
FSHD News
@mpcfshd
FSHD NEWS over the world.
Research and patients networks
#FSHD #CureFSHD
#WorldFSHDDay = June 20th
ID: 4882394783
https://bsky.app/profile/fshd.bsky.social 06-02-2016 17:42:23
1,1K Tweet
707 Followers
197 Following

Steven Jacobus
@shoretrader

cardenonwheels♿️ on bsky
@cardenonwheels

Sarah Thailing
@wordanista
Strategic biotech + life sciences communicator | Senior Director, Corporate Communications & IR at @PoseidaThera
FSHD Society
@fshdsociety
World’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD). Empowering patients, accelerating therapies. #CureFSHD
vishnu v y
@vishnuvy
Short & Outspoken! Additional Professor Neurology, AIIMS New Delhi,India. Alumnus of PGI Chandigarh, JIPMER Puducherry and GMC TVPM
Eray AYCAN
@erayaycan

Terry Frye
@ttfrye

westuck
@palagogi
....
Carrino Foundation
@carrinofshd
The Chris Carrino Foundation for FSHD, a 501(c)(3) dedicated to curing #FSHD and inspiring others thru @ChrisCarrino.
Robert Muní Lofra @rmunil.bsky.social
@rmunil
PT PhD, Consultant Physiotherapist, Honorary Clinical Senior Lecturer at @jwmdrc John Walton Muscular Dystrophy Research Centre-Newcastle Upon Tyne
Teresinha Evangelist
@teresinhaevange

Fordastika
@fordastika
28:06:42:12 👁️ 25:17 👁️ 33
Sebastiaan Dalle
@dallesebastiaan
Assistant professor @MOVANTresearch @UAntwerpen & postdoctoral researcher @KU_Leuven in skeletal muscle & exercise physiology
Myologie
@myologie_mmg
Myologie Translationnelle is a research team interested in rare diseases affecting muscles.
CrazySane, divides by zero.
@going_in_sane
Living in the Simulation. Questioning everything. Malice toward none.
macklon
@macklon12

Dr Tristram Ingham
@docingham
Maori Medical Doctor and Academic Researcher with focus on respiratory health and inequalities
Sethi H S
@hssethi1234

World Muscle Society
@worldmusclesoc
The WMS is a global, multidisciplinary community committed to advancing the science of neuromuscular disorders. Join us in Vienna for #WMS2025.
Rango
@cowboyfoxxx

Emma Matthews 💙
@emmam_channels
Neurologist and Neuromuscular Specialist @StGeorgesTrust, Reader @StGeorgesUni, Director Genomics CAG, Rare Disease Lead @SEgenomics #neuromuscular #channels
Dyne Therapeutics
@dyne_tx
Advancing life-transforming therapies for serious neuromuscular diseases. Community guidelines: bit.ly/3BYPnpK
ichito
@sasasatone

stevenyan
@steveny19463288
我
Biospace_Caravel
@biospacec

Dumonceaux lab
@myologylab
Our group focuses on the development of therapeutic solutions for muscle diseases and FSHD in particular.
Avidity Biosciences, Inc.
@aviditybio
Avidity Biosciences is pioneering a new class of oligonucleotide-based therapies to address the unmet needs of the rare disease community.
So
@2jnnf9cegfiopap

Beth Lynch
@bethlynchartist
British Artist based in West Yorkshire, England. (She/Her) 🤓 living with facioscapulohumeral muscular dystrophy and a facial palsy #raisingawareness
unitetheright
@unitetheright4
Unite the Right!
Linda Kerr
@lindake44715054

El Gringo
@jb04051991

Samuel Mackenzie MD PhD
@notoriousemg
Pediatric #neuromuscular doc, amateur scientist @URneuroscience, runner, chess enthusiast, dad. #Meliora
Krešimir Petrak
@kresimirpetrak

Bettina Sundstrøm
@bs2630
Sig tingene som de er 👍🏼
Abderhman G. Zaki
@abderhman487
You'll Always Walk Alone COYS
Marie Rowland
@ro42468066

Tkk1234
@tkkelliot

freiheizer
@lukefreiheizer
hauptamtlich Anwalt, ehrenamtlich Rettungsdienstler, Parteilos.
Brandon Alexander
@brandon__alexan

赵添
@tdszt

Linda Mia
@lindamia145
Single, maga, Donald Trump is my President 🇺🇸
True North Strong and Free
@andrel423015

Maga Mutt🐾🇺🇸
@themagamutt
22 🇺🇸 MAGA 🇺🇸 TikTok @ Patriotic.Mutt
Bob
@lyuzzzz_8

🏀 BasketballDadGuru
@bballdadguru
Excanterano ACB y padre de una promesa del baloncesto. Soy un entrenador en la sombra, compartiendo consejos, tácticas y críticas con valor y humor. ¿Me sigues?
Yu Chang
@chengyu_chang7

Gilbert
@gilmos20307

GARIMA MISHRA
@garima251185
MOTHER WIFE DAUGHTER INVESTOR TRADER OPTION SELLING TRAVELLER
0434单男。
@yfq90

zhu zixun
@zzixun93581

Dian
@dianxferreira

UserinBirgit
@userinbirgit

Van Diggler
@therealvandiver
Proud American 🇺🇸
Alex
@puppetwheels

💥Patriot🙏
@3120chiefs

Oscar Horwath, PhD
@horwathoscar
Postdoctoral researcher in the von Walden lab at Karolinska Institute
Dr Alexey Kulikov
@kulikovuniatf
Head of Partnerships and Operations, Deputy Head of Secretariat, @UN Task Force on #NCDs. Support @WHO countries achieve #health related #SDGs. PhD MPH MD.
X
@truite_r
I'm beginning...
FSHD España
@fshd_spain
Asociación Afectados Distrofia Muscular facioescapulohumeral (FSHD) España. Declarada de utilidad pública. #SalvaNuestraSonrisa #fshd #EnfermedadesRaras
Bilal El Waly
@bilalelwaly

Arnab Ray
@arnray1998
PhD student at NUS