Nerve Tumours UK
@nervetumoursuk
Formerly “The Neuro Foundation”. We fight to support those living with conditions that cause nerve tumours. T: 0208 439 1234
ID: 1119458082
https://nervetumours.org.uk/ 25-01-2013 14:36:33
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Sundance Film Festival
@sundancefest
2026 #SundanceFilmFestival: Jan 22—Feb 1 in Park City and Salt Lake City, Utah
Whizz Kidz
@whizzkidz
We’re here for young wheelchair users. Please note: this account is no longer monitored, but you can contact us via our website or other social platforms.
Johnny Morris
@mojo90
BBC News reporter for SW England. Got a story? DMs are OPEN WhatsApp: wa.me/447711349022
Hits Radio Cornwall
@hitscornwall
Turn it up with Hits Radio 👆The Biggest Hits. the Biggest Throwbacks. Listen on @hellorayouk 🔊
BBC Devon
@bbcdevon
Celebrating people and stories from the amazing place we call home 🌊🌿☀️🐑 🔊 Listen to BBC Radio Devon on @BBCSounds 👇 Tap the link for more Devon stories
Charlie Swinbourne
@charliesw_photo
BAFTA/RTS award-winning writer and director on a journey with his camera. Editor of deaf blog @Limping_Chicken. Agent: Emily Smith @TheAgencyLDN_
Adam Pearson
@adam_pearson
Presenter / Actor / Campaigner. Bookings - [email protected]. #ADifferentMan (He/Him).
Mencap
@mencap_charity
Our vision is for the UK to be the best place in the world for people with a learning disability to live happy and healthy lives.💜
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Children's Tumor Fdn
@childrenstumor
The Children's Tumor Foundation is the drug discovery engine pioneering more solutions, better options, faster for all NF patients.
adidas UK
@adidasuk
#YouGotThis
British Athletics
@britathletics
Representing the nation's favourite Olympic and Paralympic sport. #WhereItStarts
David Coverdale
@dpcoverdale
Sports reporter, @MailSport
Adrian Maj
@ajm1701
ITV News West Country
@itvwestcountry
ITV's regional news service for the South West brought to you by @alexlovelltv and @Sebchoudhury. Get in touch via [email protected]
AstraZeneca
@astrazeneca
We're transforming the future of healthcare by unlocking the power of what science can do. Community Guidelines: bit.ly/2MgAcio
Sibs
@sibs_uk
UK charity for brothers and sisters of disabled children and adults.
Mental Health Foundation
@mentalhealth
💚 The UK's charity for everyone's #MentalHealth. Home of #MentalHealthAwarenessWeek.
Changing Faces
@faceequality
We are the UK's leading charity for everyone with a mark, scar or condition - providing support and promoting respect.
BBC South West
@bbcspotlight
The best of the BBC in the South West Follow @BBCDevon, @BBCCornwall, @BBCJersey and @BBCGuernsey for more local stories. Watch BBC Spotlight on @BBCiPlayer.
The Brain Tumour Charity
@braintumourorg
The world’s leading brain tumour charity and the largest dedicated funder of research into brain tumours globally.
💚 Sophie Squires 💚
@sophiesquiresx
Newsdesk Editor at @BauerMedia & @HitsCornwall 🎙 Runner-up for News Team of the Year with TSA over 1.5m @IRNAwards 2022 🥈 All views are my own.
Neurofibromatosis Network
@nfnetwork
Neurofibromatosis (NF) Network is the national non-profit serving individuals affected by neurofibromatosis. Leading NF Advocacy, Building NF Community.
Steve Barclay
@stevebarclay
MP for NE Cambridgeshire Promoted by Steve Barclay of MJS House, Wisbech Road, PE15 0BA
Sara Barron
@sarabarron
Comedian. (Live at the Apollo, Would I Lie to You, Richard Osman’s House of Games). One-half of the FireCrotch & Normcore podcast.
SWAN UK (syndromes without a name)
@swan_uk
SWAN UK (syndromes without a name) is run by @GeneticAll_UK offering support and information to families of children with undiagnosed conditions. #undiagnosed
adidas
@adidas
Through sport we have the power to change lives.
1️⃣OFN0NE
@lonerboy_ent
Money motivate Money come with hate 👨🏽🦯 #56NIGHTS⏳️ 2NeverStopCashing2
Rare Diseases Clinical Research Network
@rarediseasesnet
NIH-funded network fostering collaborative research among 20 teams of researchers, patients, and clinicians, each focused on a group of rare diseases.
Genetic Alliance UK
@geneticall_uk
National charity working for everyone affected by genetic, rare and undiagnosed conditions. We run the campaign Rare Disease UK and support network @SWAN_UK.
Kay Ashton MBE
@kirstysstory
#Presenter #Author #KirstysStory #films #Neurofibromatosis #Scoliosis #LoveLifeDisABILITY @LoveLifeAbility views are my own.
The Limping Chicken | Deaf Culture, News and Arts
@limping_chicken
The UK’s deaf culture, news and arts site! Over 400 deaf writers published and 8million views since 2012! Edited by @Charlie_Swin
Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Laura Hillyard
@laurahillyard1
Sports Agent @YauraAgency | Athlete Manager 👩🏻💻 | Global Sports Event & Production Manager 🏀 |Recently returned 800m Athlete 👟 |📍East London
Facial Palsy UK
@facialpalsyuk
Charity dedicated to supporting people affected by facial paralysis. We also provide resources for health professionals. #UniqueSmiles #FaceMyDay
NFIreland
@nfireland
At NF Ireland we aim to be a voice for NF patients, carers and their families. Reg Charity: CHY 6657
Gamze Kaplan
@gamzekaplan111
She/her | PhD candidate in @FBMH_UoM | Researching pregnancy experiences of expectant parents and parent-infant interaction in NF1.
