#NurOwnNow #EndALS Mike Quigley Jan Schakowsky #ALS just forced us to endure our first Christmas without my son and his son’s first Christmas without his Dad. January 11 the #FDA will meet with Brainstorm to discuss and request AdCom. #NoAdComNoVoice HELP do #whateverittakes

Having #ALS is a full time job. #physically #mentally #psychologically #financially This is my response to “what do you do all day?” I don’t think most could handle it.

#ENDALS

ALS-THE FORGOTTEN DISEASE Sean Mino ALS ACCESS Eric Braeden Dr. Robert M. Califf If you line up every Power Chair end to end that is now EMPTY from DEATH I wonder how many MILES it would span This is RICHARD'S CHAIR ALS KILLS EVERYONE MEN WOMEN BOYS GIRLS ALL AGES #NUROWN4LIFENOW

We are so grateful to the people that have jumped into action to help create incredible Hop On A Cure apparel. These awesome items have been instrumental in spreading the word & fill us with hope every time we see you wearing them. EstafeX Duane Morris LLP Zac Brown Band

I pray that C Lebovits BrainStorm Mary Kay Turner et al bring their A game for #ALS

I hope that a countdown is started for the Nurown Type A meeting similar to the one created for amx0035. We need our congressional ALS champions locked in during the meeting. We need PRESSURE on the FDA to grant an AdComm. The stakes are MUCH higher than with amx0035.

Let’s do this. It’s a super duper pivotal time in the ALS Fight Mitze Klingenberg BSN, RN Smithstrongmom @ThurmanTough Sarah Nauser Sarah Langs Elizabeth McCormick Christy A.

Been a rough day. Sinuses have been draining causing my to cough a gasp for air. Hopefully it clears up soon & isn't pneumonia . I wish I could trade places with Dr. Robert M. Califf the others at the U.S. FDA FDA Biologics that withhold treatments for #ALS. Trade places for 1 day! #EndALS

Just wanted to send a friendly reminder as you consider your end year donations that I AM ALS was the only ALS nonprofit to actually fight for and secure $75 million in new funding to provide expanded access to people living with ALS now. The. Only.

Myth: #ALS is a disease of old men. The beautiful women of Her ALS Story were diagosed before the age of 35 & are changing the conversation about this fatal disease. Dr. Amy Adams Rita Sattler Need olivia hawkins to study what is causing them to be afflicted so young. Know Your Value

ALS-THE FORGOTTEN DISEASE Sean Mino ALS ACCESS Eric Braeden Dr. Robert M. Califf This is the final picture of Richard's Handicapped Van Another piece of Richard that I miss We enjoyed many trips ALS things start being viewed as the LAST TIME Victims need HELP to LIVE #NUROWN4LIFENOW

.@RepAnnaEshoo, there's an appropriate fear in the #ALS community that FDA Biologics will deny an AdComm hearing for safe/effective #Nurown ALS doesn't have powerful Big Pharma allies We NEED Congress to help END the CRUEL #FDA regulatory RIGIDITY for 100% fatal ALS. #NoAdComNoVoice

Today's exposure of U.S. FDA corruption made #ALS patients' doubt an unbiased review of #NUROWN is even possible. #ALS_BIAS is real, and this kind of gut punch betrayal of terminally ill people has made independent oversight of #NurOwn mandatory. pALS are right to be suspicious.

The inconsistency between ALS & cancer must be addressed! .FDA Biologics Please be consistent, humane & give NurOwn AdCom & approval based on responder data. #ALS community pls RT #NoAdComNoVoice #EndALS #US_Fda #FDACBER #NurOwnWorks #DontDiscriminate

Eric died of #ALS - diagnosed at 36 years old. HOW MANY MORE HAVE TO DIE before the FDA Biologics treats 100% FATAL ALS with the same URGENCY/FLEXIBILITY as cancer treatments? Congress, DEMAND an #AdComm hearing for #Nurown to allow #RealWorldEvidence of efficacy shared publicly.

.Sen. Lisa Murkowski & Senator Chris Coons, the #ALS community, with broken bodies & no Big Pharma allies, needs your leadership once again FDA Biologics regulatory RIGIDITY for ALS brings fear that safe/effective Nurown will be denied an AdComm hearing #NurownWorks #NoAdComNoVoice Dr. Robert M. Califf

pALS like me in the #NurOwn P3 trial are #dyingwaiting BrainStorm you promised the #ALS community minutes from your #NurOwn meeting with the U.S. FDA . You haven’t shared those minutes nor have you been transparent. The ALS community deserves better. We deserve transparency.