Association Belge du Syndrome de Marfan, ABSM asbl
@marfanbe
Official account of Association Belge du Syndrome de Marfan, belgian association of patients and relatives affected by Marfan syndrome.
ID: 2971517739
https://www.marfan.be 10-01-2015 15:44:48
474 Tweet
141 Followers
142 Following
Thomas Carton de Wiart
@barrycarton
Lead Clown at @unanimous_eu. Tweets mostly in EN mostly about tech, politics and ecology.
Rod Gray
@rodgray
Married to Amie, proud dad to Owen and Olivia, Instagram: rodgray00, Facebook: Rod Gray, LinkedIn: Rod Gray
Denis Costello
@rarecare
Director at @cmlnet Empowering leukemia patient leaders (CML). Patient advocate, formerly @eurordis & @RareConnect Own views
Koning Boudewijnstichting
@kbs_frb
Samen werken aan een betere samenleving. De Koning Boudewijnstichting is onafhankelijk en pluralistisch.
Fondation Roi Baudouin
@frb_kbs
Agir ensemble pour une société meilleure. La Fondation Roi Baudouin est indépendante et pluraliste. kbs-frb.be - bonnescauses.be
Bob WeeAdabebe itsaboy
@curlyqz85
BLACKSWAN FOUNDATION
@blackswanfound
Foundation supporting Research on #RareDiseases worldwide. This channel is no longer fed; follow us on Bluesky bsky.app/profile/rarevo…
gisela teixido
@giselateixido
Cardiòloga. Imatge cardiaca. Unitat de Marfan. Vall d'Hebron. Mare i ciutadana del món.
Nature Communications
@naturecomms
Nature Communications is an open access journal publishing high-quality research in all areas of the biological, physical, chemical and Earth sciences.
Cathy Verbyst
@cathyverbyst
Responsable communication et relations presse - Fondation Roi Baudouin
Sébastien Van Neylen
@sebastienvn16
Alexis Normand
@slarxe
CEO of @Greenly_fr #GreenTech #carbon #accounting #NetZero
Milleron Olivier
@omilleron
Cardiologue hospitalier. Centre de référence national pour le syndrome de Marfan. Hôpital Bichât. Paris. Membre du Collectif Inter-Hôpitaux
pharma.be
@pharmabe
Association générale de l'industrie du médicament - Algemene Vereniging van de Geneesmiddelenindustrie #ScienceServingLife CEO @CarolineVen
Abbott
@abbottnews
Official handle of Abbott. This is technology at its most personal, to help you live your best, healthiest life. #lifetothefullest abbo.tt/Terms
Erika Racquet
@eracquet
Stafmedewerker communicatie Monnikenheide-Spectrum - Tweet in eigen naam
Butterfly Network
@butterflynetinc
Creating a new standard of care through transformative semiconductor ultrasound. #BFLY #POCUS iQ3: Best Medical Technology Winner @ 2024 Prix Galien USA
Lise Murphy
@liseurordis
Patient advocate for Eurordis, former co-chair of patient group in HTAD/Vascern and PCWP at EMA, interested in rare diseases. Views are my own
Yann Le Cam
@yann_eurordis
CEO @eurordis, #raredisease #patient advocate. Member of @rarediseasesint council. Tweets are my own.
RD-Connect
@connectrd
An integrated platform connecting databases, registries, biobanks and clinical bioinformatics for rare disease research
Roanne
@weisman_roanne
AwesomismMom
@awesomismmom
I work w/my adult autistic son to Turn #Autism into #Awesomism thru @teamawesomism ❤️my hubby & 4 kids. ❤️ FSU & Chicago Sports TeamAwesomism.com
Rare Disease Policy
@rarediseaseseu
@RareDiseasesEU is currently managed by Victoria Hedley, RD Policy Manager @ Newcastle University (formerly account 4 RD-ACTION & EUCERD JA). Views now my own
Abbott
@abbottglobal
The @AbbottGlobal Twitter page was discontinued on Nov 30, 2020. Follow @AbbottNews for all news and updates moving forward. TOU: abbo.tt/TOU
Alisa Herrero
@alisaherrero1
Own opinions, re-tweets and goodreads on #EU, #CSDP, #EEAS, #DEVCO, #inequality, #poverty, #globaldev, #climatechange #Marfansyndrome #raredideases
King Baudouin Foundation
@k_b_foundation
Working together for a better society. The King Baudouin Foundation is an independent and pluralistic foundation. kbs-frb.be
ApiFix
@apifix
Jacques Saffar 🎗️
@jacquessaffar
Médecin Vasculaire, vascular physician, @chsf91, #NoFakeMed,
Hélène Le Borgne
@helenelborgne
European, bretonne. Public health & research at EU level, rare diseases, transplantation. Youth & Sports (RTs/follows ≠ endorsements, own views).
