Parents' Corner resumes next Tuesday, 10 September. It's a chance to meet similarly situated parents of children with #Marfan & #LoeysDietz syndromes and discuss common concerns in a friendly, warm environment. Join the conversation! bit.ly/47d6R0m

A reliable measure of health & happiness, your blood pressure matters! Like water travelling through a hose, blood flows around your arteries, exerting force against the walls. When the pressure exerted is too high, it can be dangerous. #KnowYourNumbers bit.ly/3TisTck

Many congratulations, Oscar, on completing the AJ Bell Junior & Mini Great North Run in memory of your uncle on this dark, rainy day! bit.ly/3X9Iltp

Following in the footsteps of his son, Oscar, Michael is competing in today’s AJ Bell #GreatNorthRun. It’s the culmination of weeks of tireless training and generous fundraising. Good Luck and Thank You!!! bit.ly/3X9Iltp

A momentous development in the THINK AORTA Global campaign ..

A family affair, #Marfan has passed down the generations, in more ways than one. Consultant Paediatric Cardiologist Dr Nitha Naqvi inherited her professional interest in MFS from her father, Dr Nayyar Naqvi OBE. Listen to the Drs Naqvi discuss Marfan. bit.ly/3Tml3hS

A simple card can save your life. In anticipation of Aortic Dissection Awareness Week, we’ve updated our emergency alert card. Order yours today. bit.ly/3Vj16qB #AorticDissection

Circulating through the centuries, the name #WilliamHarvey is attached to many venerable institutions inc the eponymous Research Institute, home to our Sonalee Laboratory. Physician Harvey solved a millennia-long puzzle, the mechanics of blood circulation. bit.ly/3MLGHZi

Daniel and Kate will be cycling in sunshine for the #Marfan Trust. They're just £82 shy of their target ...

Resplendent in our red Marfan Trust tops, Daniel and Kate are competing in today’s London to Brighton Cycle Ride! Wishing you Pedal Power and thank you so much! bit.ly/4emuXYT #londontobrightonbikeride

#MarfanMondays A stark fact to jump-start Aortic Dissection Awareness Week. People with #Marfan Syndrome are at inherently greater risk of an #AorticDissection. Early diagnosis and proper management of MFS are critical to survival. bit.ly/4e4q5rE

Are you a student nurse or a Nursing Associate with an interest in Vascular? The SVN is offering 2 discretionary bursaries on a first come first served basis to attend this year’s Vascular Conference in Nov. Apply with your details to [email protected]

We will see you soon ....

Creating the beat of life are the doors of your heart. The heart is a perfect pump, reliant upon 4 valves that open & close like doors in precise sequence, to keep the blood flowing around the body in a strict 1-way system. One of the 4 is the aortic valve tinyurl.com/nzf3b7bd

United behind the motto Together We Can, the #Marfan Europe Network (M.E.N.) is a coalition of wonderful patient organisations. We’ve just emerged from a momentous 4-day meeting in Vienna at which we toasted M.E.N.'s new legal status ... read on tinyurl.com/4swa2nze

While it is safer to be an #AorticDissection patient in England today than in 2022, there is much more work to do ....

The ability to predict and prevent is a life-saving approach and our summer medical student Mehar Bijral has spent months analysing CT scans to discern the measurement at which the aorta may dissect. Read on: bit.ly/3XLcn7h #AorticDissection

At the annual Aortic Dissection Awareness Day in Edinburgh where patients, families & medical professionals have come together to raise awareness Aortic Dissection Awareness UK & Ireland #ADADUK24

AD Awareness Day 2024 Aortic DissectionSurgery around the world The Royal College of Surgeons of Edinburgh kicked off with letter from King Charles. Looking forward to hearing experiences from colleagues around the world and ex-patients and families.

Aortic Dissection Awareness Day Today is a day dedicated to raising life-saving awareness of aortic dissection, still an under-recognised condition, yet one that was first documented centuries ago, in 1760 ... bit.ly/3Bc8TSm #AorticDissection