What good is yet another Neurodegenerative breakthrough if, like Tregs, Cuatsm & Nurown Patients can't get it ?. Some other prize to rot on a shelf while pALS die !. What bit of WE NEED ACCESS to the CURRENT Amazing treatments NOW !!...do governments not hear ?..$$ FUND TREATMENT

It is inhumane that there is a treatment #nurown that can help us,even if it is not a cure, we cannot all receive it NOW. BrainStorm C Lebovits Mary Kay Turner Ralph Kern David setboun EU Medicines Agency European Commission European Parliament Stella Kyriakides Ursula von der Leyen U.S. FDA President Donald J. Trump Dr. Stephen M. Hahn

UK looks dead in the water GL to EU with Nurown.

Any pALS tried clenbuterol ?

Hope to get Nurown ?. P2 excluded pals who could not lie flat to get BMA or Nurown jab. P3 excluded users of NIV & those with feeding tubes Realistically, does that suggest above will be excluded once Nurown is approved. Is there likely to be FDA rules around this ?. Views ?

Rich It all comes down to whether a patient can safely undergo bone marrow aspiration. Bothe general and local has been used in trial.

Do you hear us EC ?

Have any pALS had a BMA or Nurown / placebo injection from any of the trials without having to lie flat ?. Thanks

The Ph. 3 trial may not have met a clinical endpoint but there WILL be a reason. NurOwn didn't "flunk" for ALS, it works best for patients with >-35 ALSFRS. PALS will wait for final biomarker data and SUPPORT NUROWN until the data says not to The ALS Association #ALS #ALSdatahomerun

World-leading #MND researchers in the UK are closer than ever to discovering treatments. To enable a breakthrough, MND Association, MND Scotland & My Name'5 Doddie Foundation are launching #United2EndMND to call on Gov't to urgently increase its funding. Share our graphic below to spread the word.

I hate ALS. But not as much as I hate the people in control of saying ...YES!!!...for the live of God let's try to save these people. Pay attention Ms Sturgeon !...we are in limbo. Scotland needs Nurown. That's new legislation NOW !.

Alas, after a valiant effort, my ALSFRS has crashed to 16 from 35 (July 2019 when I was diagnosed). My needs are now 24/7, the dangers I face are 24/7. So, hospice here I come. I hope to reintroduce Tudca, taurine, CQ10 etc back into my diet. Finally, some respite for Jeanette

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