Turn your Father's Day shopping into a force for good. Shop at smile.amazon.com/ch/82-1953231 and Amazon donates to CTNNB1 Syndrome Awareness Worldwide.

Join today for our first ever CTNNB1 Syndrome Research Conference! You can watch our YouTube livestream at: youtube.com/c/CTNNB1org

NOW LIVE! Many of your have taken our survey at ctnnb1.org, now, with the help of volunteer Bruno Ramalho, we have compiled the survey results on our website: ow.ly/npmq50BDBzE

If you haven't already, check out our survey results! It is offered as a resource to know what to expect upon diagnosis of a CTNNB1 syndrome diagnosis, some common symptoms, behaviors, and therapies that have proved effective for some, and more. ctnnb1.org/registry

We are launching Parent's Place, a resource on our website where families can find resources, connection, and support. Check it out: ctnnb1.org/blog If you have questions about Parent's Place, or suggestions for future topics, please email [email protected]

UPDATE! We discovered an error in the initial Survery Result we posted. We have corrected this, and corrected version is now on our on our website: ow.ly/5HuH50BDBzB

SHOP & HELP CSAW You can make a difference while you shop Amazon Prime Day deals on October 13 & 14. Simply shop at smile.amazon.com/ch/82-1953231 or with AmazonSmile ON in the Amazon Shopping app and AmazonSmile donates to CTNNB1 Syndrome Awareness Worldwide.

NEW POST on CTNNB1.org's Parent Place! Vice President Annie shares understood.org and tips to help prepare you for your child's IEP meetings. Check it out! ctnnb1.org/post/organizin…

AMAZON PRIME DAY IS HERE! Today and tomorrow shop the Amazon deals with Amazon Smile! Add CSAW as your charity of choice, and Amazon Smile will donate a fraction of your sale to CSAW.

Happy Halloween! We love seeing how everyone is celebrating, especially Preston's 'Old Man' costume. Show us how you are celebrating below!

NOW LIVE, CSAW's VIRTUAL PARENT LIBRARY: ctnnb1.org/post/virtual-p… Have you read a good book lately? Or connected to someone via their podcast? Share it with us by commenting below or by emailing Annie at [email protected] and we'll add it to our virtual parent libraries.

Disability is Diversity. Help spread the message and wear it proudly. 🧬♿💙🦓 #raredisease #DisabilityTwitter #disabilityisdiversity #podcastforacause

Thank you all for your support on #GivingTuesday If you are looking for other ways to support, please consider shopping with Amazon Smile, and set CSAW as your charity, or check our are gear on Bonfire: (bonfire.com/store/csaw/)

Thank you Wood children! For their birthdays, they joined together and raised money for CSAW on behalf of their older brother. Together, they raised $1080! Last week, they presented their check to the CSAW Executive Committee, who were elated to meet these thoughtful siblings.

NEW POST ON PARENT'S PLACE! Check it out here: ctnnb1.org/post/inclusion

Meet the Johnstons! Read their story on our latest Parent's Place Family Spotlight! ctnnb1.org/post/meet-the-…

Meet the Bushmans! Today they are sharing the their family's story at ctnnb1.org/post/meet-the-…. Interested in sharing your story? Send us a message!

Congratulations to Nadine, a CTNNB1 Sibling, and Katy, a CTNNB1 Aunt, our T-Shirt Contest Winners! We will have both shirt designs available for purchase on Bonfire this weekend.

ITS HERE! Our "Sibling Love Design by Katy" Shirt is now Available for purchase on Bonfire. bonfire.com/sibling-love-d…

ITS HERE! Our "Sibling Advocate Fill-In Design by Nadine" Shirt is now Available for purchase on Bonfire. bonfire.com/sibling-advoca…