Glenfield’s Michelle Fruhschien contributed to “Dear Mama, Stories of an Extra Lucky Life,” a collection of letters written by moms representing neurodiverse children. A longtime special education teacher, she is a dedicated advocate of students with special needs. Congrats!

Love your family. Eat last. Apologize first. Be kind. Be humble. Share the credit. Do your best. Laugh more. Be respectful. Show gratitude.

No Words. Just love. #jgaint 💙 - Jill Hawkins

8 SELF CARE TIPS FOR PARENTS: 💙 ask friends and family for help 💙 spend time outside everyday 💙 reward yourself 💙 it’s ok to say no 💙 schedule me time 💙 join a supportive community 💙 it’s ok to not be ok 💙 be kind to yourself

Say it with me: "Patient AND Caregiver Voice" Many of the #RareDisease patients literally have no voice and have intellectual disabilities. The Caregiver Voice IS their voice. #CTNNB1

Help us grow our social media. Click the links below and "follow" our journey! Facebook: facebook.com/JordansGuardia… Instagram: instagram.com/jordansguardia… Youtube: youtube.com/.../UCaFqEj_N.… Linkedin: linkedin.com/company/jordan… Twitter: x.com/jordansgangels TikTok: tiktok.com/@jordansguardi…

Are you in the Seattle area?? June and July we celebrate Ford's birthday and #CTNNB1 Awareness Day! Come pick up a sign and put this beautiful face in your yard! Help us to continue to fund research to help our children have a better life. curectnnb1.kindful.com/?campaign=1252…

MamaBearforRare is our latest Weekly Warrior. Her daughter, Hailey, lives with a rare genetic syndrome. Listen to Michelle tell their story: linkedin.com/feed/update/ur… #RareDisease #advocacy #diagnosis

Visit from my Rare Mama Bear Jordan’s Syndrome #CTNNB1Conference

Amazing 🥹🥹🥹🥰🥰😍

Made my night❤️

threads.net/@mamabearforra… threads.net/@mamabearforra…

Hills I'll die on 🗻 1. #GeneticTesting 2. #NBS panel reform to include diseases with 💪PAG's - we don't need available treatments to have an answer that will move us forward in 50 different ways. 3. Juanitas are a terrible tortilla chip Josephina chips are the 🐐 #RareDisease

Please share this 🧵 from our cofounder 🔥 Effie Parks CACNA1A Foundation ARRE Foundation SynGAP Research Fund (SRF) CTNNB1 Syndrome Awareness Worldwide Peer Medical Foundation (PMF) Sarita Edwards @CureGM1 MamaBearforRare CHAMP1 Research Foundation CDKL5 - IFCR Dup15q Alliance Dr. Akilah Cadet, MPH RDLA EveryLife Foundation NCBRS Worldwide Foundation - Nicolaides Baraitser Rare Patient Voice

MamaBearforRare is my amazing local mom raising awareness! Rare Disease Month: Montville Mother Spreads Awareness for Daughter's Rare Disease, Jordan's Syndrome tapinto.net/towns/montvill…

We want to thank MamaBearforRare for sharing her #ZebraTale in honor of World Rare Disease Day, representing her daughter Haley who has Jordan’s Syndrome. For more on our #ZebraTale initiative and how you can participate: go.globalgenes.org/REG-RDDS-24 #CareAboutRare #RareDiseaseDay

themontclairgirl.com/montclair-educ… The Montclair Girl MontclairPublicSchoolsNJ Montclair Local Nonprofit News Montclair, NJ

Such a special moment from @mamabearforrare and her daughter. A beautiful day for this incredible rare disease warrior and family. ☀️ 🧬 💙 #BehindTheMystery #CareForRare #RareDiseaseCommunity #RareDiseaseAwareness

Thank you to all involved for this wonderful George to the Rescue transformation for MamaBearforRare, esp 3M ( Filtrete™ Furnace Filters), Sijo , Renegade Brands , DOWNLITE , WickedAlli , Protect·A·Bed® , LG Electronics , National Allergy. asthmaandallergyfriendly.com/USA/creating-a…

Did you know that leftover samples from surgeries on our kids (like Cerebral Spinal Fluid) are most often tossed in the trash? They could hold the key to rare disease breakthroughs. Why aren’t more medical institutions making it a priority to save these valuable resources? What’s