MRC Prion Unit at UCL Institute of Prion Diseases (@mrc_prion) 's Twitter Profile
MRC Prion Unit at UCL Institute of Prion Diseases

@mrc_prion

Our aim is to combine multidisciplinary and clinical research to understand prion diseases and address areas of public health concern.

ID: 1458091800015540227

linkhttps://www.ucl.ac.uk/prion/ calendar_today09-11-2021 15:19:40

366 Tweet

756 Followers

348 Following

MRC Prion Unit at UCL Institute of Prion Diseases (@mrc_prion) 's Twitter Profile Photo

Multiomic analyses direct hypotheses for Creutzfeldt-Jakob disease risk genes. Work with Elizabeth (Lizzie) Hill Fahri Küçükali Sleegers Lab to refine evidence for prion disease risk genes STX6, GAL3ST1. Adding MANF and PDIA4 for follow up work. Now published in Brain. academic.oup.com/brain/article/…

Simon Mead (@smead2) 's Twitter Profile Photo

biorxiv.org/content/10.110… I'm really pleased to share this preprint comprising the bulk of Lizzie Hill's work for PhD on the role of STX6 in prion and tau neurodegenerative diseases MRC Prion Unit at UCL Institute of Prion Diseases Elizabeth (Lizzie) Hill Short thread 1/n

CJD Support Network UK (@supportcjd) 's Twitter Profile Photo

Thanks Genetic Alliance UK for hosting the #RareDiseaseDay2025 Westminster Reception!🙌CJD Support Network UK member Alice & committee member Andrew (spot them?🤣) connected with MPs on key prion disease issues. Proud moment! Joined here by Peter Dowd MP & Prof Collinge MRC Prion Unit at UCL Institute of Prion Diseases The Cure CJD Campaign

Thanks <a href="/GeneticAll_UK/">Genetic Alliance UK</a> for hosting the #RareDiseaseDay2025 Westminster Reception!🙌<a href="/supportcjd/">CJD Support Network UK</a> member Alice &amp; committee member Andrew (spot them?🤣) connected with MPs on key prion disease issues. Proud moment! Joined here by <a href="/Peter_Dowd/">Peter Dowd MP</a> &amp; Prof Collinge <a href="/MRC_Prion/">MRC Prion Unit at UCL Institute of Prion Diseases</a> <a href="/curecjdcampaign/">The Cure CJD Campaign</a>
CJD Support Network UK (@supportcjd) 's Twitter Profile Photo

Great to connect with Ashley Dalton MP at Westminster Rare Disease Day Parliamentary Reception yesterday on key issues for the prion disease community. Pictured with Andrew CJD Support Network UK & Prof John Collinge MRC Prion Unit at UCL Institute of Prion Diseases... Looking forward to staying in touch! #RareDiseaseDay 💛

Great to connect with <a href="/AshleyDalton_MP/">Ashley Dalton MP</a> at Westminster Rare Disease Day Parliamentary Reception yesterday on key issues for the prion disease community. Pictured with Andrew <a href="/supportcjd/">CJD Support Network UK</a>   &amp; Prof John Collinge <a href="/MRC_Prion/">MRC Prion Unit at UCL Institute of Prion Diseases</a>... Looking forward to staying in touch! #RareDiseaseDay 💛
CJD Support Network UK (@supportcjd) 's Twitter Profile Photo

Liz Twist MP showing support for the #RareDisease community at the Westminster Parliamentary Reception for Rare Disease Day yesterday 🦾🌟connecting with Andrew & Alice CJD Support Network UK & Prof John Collinge MRC Prion Unit at UCL Institute of Prion Diseases... Looking forward to staying in touch! 💛☕️

<a href="/LizTwistMP/">Liz Twist MP</a> showing support for the #RareDisease community at the Westminster Parliamentary Reception for <a href="/rarediseaseday/">Rare Disease Day</a> yesterday 🦾🌟connecting with Andrew &amp; Alice <a href="/supportcjd/">CJD Support Network UK</a>  &amp; Prof John Collinge <a href="/MRC_Prion/">MRC Prion Unit at UCL Institute of Prion Diseases</a>... Looking forward to staying in touch! 💛☕️
CJD Support Network UK (@supportcjd) 's Twitter Profile Photo

We are pleased to hear that @DHSC is willing to receive proposals and fund projects. Despite investment CJD remains no approved treatment - we hope they'll continue to communicate with MRC Prion Unit at UCL Institute of Prion Diseases and others to ensure continued support and further progress for our community 💛

CJD Support Network UK (@supportcjd) 's Twitter Profile Photo

Ashley Dalton MP responded that The Department is working closely with NHS England on future funding for CJD diagnostic services. The Department also works closely with Medical Research Council to align funding for priority research, and has met specifically with MRC Prion Unit at UCL Institute of Prion Diseases recently...(2/3)

MRC Prion Unit at UCL Institute of Prion Diseases (@mrc_prion) 's Twitter Profile Photo

Today we opened the lab to ten children from the neighbouring school. They watched our robots, peered into the BSL3 labs, looked down a fluorescence microscope and learned about prions and science careers. Extraordinarily bright questions and attentive they were a delight to host

Today we opened the lab to ten children from the neighbouring school. They watched our robots, peered into the BSL3 labs, looked down a fluorescence microscope and learned about prions and science careers. Extraordinarily bright questions and attentive they were a delight to host
MRC Prion Unit at UCL Institute of Prion Diseases (@mrc_prion) 's Twitter Profile Photo

Today is the open day of the MRC Prion Unit at UCL and National Prion Clinic. We look forward to welcoming visitors for lectures, tours, demos and small group sessions. Updates from The Cure CJD Campaign and CJD Support Network UK thanks!

Tom Trainer (@tomtrainersci) 's Twitter Profile Photo

If you want some great mentorship in structural biology, to work on exciting novel labelling systems as well as one of the most unqiue pathogens out there - come work with us!

Eric Vallabh Minikel (@cureffi) 's Twitter Profile Photo

We developed a new siRNA drug candidate for prion disease, a Broad Institute / RNA Therapeutics Institute collaboration. We now have an open IND meaning FDA has given us permission to start first-in-human trials. Work remains before trials can launch. The full update: cureffi.org/2025/04/14/ope…