MedicsforRareDisease
@medicsforrare
Excellence in rare disease medical training
Melanie Saavedra
@bfkcb
Our mission is raise awareness of NF1 and help Emilio be everything he wants to be. “ it’s not about seeing, it’s about feeling” said Emilio! ❤️
Cambridge Rare Disease Network (CamRARE)
@camraredisease
making #rarediseases an everyday conversation bsky.app/profile/camrar…
SamebutDifferent
@sbdrareproject
Same but Different create thought-provoking exhibitions that stimulate conversation, change attitudes and empower individuals.
NF2 BioSolutions UK & Europe
@nf2biosolution1
Volunteer, patient led charity. Dedicated to NF2 Research. Raising awareness through advocacy, support & hope. Fundraising for new treatments or a cure to NF2.
NF Bot
@nfbot2
Neurofibromatosis\Schwannomatosis Bot-Looking to spread new publications, news, & social media (reddit\twitter). Welcome comments\suggestions to @DrezBoston
NF1 Project
@nf1project
An international research project aimed at improving understanding of how genetics affects the number of skin neurofibromas a person with NF1 may develop.
RARE Revolution Magazine
@rarerevolutionm
Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Andrés Lessing ⭐️ ⭐️ ⭐️
@drezboston
🇦🇷🇺🇲 Trying to navigate the craziness. Neurofibromatosis/Schwanomatosis advocate & Patient Representative. Sarcoma Survivor.
Gilbert Family Foundation
@gilbertfamilyfd
The Gilbert Family Foundation exists to grow opportunity and equity in Detroit and our home cities, and to accelerate a cure for neurofibromatosis.
Rareminds
@raremindsuk
Specialised mental health and wellbeing services for the rare disease community. bit.ly/rarementalheal…
Ice cream pie ✈️🚀
@koubinama
🧊は遅咲きの狂い咲って感じです。BB、種好き。C2C好きSlmr.約束守れない人❌。 IIc a late blooming crazy bloom that I learned ice c, I like cum. C2C ○Slmr whereby: ttps://whereby.com/forslammer
RareCan
@rarecanuk
We created RareCan because we CAN increase the number of options and opportunities for patients with rare cancers.
Mental Health Awareness Week
@mentalh66290607
Spreading all things Mental Health. #MentalHealthAwarenessWeek
erinreyn ☕️
@notterinreyn
20 | plus sized and fun sized | @ShineMCEvents | art: @rheneye @plantskid | comms: vgen.co/erinreyn
Meghna Amin
@_meghnaamin
✨Senior TV Reporter at Metro.co.uk - got a story? [email protected] ✨ Durham Graduate ✨NCTJ-qualified Journalist @NewsAssociates ✨ she/her
Great Get Together
@great_together
Bringing communities together with the Great Get Together and the More in Common Network. Inspired by Jo Cox. #MoreInCommon Run by @jocoxfoundation.
🧍🏿♂️
@sundancedarling
now my……..lyrics on your Booby
EDEN Study
@uom_edenstudy
The main aim of the EDEN study is to investigate early social, communication & attention development in infants with NF1. The University of Machester
Jose Carlos
@josee9807
Enfermero 🫀| Tengo una hija llamada Hachi🐹| Estoy obssesed con la niña pastori | Granaíno viviendo en Mallorca
Benefact Group
@benefactgroup
A charity owned, international group of specialist financial services businesses, with a 135 year history (formerly known as Ecclesiastical Insurance Group).
jaden
@onlyjadenx
hot stuff I do🤒
British Red Cross Policy
@redcrosspolicy
The latest policy news & reports from @BritishRedCross, advocating for people in crisis across the UK and overseas. Get in touch via [email protected].
Helperbird
@helperbird
🚀 Your reading & writing accessibility assistant. 🌍 Making the world a more accessible place. 📞 Support 9am - 9pm, Monday to Sunday.
Housden lab
@labhousden
The Housden lab studies genetic interaction networks in Drosophila to understand how cells function and to find new drugs to treat disease
NF Forward
@nfforward
We are a non-profit funding neurofibromatosis (NF) research with audacious, high-reaching goals that will bring us closer to a cure for NF.
Wavehunters_UK
@wavehunters_uk
Surf and Marine Company on the North Coast of Cornwall | Polzeath | Padstow | Rock | Port Isaac 〰️Seafari Boat Trips & Charter 〰️Surf Lessons & Hire
Walker Lab at MGH
@walkerlabmgh
Research lab based in the Center for Genomic Medicine at Massachusetts General Hospital working to #EndNF.
Neurofibromatosis Young Investigators Forum
@nfyiforum
Dec 5-6, 2024 | Supported through independent educational grants from Alexion and SpringWorks Therapeutics
Salvatore La Rosa
@salvolarosa
NonProfit Executive. Researcher. Medicinal chemistry. Drug discovery. Project management. Rare disease. Cancer research. Open science advocate.