Yoors
@yoorsonly
Curaçao HOW | Exploring the soul of the island through its people, places and plants.
IRDiRC
@irdirc
#IRDiRC is a consortium of #RareDisease #research funding agencies n stakeholders. RTs shares likes ≠ endorsement. Account managed by IRDiRC Scient. Secretariat
Caris Baker
@carisfrazier
Art Director @astrocrowgames & Maru Interactive, caricaturist at heart.
diseasemaps
@diseasemaps
World maps of Chronic and Rare diseases and other conditions. Mapas mundiales de enfermedades crónicas, poco frecuentes y otras condiciones. #diseasemaps.org
Catherine Rutten
@ruttencatherine
CardioThoracic & Vasc. Anesthesia Vall d’Hebron
@anesthvh
Vall d’Hebron General Hospital. Cardiovascular and Thoracic Anesthesia. Lung Transplantation. ELS
Genome Medical, Inc.
@genomemed
Enabling a world where everyone’s health is informed by genetics. #genetics #genomics #precisionmedicine #biotech
College Genetics & Rare Diseases
@collegegenet_rd
Official national body representing the Belgian Centers for Medical Genetics & Hospital Functions for Rare Diseases
Jondeau guillaume
@jondeaug
Cardiologist Coordinator of @vascern and @favamulti and Centre de Référence pour le syndrome de #Marfan et apparentés, co-chair of team 2 LVTS U1148 @inserm
ComPaRe, Communauté de Patients pour la Recherche
@patientscompare
Communauté de patients et plateforme participative pour accélérer la recherche médicale sur les maladies chroniques. Participez vous aussi ! Pour s'inscrire 💻 👇
AFMPS
@afmps_be
L’AFMPS est l’autorité belge compétente qui veille à la qualité, la sécurité et l’efficacité des médicaments et des produits de santé.
ERDERA
@erdera_org
The European Rare Diseases Research Alliance. Co-funded by European Union's @HorizonEU Research & Innovation programme. Views expressed are of authors only.
The Belgian Kids' Fund for Pediatric Research
@belgiankidsfund
Fonds Scientifique de l'HUDERF Wetenschappelijk Fonds van het UKZKF Scientific Fund of QFUCH Supporting #Paediatric #Research @HUDERF_UKZKF
Bert Callewaert
@callewaertbert
Associate professor Ghent University Head of Clinic, Ghent University Hospital Senior Clinical Investigator of the Research Foundation - Flanders
Filière FAVA-Multi
@favamulti
FAVA-Multi fédère les acteurs impliqués dans la prise en charge des anomalies vasculaires rares avec atteinte multisystémique. 📍 @HopitalBichat - @aphp
PrediSurge
@predisurge
We assist physicians in planning their endovascular interventions with our AI-powered digital twin technology.
Leema_Robert
@robert_leema
Cardiovascular Geneticist at Guys and St Thomas. Aortopathies/vEDS/Inherited Cardiac Conditions. #Marfan #vasculareds #cardiomyopathy
Indiana Marfan
@indymarfan
We are a community group that provides love, support and relief for individuals and families who are affected by Marfan Syndrome and Related Disorders
Corinne Murphy
@corinnemurphy72
101 Genomes Foundation
@f101genomes
F101G | Genomics for Rare Diseases #genomics4rarediseases #marfan
Nayaf
@kanamekuros
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