How can sensory processing difficulties impact upon behaviour? Here's the links between sensory hyperreactivity and anxiety. Download our full Sensory Processing Guide: buff.ly/2DNX1s8

📢 #ResearchAssistant Job Alert 📢 New exciting opportunity to work with Dr Georgie Agar in the IHN, looking at at ‘safe sleeping spaces’ for children with intellectual disability 😴 22 months full time in clinical research - please share jobs.aston.ac.uk/Vacancy.aspx?r…

We are collaborating with University of Leeds on research that seeks to better understand the extent to which parents of disabled children experience trauma as a result of navigating the various social welfare and education systems. buff.ly/3A5GnBy

Check out our the innovation centre's latest adaptation! 🚗✨ They have redesigned a remote control car for a young boy who previously struggled with the controls. It's now a simpler, more accessible design, and we can't wait to see it in use!

Our Innovation Centre (CIC) team were recently challenged to adapt a standard paddle board so Rhys could safely enjoy paddle boarding with his friends. buff.ly/47JVWLl

Finding the right words when writing to official bodies can be difficult. We’ve created a series of template letters to make it less daunting for you to write to your local council or health body if you need to ask for information or make a complaint. buff.ly/2ovMLgq

We are delighted to announce that our Cerebra Intermediate Paediatric Sleep Advice Consultant (CIPSAC) Training is now accredited by OCN London as a Bespoke OCN Level 4 qualification! Register your interest for any of our upcoming sessions now: buff.ly/4cEpP0Y

Last year, we had the pleasure of building a sensory water fountain in the sensory garden of a local Swansea school. The children absolutely loved it, and it turned out to be a fantastic community project. Seeing the joy it brought to the kids was truly rewarding! 💧🌟

Do you work with children and want to develop your skills to support families with their child's sleep? Then CIPSAC is the perfect course for you! Our Intermediate course is now accredited by OCN London as a Bespoke OCN Level 4 qualification. buff.ly/4dNYk6K

We are delighted to announce that our Cerebra Intermediate Paediatric Sleep Advice Consultant (CIPSAC) Training is now accredited by OCN London as a Bespoke OCN Level 4 qualification! Register your interest for any of our upcoming sessions now: buff.ly/4cEpP0Y

FREE Cerebra Sleep Webinar on the 26th September (12:30 - 2pm): eventbrite.co.uk/e/understandin… In this webinar, we will consider what #sleep is, why sleep problems occur more often in children with #GeneticSyndromes, and how to improve sleep.

Join #RAREfest24 launch at ‘Strictly Rare’ on Fri 22 Nov —a night of rare music, comedy, talks, & research-inspired art! Hosted by Hope Winter it celebrates embracing differences, resilience, & the joy of creativity. Tickets are out! bit.ly/RAREfest24_Str… #Strictly Linseigh✨

A huge early milestone! Credit to our members who have fed into this project as it has developed and to the Genomics England team for prioritising the contribution of the rare community. Genetic Alliance UK is a proud partner in the all important evaluation of this study.

This has been my last week Genetic Alliance UK as I handed the baton on to new Chief Executive @MarkFlannCEO. Please follow Mark if you don’t already, and I look forward to seeing this amazing charity go from strength to strength under his leadership! 🏃‍♀️ 🏃‍♂️ 👀

Aston University have recently launched the SAFEBED study, a new project investigating the Safety, Acceptability, Feasibility, and Efficacy of Bed Enclosure Designs. Please consider taking part: buff.ly/4ez7JiL

Its #SMSAwarenessDay2024! Smith-Magenis Syndrome (SMS) Awareness Day is celebrated on 17th November each year. The day is dedicated to educating the world about SMS and raising awareness of the syndrome. buff.ly/3Z8UGis

A parent is putting this survey out to parents/carers across Wales, hoping to take this with a detailed report to Welsh Assembly, MPs and MS members to show the current situation lots of parents are in. buff.ly/3Vr2F8p

£3 billion pa raised from apprentice level on large employers plus £188m on CITB levy on construction in 2023/4. Where is the rest of the apprenticeship money raised going? And why am I as a professional chartered engineer being included in the trades category?

🧬 IT'S RARE CHROMOSOME AND GENE DISORDER DAY 2025, #RareChromoDay We're so excited to share two publications. Have a read, share and let us know what you think in the replies💬 - The Little Red Book: rarechromo.org/little-red-boo… - 'Unique experiences' report: rarechromo.org/get-ready-for-…

Congratulations Sue. Well deserved. Pitt Hopkins UK PittHopkins Syndrome