Petição | Via Verde para Pacientes de ELA peticaopublica.com/?pi=ViaVerdedo… #peticaopublica #peticao via Petição Pública

Graceful.

Há quase 200 anos que esta doença mata e para a qual não existe cura. Porque não existe urgência em salvar estas Vidas?

WORLD FIGHT AGAINST ALS There is safety evidence reported from Phase 2 of the trial of this treatment called Nurown! There is evidence of non-evolution / improvement results, reported by patients, publicly recognized! For all who cannot wait! It may hapen to any of us!

#NurownWorld #NurOwnEurope #NurOwnPortugal Wy not ? How many more lifes will lose their hope without trying?

No one deserves to suffer with ALS!It can be treated with NurOwn! Please give us hope lives #NurownEurope Mary Kay Turner C Lebovits David setboun Ralph Kern BrainStorm EU Medicines Agency European Commission European Parliament Matthias Groote Ursula von der Leyen Stella Kyriakides EU One Health

I lost my father, I am losing my brother. You that can make the diference please, decide now.

I lost my father and I am losing my brother. YOU that can make the diference, please give us hope!

Please!

O direito a lutar pela vida está aqui refletido. Se o tratamento em ensaio fase 3 mantiver o atual tempo expetavel ate a aprovação ainda muitos de nossos queridos familiares e amigos não terão acesso ao tratamento.

Every day we know the new numbers of covid 19! May we ask for the real numbers of dying pALS? And the ones who dyied till now? When you look in the eyes of a pALS, that see all his life going away in a year you will understand the meaning of getting urgency in a fase 3 trial.

Please make it possible. There are so many lifes can t wait one year.

Los enfermos de ELA necessitan de un cambio. PALS need a change. Human rights care is follow this steps with urgency!

My brother has 47 years old, and one year now with ALS. He can t feed him self at this point. Please don t lose time, what if you where in his feet?

My brother has 47 years old, and one year now with ALS. He can t feed him self at this point. Please don t lose time, what if you where in his feet?

In response to the results of the #AMX0035 phase 2 trial published today, I AM ALS and The ALS Association launched a petition urging Amylyx and U.S. FDA to get the drug to market as soon as possible. Sign today: bit.ly/31TIaWN

There was a first person to beat cancer. There was a first person successfully treated for AIDS. There was a person who didn’t lose their life from Hep C. There will be the first person to live with #ALS. It’s our time. Give us #nurown from BrainStorm

European Authorities are all alerted and waiting for the first move from BrainStorm C Lebovits David setboun Mary Kay Turner Ralph Kern Anthony P Waclawski EU Medicines Agency DK Medicines Agency HPRA Läkemedelsverket Bundesinstitut für Arzneimittel u. Medizinprodukte AIFA ANSM College ter Beoordeling van Geneesmiddelen (CBG) INFARMED, I. P. AEMPS #nurown #nurowneurope #endals

#ALS.Approval and world production. BrainStorm EU Medicines Agency U.S. FDA C Lebovits Ralph Kern Mary Kay Turner @CatalentPharma European Commission Ursula von der Leyen Pascal Canfin Joe Biden

Hoje foi apresentada a #peticaonurown na Assembleia da República:Obrigada pela forma como nos receberam e demonstraram interesse nas terapêuticas inovadoras para #ELA Claudia Bento António Maló de Abreu Helga Correia PSD Joao Dias PCP Anabela Rodrigues Cristina Jesus psocialista