MRC (@jackrusellpv) 's Twitter Profile
MRC

@jackrusellpv

June 21, international awareness ALS day.

ID: 89615376

calendar_today13-11-2009 03:27:33

3,3K Tweet

111 Followers

676 Following

Shah Minokadeh, M.D. (@minoshah) 's Twitter Profile Photo

Dr. Windebank, Mayo Clinic Neurology Chairman: 40+ yrs of clinical & research experience with #ALS FDA Biologics NUROWN AdCom: "I have clearly seen some people STABILIZE in a way that I've NEVER seen IN ANY OTHER TRIAL" CONGRESS & Dr. Robert M. Califf, PLEASE listen below. Will you allow

Craig Reagan (@craigreagan2) 's Twitter Profile Photo

We don't get just "a touch of ALS". Without medical intervention, when we lose a function to ALS, it's gone. It doesn't come back for a visit. #NurOwnworks Sean Mino Can you weigh in? Maybe they will believe an esteemed physician.

MRC (@jackrusellpv) 's Twitter Profile Photo

And also thank you AZ Latina ☮️🌊🟦 as you are a great teacher and you have been communicating and contributing to this community. #ALS community we will not be silent by a group of pseudo experts that are far away from reality. Let’s make a reality #NurOwn and any other treatments

AKJK (@akjklove4ever) 's Twitter Profile Photo

NUROWN EAP/RTT PALS DESERVE ACCESS NOW❗️Lee Millard Bill Anderson others inspired post. Lee: if BrainStorm convinced N works, MORAL thing is to ENROL former EAP/RTT pals on NEW small EAP & get on with/attract investment for required new ph3.SHOULD TRIAL HEROS GET ACCESS NOW❓

AZ Latina ☮️🌊🟦 (@avoice4als) 's Twitter Profile Photo

Everyone I've referred to @Synapticure has loved the ability to see their #neurologists from the comfort of home. If you know any families with #huntingtons, please share this blog as Jaime Martin MD PhD has a long connection with the HD community & her patients adore her!

ELA Comunidad (@elacomunidad) 's Twitter Profile Photo

Videoconferencia Manejo de la Sialorrea en la ELA, impartida por el Lic. Thiago Ferreira - Asociación Pro Cura de la ELA - Brasil #HagamosComunidadPorLaEla #SimposioMédico youtu.be/vD1BxZb-coA?si…

MRC (@jackrusellpv) 's Twitter Profile Photo

Aquellos del Congreso CDMX Congreso de la Ciudad de México , están seguros que no les ha investigado y aunque voten por ella; las traiciones son parte escencial de cualquier político… no se confíen

ALS Network (@youralsnetwork) 's Twitter Profile Photo

Lo invitamos a unirse Conéctese, Apoyar, Unase: Español. Cuándo: Miércoles, 15 de Noviembre 4:00 p.m. Hora del pacífico/02:00 p.m. Hora de Hawaii. Por favor, comunicarse por correo electrónico a Debbie Joy [email protected] para las instrucciones.

Lo invitamos a unirse Conéctese, Apoyar, Unase: Español. Cuándo: Miércoles, 15 de Noviembre 4:00 p.m. Hora del pacífico/02:00 p.m. Hora de Hawaii. Por favor, comunicarse por correo electrónico a Debbie Joy djoy@alsagoldenwest.org para las instrucciones.
AZ Latina ☮️🌊🟦 (@avoice4als) 's Twitter Profile Photo

Bravo! Patients in the #NurOwn trial KNOW #NurOwnWorks. "There is a narrative that desperate patients would try anything, and the role of the U.S. FDA & the #healthcare system more broadly is to protect those patients against themselves. That is flawed... They simply want the

gina Gibson (@ginagib68993499) 's Twitter Profile Photo

@HaterAls Dr. Robert M. Califf FDA Biologics If you have not spent at least a month as a caregiver for a loved one with advanced #ALS, you should never be allowed to decide the fate of cutting edge treatments. PERIOD

MRC (@jackrusellpv) 's Twitter Profile Photo

Traveling It’s the best way to spend your time when you have #ALS. I’m in my 9th cruise ship since I was diagnosed October 2020 and after the Covid restrictions , of course my caregiver makes it possible… even now with my feeding tube If you can, do it