FSHD News
@mpcfshd
FSHD NEWS over the world.
Research and patients networks
#FSHD #CureFSHD
#WorldFSHDDay = June 20th
ID: 4882394783
https://bsky.app/profile/fshd.bsky.social 06-02-2016 17:42:23
1,1K Tweet
707 Followers
197 Following
Neftalí
@petuiscar
Si tuvieramos que hablar más que escuchar, tendríamos dos bocas y una oreja. ◇ Marketing ◇ Podcast ➡️ 'Vivir con FSHD' ◇ Carpintería y Ferretería en Doorcats ◇
Muscular Dystrophy UK
@mduk_news
We connect a community of over 110,000 people living with muscle wasting and weakening conditions. Together we are stronger. Join us. Our #MusclesMatter.
LUMC Leiden
@lumc_leiden
Officiële X-account van het Leids Universitair Medisch Centrum. Vacatures: bit.ly/42484EK Pers en media: bit.ly/2FtsU8Y
cardenonwheels♿️ on bsky
@cardenonwheels
FSHD Society
@fshdsociety
World’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD). Empowering patients, accelerating therapies. #CureFSHD
Mayana Zatz
@mayanazatz
Geneticista - Diretora do Centro de Estudos do Genoma Humano e células-tronco e INCT sobre envelhecimento: doenças genéticas, genômica e metagenômica
vishnu v y
@vishnuvy
Short & Outspoken! Additional Professor Neurology, AIIMS New Delhi,India. Alumnus of PGI Chandigarh, JIPMER Puducherry and GMC TVPM
Chris Carrino
@chriscarrino
Radio voice of the Brooklyn Nets. NFL on @CompassMediaNet. NCAA's for @Westwood1sports. Working to cure #FSHD with @CarrinoFSHD. Contact: @ifmanagement
TREAT-NMD®
@treat_nmd
Advancing diagnosis, care and treatment for those living with neuromuscular diseases around the world
Carrino Foundation
@carrinofshd
The Chris Carrino Foundation for FSHD, a 501(c)(3) dedicated to curing #FSHD and inspiring others thru @ChrisCarrino.
Robert Muní Lofra @rmunil.bsky.social
@rmunil
PT PhD, Consultant Physiotherapist, Honorary Clinical Senior Lecturer at @jwmdrc John Walton Muscular Dystrophy Research Centre-Newcastle Upon Tyne
ENMC
@_enmc
Piera Smeriglio
@pierasmeriglio
Researcher in molecular biology - epigenetics
Muscle Cell News
@musclecellnews
An online resource for researchers studying smooth, skeletal, and cardiac muscle cells. Part of the @STEMCELLTech Science News service.
Enrico Bugiardini
@e_bugiardini
Neurologist, Neuromuscular Disorders & Neurogenetics
Teresinha Evangelist
@teresinhaevange
Rich Holmes
@richholmes5
Freelance journalist, specializing in health news. interested in science and craft beer .
Prof Michael Hanna
@mikehanna18
Neurologist National Hospital, Director UCL Queen Square Institute of Neurology, MDUK chair, mito, channels, committed to research for treatments
Matthew S. Alexander
@matt_muscle_guy
Geneticist, Skeletal Muscle, Drug development, Gene therapies. Non-coding RNA, and Zebrafish Aficionado. All tweets are my own. Instagram @thealexanderlab
Healx
@healx
AI-powered and patient-inspired. We accelerate the discovery and development of #raredisease treatments.
Bine
@sp1egelscherbe
Svetlana Gorokhova
@sgorokhova
Svetlana Gorokhova, MD/PhD, is working in Marseille Medical Genetics (@univamu) and @aphm_actu in Marseille, France remote member of NNDCS/NIH. Now on bsky
Myologie
@myologie_mmg
Myologie Translationnelle is a research team interested in rare diseases affecting muscles.
JWMDRC
@jwmdrc
John Walton Muscular Dystrophy Research Centre, Translational and Clinical Research Institute, Newcastle University #dmd #sma #lgmd #fshd #dm1 #gne #col6 #cnm
Sharif Tabebordbar
@shbordbar
Co-founder and CSO at Kate Therapeutics by way of @broadinstitute, @HarvardGSAS and @Harvardmed. Developing next generation gene therapies.
CRISPR Therapeutics
@crisprtx
Stephanie Duguez
@sduguez_lab
Working on #MND & #NMD and the of role muscle communication - Senior Lecturer in Stratified/Personalized Medicine @StratifiedMedicineNI @UlsterUniversity
CRISPR News 🧬
@crispr_news
The latest CRISPR breakthroughs @crispr-news.bsky.social
FulcrumTx
@fulcrumtx
Clinical-stage biopharma focused on improving the lives of patients with genetic diseases in areas of high unmet need. Guidelines: bit.ly/3t2xeR9
Helen Walker
@helenmwalker44
*** THIS ACCOUNT IS NO LONGER UPDATED OR MONITORED *** Join me at the Other Place... 🦋 helenwalkerncl.bsky.social
Emma Matthews 💙
@emmam_channels
Neurologist and Neuromuscular Specialist @StGeorgesTrust, Reader @StGeorgesUni, Director Genomics CAG, Rare Disease Lead @SEgenomics #neuromuscular #channels
Dr. Rita J. Serrano
@ritajserrano
Postdoctoral researcher #muscledisease #raredisease @MonashUni #zebrafish
Dyne Therapeutics
@dyne_tx
Advancing life-transforming therapies for serious neuromuscular diseases. Community guidelines: bit.ly/3BYPnpK
Rika Maruyama, Ph.D.
