
PNH Support
@pnhsupport
Now at BlueSky:
@pnhsupport.bsky.social. Paroxysmal nocturnal haemoglobinuria (PNH) - PNH Support is a registered CIO (no. 1161518) supporting patients.
ID: 3334988513
http://www.pnhuk.org 19-06-2015 15:37:41
1,1K Tweet
470 Followers
540 Following

kerensarose
@kerensarose

Louise Arnold
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@unitedadvocacy
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Enjoy strategizing problem-solving in Healthcare using analytical power. Views are on my own…
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The European Patients' Academy on Therapeutic Innovation is an independent, non-profit organisation committed to patient engagement through patient education.
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@brummendorf
Professor Arzt Onkologe Hämatologe Krebs- und Leukämieforscher Wissenschaft Medizin @UniklinikAachen @RWTH ! #CIOABCD Meine Meinungen sind privater Natur
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@salvadorpayan
Hematologist specialized in #anemia and other red blood cell and #iron metabolism disorders. Hospital U. Virgen del Rocío. 🏳️🌈 #SCD #PBM
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@smbenlazar
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@harmonyneteu
Public-Private Partnership for #BigData in #Hematology| Funded by the Innovative Health Initiative (former IMI) | HARMONY 2017-2023 | HARMONY PLUS 2020-2024.
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@ernithaca
European Reference Network on congenital malformations and rare intellectual disability (ERN-ITHACA).
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@acuteleuk
The Global acute #leukemia #PatientAdvocacy network. Improving #AML #ALL #APL outcomes, awareness & experience #WorldLeukemiaDay #BeLeukemiaAware #ALANsummit
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@beneitez_david
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@jeangaston3

Hillary McKibbin
@startwithhills
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@karenma71478186
Loving mother of two CF daughters who have had double lung transplants. Grateful for medical science. Carleton Journalism grad. Star Trek fanatic. Writer.
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@pnhindia
PNH India Patient Advocacy Group
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@cancer_nurses
Cancer Nursing Today delivers the latest in cancer news and published literature, providing cancer nurses access to curated topics.
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@canaemianetwork
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#HelloMyNameIsDavid
@davidnwrn
Clinical Haematology Charge Nurse at MYTT 🏳️🌈 All views are my own.
DC Action
@dc_action
UK #charity focused on improving the understanding & treatment of #DyskeratosisCongenita, focusing on #Advocacy, Education & Support.
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champs
@kejr35778464
champs ist eine Aktion um Pädiater auf die seltene Erkrankung "Mukopolysaccharidose" (MPS) aufmerksam zu machen.
行川
@zhijie_lin

QLifeペイシェントアクセスチーム【公式】
@qlifepat
株式会社QLife qlife.jp|希少疾患の当事者・ご家族へ、お役立ち情報をお届け|ペイシェントアクセスチームNote note.com/pa_raredisease |アメブロ ameblo.jp/pat-qlife/ |お問合せ✉:[email protected]
sophie wintrich
@sophiewintrich
Patient advocate since 2007 Reconnecting after burnout Look after yourselves & each other Personal page on #nhslove #PPI #advocacy #haematology #mentalhealth
Leigh Funston
@funstonleigh

merakoi
@merakoi_ag
Bridging the gap between patients and healthcare companies, thanks to merakoi’s global network of patients 🙌 #PatientExperience #PatientsIncluded #AskPatients
Sonia Owchariw 🇺🇸🇺🇦 Editor/Journalist/Blogger
@soniaredcarpet
Betrayed by: Johns Hopkins/NYU Langone; Alexion Pharmaceuticals; AAMDS; PNH #Soliris #BurnedByBrodsky #DangerAssessment #NightmareNeumann #MedicalGaslighting
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Versiti Blood Research Institute
@versitiresearch
Blood research investigators sharing science. Views our own. @Versiti @MedicalCollege
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Hämatologie und Stammzelltransplantation, UK-Essen
@hamatologieuk
Impressum URL: uni-essen-haematologie.de/impressum/