Same on IG/BSky
Monique Susanna
@msusanna51425
Gwen Walz
@gwenwalz
Mom, wife to Governor @Tim_Walz, educator, criminal justice advocate, First Lady of Minnesota.
Selin Lab
@selinlab
We study immune dysregulation in ME/CFS, Long Covid, and infection-associated chronic illness. Opinions are our own.
Christoph Ströck
@cstroeckw
Soon, people will look back in disbelief at what has happened to patients with #MECFS | Godspeed 🙇🏼
AdImpact Politics
@adimpact_pol
Tracking political ads in real-time with the world's most comprehensive ad library 📺 adimpact.com/blogs/ AdImpact is not associated with ads shared.
Himmat
@himmatb15
Writer and editor. Life derailed by Long Covid/vaccine injury. Very severe and fully bedbound. ME/CFS | hEDS | POTS
Bea is Chronically Persisting✨
@be_kinderr
Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Ryan Saadi, CEO, Tevogen Bio ($TVGN @nasdaq)
@ceo_tevogen_bio
Founder & CEO, Tevogen Bio. T cell, Biopharma Executive ~ 32 Years, Epidemiology, Health Economics & Policy, Inventor, Author, AI in Biotech, Social Justice.
Julia Métraux
@metraux_julia
@MotherJones reporter covering disability • she/her • Say hello: [email protected] • On here for research only
Dr Katharine Seton
@katharine_seton
ME researcher. Chair of the European ME Research Group for early career researchers (@YoungEmerg). All views are my own.
Giovanni G. Clarke
@giovannigclarke
Molecular Genetics UVM’25 Undergraduate recovering from Post-viral illness. Science is cool when discussions are welcomed.