@rikamaruyama_e
Scientist. Basic and translational research in musculoskeletal & neurological diseases. Research Associate, Yokota Lab, @UAlberta_FoMD
Muscular Dystrophy News Today
@mdnewstoday_
We are dedicated to sharing the latest news, research, and muscular dystrophy patient perspectives.
Ultragenyx
@ultragenyx
At Ultragenyx, our vision is to lead the future of rare disease medicine. Community Guidelines at: ultragenyx.co/community
Dongxu Zheng
@dongxuzheng
PhD student in FSHD group, LUMC Bioinformatics, multi-omics sequencing data, genomics.
Centre of Research in Myology (UMRS 974)
@researchmyology
Multidisciplinary research center👩🏻🔬on the #muscle 💪and its pathologies #MyoTwitter #MedTwitter @MedecineSU @inserm @sorbonne_univ @Inst_Myologie @APHP
Dumonceaux lab
@myologylab
Our group focuses on the development of therapeutic solutions for muscle diseases and FSHD in particular.
Julie Dumonceaux
@j_dumonceaux
Avidity Biosciences, Inc.
@aviditybio
Avidity Biosciences is pioneering a new class of oligonucleotide-based therapies to address the unmet needs of the rare disease community.
Mehdi Ghasemi, MD, MPH
@mehdigh18235459
Director of ALS Center @ Beth Israel Lahey Health, Assistant Professor of #Neurology @UMass, @Harvard Trained #Neuromuscular Subspecialist @Harvard Trained #MPH
n-Lorem Foundation
@n_lorem
Discovering, developing, and providing personalized experimental ASO medicines to treat nano-rare patients — for free, for life
Le Média Positif 🍀
@lmpositif
🗞 Le Média 100 % optimiste et positif 🌱
Yusuke Nishimura
@ynishimura87
Research Associate in Muscle Proteomics @LJMUSportSci. Editorial Board @AJPCellPhys. Research Communications Group @MDUK_News. @FSHDUKgroup
Gillian Butler-Browne
@gilbutlerbrowne
@INSERM Research Director emeritus in @CapucineTrollet @MoulyVincent team #stemcell #ageing #pathology #myotwitter Dr Honoris Causa in Medicine @UmeaUniversity
Transcripta Bio
@transcriptabio
We are focused on drug discovery at unprecedented speed and scale, with lower risk and higher certainty across multiple diseases in parallel.
FSHD Leiden
@fshd_leiden
Official Twitter account of the FSHD research group at the LUMC
SOLVE FSHD
@solvefshd
We are catalyzing the pace of innovation to accelerate a cure for FSHD.
Pilar Camaño
@pilicamano
Head of the Molecular Diagnostics Platform at @Biogipuzkoa Health Research Institute. @FSHD molecular diagnosis
Afrooz Rashnonejad
@rashnonejad
Assistant Professor at The Ohio State University, PI in the Center for Gene Therapy at Nationwide Children's Hospital
Epicrispr Bio
@epicrisprbio
Epicrispr Bio is a biotechnology company developing ultra-compact therapies to modulate gene expression in vivo using the smallest known Cas protein
FSHDUK
@fshdukgroup
U.K. steering group promoting clinical trial readiness and acting as a portal for anyone interested in FSHD (facioscapulohumeral dystrophy)
FSHD_Diagnosis_Donostia
@fshddonostia
Plataforma Diagnóstico Molecular. Reference Center in Spain for the diagnosis of FSHD for more than 20 years. OSI Donostialdea/IISBiodonostia. #FSHD@Biodonostia
miRecule, Inc.
@mireculeinc
miRecule™ is a biotechnology company dedicated to realizing the potential of tissue-targeted RNA therapies for cancer and muscular dystrophy.
Emanuele Mocciaro
@emamocciaro
Researcher in FSHD muscular dystrophy @SanRaffaeleMI former @utmbhealth #texas #neuroscience #neurogenesis #stemcell. @MSCAction and @FSHDsociety recipient
FSHD Japan
@fshd_japan
FSHD(顔面肩甲上腕型筋ジストロフィー)の患者団体。FSHDに関する情報を発信しています。日本筋ジストロフィー協会FSHD分科会が運営しています。
Giada Mele
@_giadamele
Postdoc dealing with #skeletalmuscle and sometimes #cancer 🔬
Bilal Bayazıt
@bilalbyzt
#MuscularDystrophy #FSHD @nationwidekids
AnnemiekeAartsma-Rus
@oligogirl
Translating science from bench to bedside and from jargon to lay language
Vas Narasimhan
@vasnarasimhan
Reimagining medicine as CEO of @Novartis
Robert Pitceathly
@robpitceathly
Professor of Clinical Neurology and Mitochondrial Medicine @UCLIoN | Lead @MRCMitoCluster | Co-lead @LondonMito
Celularity Inc. (NASDAQ:CELU)
@celularity
A next-generation Biotechnology company creating off-the-shelf cellular medicines for Cancer, Infectious Diseases, and Degenerative Diseases. (NASDAQ:CELU)
FSHD España
@fshd_spain
Asociación Afectados Distrofia Muscular facioescapulohumeral (FSHD) España. Declarada de utilidad pública. #SalvaNuestraSonrisa #fshd #EnfermedadesRaras
Jatin Burniston
@exercproteomics
Professor of Muscle Proteomics | Fascinated by difficult things | Making my own path
ClinGenetNews
@clingenetnews
CLINICAL GENETICS keeps our readers up-to-date on the latest developments in the field. ClinGenetNews tweets are from the Editors (and not the publisher).
Gisele Bonne
@bonnegisele
Chip Wilson
@chipyvr
Serial entrepreneur, husband, father, @lululemon founder. Discover my new book, lululemon and the Future of Technical Apparel ⬇